Thirsty, and too full of fluid to drink!

Today was a hard day. Made it only through about 3.5 hours at work. Too out of breath, no energy, just exhaustion. Kind of a sad day. Today I almost felt like I was drowning in fluid. So, home I went and had to double up on my Toresimide. YUK.. When I double up on my diaretics, I end up tanking my BP. So not the best day.

My hope is that I can go in to work tomorrow, but not sure it's going to happen. Just too tired. The good part is that I can watch Dr. Phil (ha-ha). That new-normal is a moving target. But I'm tough at least I can write "tough" just a little sad to be fighting so hard and loosing ground. All I can do is rely that God has it all handled because I certainly do not have it together. And....joy comes in the morning. Tomorrow will be better!

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Comment by TerriO on February 9, 2012 at 12:53am: Thank you Mohan and Jan for the encouragement. I wish there was a magic answer for all of us. It is hard to be sick and yet have your mind so alert and well. Sometimes I stay in bed in the morning an extra hour or two just to enjoy the fact that at that place and time....I feel normal. If I don't put my legs over the bed and start moving....I feel good. So I enjoy that extra bit of time to remember things I used to be able to do. Then...I get up and the failure starts in with each and every step I take. What keeps me going is my faith. My belief that things will get better and even it they don't...I am not walking this path alone. I heard today on the Dr. Phil show, Stevie Wonder was one of the guest stars. He made this comment: "your faith should always be greater than your fear!" Not the other way around. That is how I get through my days by hanging on to my faith. So I guess....that is the answer for all of us. There is an answer and it's called F A I T H. I wish for all of us a measure of faith and hope! Blessings~

Comment by Mohan on February 8, 2012 at 8:28pm: I was like this pre-liver transplant. Along with the edema came severe cramps in my hands and legs, and constant bloated feeling. I could only do about that much work a day too. I was hardly getting paid anything with all the leave without pay I was taking.

Hang in there - you are in my thoughts and prayers.

Comment by Jan on February 8, 2012 at 8:04pm: Joy does come every morning! Another day is what we all want:) I like your attitude even though you can admit you are a little sad too. I think I had thought as soon as I get that transplant, maybe three months later or so, I will back to my old self! Some are, some aren't....I am still waiting, but I am getting better 12 months later post transplant. Ther first year is over.

I hope you have a better day tomorrow...I am fightly fluid every day. I just bought those compression hose yesterday, my doctor said it is the only thing, along with Lasix that will make it go away...I was surprised to see my ankles going down and feeling better within an hour of putting them on! That is my secret....hope it works for others too!