Hi my name is Scott I am 5 years post liver transplant and I tottally agree. I have recently heard some things in the medical world on studying this. Lets hope in the future they can come up some sort of soloution to this. I was under for…"
I have only been on prednisone for 1 month this time the docs tell me this time its for life. I have tried several different drugs and with me if there is a possibility of side effects that would be me I am already on edge and then…"
Yes there are days that are wonderful and there are days that are not. All that we can hope is that the good days outweigh the bad ones (I call it mentaphyicality) and at this time The GOOD outweigh the bad. Maybe the brain will…"
I feel that as we go through time all of our meds need monitoring and changes made when deemed neccessary. Along with each change goes the nitedreams and shakes and nitesweats. There are many reasons I beleive have huge impact on how we do post…"
Share - which illness lead up to you needing a transplant?
Alpha 1 Antitrypsin Deficiency
Which Organ(s) did you receive? If you are on the waiting list, please share.
Drugs, vitamins, favorite foods
Too many to list at this time.
How many years have you had your Transplant for?
I am Interested in Transplant Friends because...
There appears to be very limited resourses here in R.I. for liver transplant people. If I was able there is quite a bit of support in Boston M.A. but this is 50 miles away and parking and traffic. But then also being turned down for meetings 15 miles away because I did not have HEPC.
Which Transplant Center has or will perform your life saving surgery?
Mayo Cilinic Jacksonvill Fla.
Share how your transplant experience changed your life?
I have received at leat an additional 5 yers on my life and although I struggle on a daily basis both physiologicaly and physically I am happy to be here.
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