All Blog Posts (876)

One Year Ago - Part 128 (Post Lung Transplant)

One Year Ago - Part 128

Saturday, April 20, 2013

San Francisco

Chapter 4 - Post Transplant, Pre-sternal surgery

Normal start, meds, vitals, breakfast.

Am not finding the bag that I use to move things between trailers. Not a good start.

MK day of rest, hoping she would be able to sleep in this weekend.

Worked in the big trailer, most of the day, walked about 40 minutes.

Morning inhaled meds in the big trailer

Lorenzo liked the drawings I…

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Added by Andy on April 20, 2014 at 8:59pm — No Comments

One Year Ago - Part 127 (Post Lung Transplant)

One Year Ago - Part 127

Friday, April 19, 2013

San Francisco

Chapter 4 - Post Transplant, Pre-surgery #2

10 weeks!




Off to UCSF, we met with the Dr. Al-Dossari, the surgeon that will fix my sternum next week. Seemed nice enough, showed us photos of a similar procedure that he did last week. Graphic? Yup. He also walked us through the latest CT scan. The scan clearly showed that the plate has separated from the bone. He will remove the plate, track down the…

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Added by Andy on April 19, 2014 at 8:55pm — No Comments

One Year Ago - Part 126 (Post Lung Transplant)

One Year Ago - Part 126

Thursday, April 18, 2013

San Francisco

Chapter 4 - Post Transplant

Normal night, slept ok, still getting used to having to sleep on my back. I never slept on my back before all this started. Now I have to sleep on my back on a wedge to keep my chest elevated. This is to prevent reflux, which is really bad for transplanted lungs, so I've been told.

Morning meds, vitals, food. Still not eating very much, nothing really appeals to me. Inhaled…

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Added by Andy on April 18, 2014 at 11:43pm — No Comments

Life Update =D ( With a bit of Venting )

Hello Everyone who Reads this, it's. Even awhile Since I've posted a thing on here and I think it's About time to Talk(: So my life has not changed at All except for getting my G.E.D! I've been applying for jobs but haven't heard anything back yet, My Aunt did offer me a Cleaning Job ( I Took it ) because I'm getting Sick of being in my House 6 days a Week. Anyway I'm still Single... Shock there, I just feel like I'll never meet anyone that will like me for me): I mean I know I won't meet… Continue

Added by Katie on April 18, 2014 at 11:15pm — 2 Comments

One Year Ago - Part 125 (Post Lung Transplant)

One Year Ago - Part 125

Wednesday, April 17, 2013

San Francisco

Chapter 4 - Post Transplant

Normal night and morning.

Dentist Day

MK took me to the appointment. Visiting Dr. G for a filling and crown prep. This is a continuation of the appointment that was first scheduled before my time at Kaiser SSF, and then was scheduled for February 7 (2013) that I cancelled when I didn't think we had worked out all the logistics involved with a dental appointment and…

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Added by Andy on April 18, 2014 at 12:29am — No Comments

self conscious

Ok, first I have to say I've been through countless surgeries since the age of 7 and I am now 32.  My scars have always been a source of burden to my psyche.  I feel like I have to cover and hide them and it really messes with my head.  The one that bothers me the most is the one on my neck from a parathyroidectomy and my fistula.  I hear a lot of people say they are proud of their scars or don't want to hide them and I wonder how they do it.  My fistula for dialysis did a number on me too,…

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Added by Sara on April 17, 2014 at 2:34pm — 5 Comments

One Year Ago - Part 124 (Post Lung Transplant)

One Year Ago - Part 124

Tuesday, April 16, 2013

San Francisco

Chapter 4 - Post Transplant

Normal start, vitals, meds, food.

No medical procedures today!

Worked on computer stuff for most of the day, between inhaled meds and walking.

MK and Leah decoded the mystery of when Drop-in-Spirometry is really open.

Walked over 35 minutes today.

Leah made a shopping run.

Exchanged messaged with MD about scheduling for the upcoming CCA…

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Added by Andy on April 16, 2014 at 11:52pm — No Comments

One Year Ago - Part 123 (Post Lung Transplant)

One Year Ago - Part 123

Monday, April 15, 2013

San Francisco

Chapter 4 - Post Transplants


Normal early morning start, vitals, meds, food, only once a week now! Leah took me to UCSF for the Monday morning blood draw. Did all the walking on the cane, didn't take the walker nor wheelchair.

They found a vein on the first try! Returned to the shop, worked in the big trailer until 10:00.

Did inhaled meds in the travel trailer, can't do it in the big trailer when…

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Added by Andy on April 15, 2014 at 10:57pm — No Comments

One Year Ago - Part 122 (Post Lung Transplant)

One Year Ago - Part 122
Sunday, April 14, 2013
San Francisco
Chapter 4 - Post Transplant

Normal morning, vitals, meds, breakfast.

Spent the morning sorting through photos taken through the transplant journey.

Had lunch and then walked with MK.

Arranged for Leah to take me for blood draw tomorrow.

Wayward screw seems to have settled a few inches from where it started, making a small bulge.

Added by Andy on April 15, 2014 at 1:20pm — No Comments

One Year Ago - Part 121 (Post Lung Transplant)

One Year Ago - Part 121

Saturday, April 13, 2013

San Francisco

Chapter 4 - Post Transplants

Today, same start, get up and out with minimum waking of MK. Worked on computer stuff in the big trailer.

Did morning inhaled meds in the big trailer while MK worked in the travel trailer.

Had lunch with MK, then walked together, and for the first time since the transplant walked outside the shop, for about 20 minutes. Went uphill for two blocks, the over two blocks…

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Added by Andy on April 13, 2014 at 7:46pm — No Comments

One Year Ago - Part 120 (Post Lung Transplant)

One Year Ago - Part 120

Friday, April 12, 2013

San Francisco

Chapter 4 - Post Transplants

It has been nine weeks since the transplant, and about 6 weeks since discharge.

Worked in the big trailer most of the day, between walks, and inhaled meds and meals, doesn't leave much time for work.

Graham took photos of all of the oxygen equipment that we had purchased before the transplant, hopefully we can sell some of it.

I did get up and out to the 10x30…

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Added by Andy on April 12, 2014 at 9:00pm — No Comments

I feel safe using ZymeAway

Just by chance while surfing for a green cleaner, I found ZymeAway.…

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Added by Hostess Risé on April 11, 2014 at 2:30pm — No Comments

Graft delay

Hi everyone,



My 2nd graft has been delayed.... Surprise surprise. All because the instrument needed - a dermatome - is not available. I know right, how odd that a hospital doesn't have one, but I kid you not. They have been ordered and in the meantime I lie here and wait. Too much hassle to go home for the weekend and have to deal with re-admission again on Monday and the risk of losing a bed if they get a rush of emergencies.



Titbit of info.... Apparently the doc who did… Continue

Added by Karin on April 11, 2014 at 10:38am — 2 Comments

One Year Ago - Part 118 (Post Lung Transplant)

One Year Ago - Part 118

Wednesday, April 10, 2013

San Francisco

Chapter 4 - Post Transplant

No early start today, but didn't sleep well or normally last night. Could be because it was a little warmer or ? Woke up just before midnight instead of with the 02:00 meds alarm.

Finally got up after 07:30 after a long period of 5 minute naps. Went over to the big trailer around 08:30. MK brought over breakfast around 09:00.

Today was the eye doctor appointment, first…

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Added by Andy on April 10, 2014 at 11:09pm — 2 Comments

One Year Ago - Part 117 (Post Lung Transplant)

One Year Ago - Part 117

Tuesday, April 9, 2013

San Francisco

Chapter 4 - Post Transplants

Tuesday, second day of a very full week.

Started with MK and I going to UCSF for a bronchoscopy. Leah met us at the hospital entrance for car shuffling.

Same prep team as always, except the Fellows were there too. I saw Dr. Golden before the procedure.

Didn't really go all the way out during the procedure, seemed to be awake for the whole thing. MK reminded me…

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Added by Andy on April 9, 2014 at 11:49pm — 2 Comments

Dear Friend

Dear Friend,

Hope this post finds you well.  We are finally seeing a break in the weather here and enjoying some sunshine!  Our temps are far from normal, but I'll take it.

In my last post I spoke of my wait to receive my adoption records.  Well, they came.  Unfortunately, they provided very little information.  It did, however, confirm that I was ABANDONED.  That word sounds so empty and cold.  While I don't know the details of where I was found, I have a…

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Added by Spotted Leopard on April 9, 2014 at 10:13am — 4 Comments

One Year Ago - Part 116 (Post Lung Transplant)

One Year Ago - Part 116

Monday, April 8, 2013

San Francisco

Chapter 4 - Post Transplant ( 2 months )

Stormy with high winds overnight. MK got up and went out to secure a vent that was flapping at 02:00. Arrowhead bottles blowing all around the yard.

Early vitals, meds and breakfast. MK and I left at 07:00 for the Monday blood draw. Found a vein the first time!

After that we went over to the cafeteria for breakfast.

Left there around 09:15, went to…

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Added by Andy on April 9, 2014 at 12:00am — 2 Comments

My Friend Marcus who worked at Quest

We all have met some wonderful people who have crossed our path from time to time and especially during our lab or hospital visits.

There was very special man in particular who I liked very much and his name was Marcos. Whenever I would see Marcus at Quest, he always greeted me by name as I would do the same. 

On March 27 th, I went for my labs and Marcus drew my blood. He was super nice and I felt so special. He said, "everything is clean for you" and when I asked for a tiny…

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Added by Hostess Risé on April 8, 2014 at 2:00pm — 7 Comments

2nd graft

Hi everyone,

Hope you are all well.



As I type this I am lying back in my "old"room in hospital. My 2nd graft is scheduled for tomorrow morning, and I am scared. Scared of the pain I know is coming, scared of being dripped again knowing how many times it failed the last time I was here, scared of the anesthetic and the operation itself, but mostly scared that it does not work again. I have every hope and faith it will as the surgeon, Dr Anna is positive and says there's no… Continue

Added by Karin on April 8, 2014 at 10:03am — 4 Comments

One Year Ago - Part 115 (Post Lung Transplant)

One Year Ago - Part 115

Sunday, April 7, 2013

San Francisco

Chapter 4 - Post Transplant


Woke for 02:00 meds, didn't really sleep much until 06:00, and then only for an hour or so. Vitals, meds.

Went over to the big trailer, MK brought breakfast over. Still ended up being an hour behind when I finally got going.

Inhaled meds before lunch.

Walked 34 minutes in two sessions.

Sent paint color samples for the generator to MK

Updated the…

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Added by Andy on April 7, 2014 at 11:51pm — No Comments

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