I have had CMV 3 times this year as well as once after being treated for a rejection. This is something that I seem to get when my WBC gets below 3. Since I have been on MYFORTIC I have been troubled with low WBC and very low HCT. My HCT has been running 23 - 26 and I am on weekly shots of Aranesp to help my kidney with the protein that makes my blood. This causes me to have terrible muscle weakness, nausea, fatigue, headaches, shortness of breath and all around feeling of ill health. I have to be put on Valcyte at a cost of $1,800 a month for one pill a day. It gets better and then as soon as I go off it comes back.
I am 21-1/2 years post transplant for a kidney.
Has anyone had this also??