"I too had the same diagnosis. He had to cut out the first one and has frozen one. Apparently it's mostly the fate of fair skin and too much sun. Always use the highest sunscreen, and AWAYS wear a hat. Make sure you screen ears and feet. Lung tx…"
"SANFRANTASTIC !!!!! Going through it a second time with Medicare turning down a claim for surgery to remove a pre-cancerous node on my hairline. I have Medicare ABD andJ. The last round was involving an MRI in the Emergency room. I had to go to my…"
"Thanx Luce, Within 45 days I went from 0 to 1700 and am now taking 1000mg am and pm. Have blood draw tommorrow, so hope it was mistake in bloodwork. Yeah, Iknow, dream on. lol I guess the "good" part is, I'm out of the donut hole in 1…"
"HI sTEVEN, 7-09-2010 WILL BE 3 YRS POST for me. Doing sanfrantastic with the exception of CMV which I'm on and off of frequently. You will be fine as I know a Navy Seal who recieved his transplant due to CF. He is doing awesome !!!!!!!!!!!!!!!!…"
For those who have received one or both lungs. Site is open to anyone who have received a lung(s) along with another organ. Caregivers are also invited. We ask that you share your experiences and be as positive as possible in your comments.See More
"I had a bi-lateral lung transplant 7/9/10 and have Never paid anything for my prograph, cellecpt, or predisone. I have Medicare ABD and J. I still occasionally have to use Valcyte for the CMV. I;m off now, but just for "grins" I…"
"If you have Medicare/Medicaid you should not be paying ANYTHING for prograf, cellcept or prednisone. It was a year before I found this out and some time before I got re-imbursed. ow if they'd only put Valcyte in that first tier. Check with your…"