"I like this comment.. Perfect... Take your meds, wear sunscreen every single day. go to the doctors if you feel anything is wrong. try to avoid stress I know its hard... exercise- it is good for everything. and especially…"
I think that you placed it in Gods hands and that is his answer ... A perfect match!! Wow you are lucky! That is great for you.. I take over 40 pills a day and I have heard after awhile a perfect match transplant patient…"
"Wow that is great... One thing I wanted to mention is this. It was really hard for me to see my daughter not feeling great after her surgery.. everything was fine and it all depends on the person but I cried and cried because I felt like…"
"I live in a suburb of Los Angeles and you would think there is one close that I could go to but NO... I had a transplant at USC on June 5, 2009. They have a support group there but
1. It is too far
2. It is for people that are…"
"Yes I can totally relate!! I accepted a kidney from my daughter! That was really really hard... I live in Ca and she now lives in MN with her husband. I visited her a few times and would have to go to dialysis. She got sick…"
"since my transplant on June 5th 2009 I have had trouble sleeping. The doctors put me on clonazepam 1mg at night and that works for me... just for your info... they said the meds give you insomnia.. I am on Myfortic 180 mg 4 pills a day and…"
"I know you wrote this a long time ago but I too have a Kidney transplant and do have low Vit D levels.. I am up to 4500 UI a day... My calcium is normal too. I also developed Osteoporosis and diabetes so finally my transplant…"
Were you a member of our Forum on http://TransplantBuddies.com ?
Where did you hear about Transplant Friends?
Share - which illness lead up to you needing a transplant?
no one knows
Which Organ(s) did you receive? If you are on the waiting list, please share.
How many years have you had your Transplant for?
I am Interested in Transplant Friends because...
I would love to hear how other people are doing, how they deal with things and would love to chat with people going through the same thing as me because you just dont meet a lot of people who had a kidney transplants
Which Transplant Center has or will perform your life saving surgery?
University of Southern California
Share how your transplant experience changed your life?
Ohhh I do not know even how to start.. made me want to live again.. I hated hated dialysis soooo much and I had to work all day after it.. I used to get up at 4am and go for dialysis so I could work all day. I always was in pain, felt extremely tired, missed out on life, So now I can get up at a resonable time, not in pain, not tired. I am like a person given a new life.. I look and feel so much better. I love it.
Comment Wall (11 comments)
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I am sorry I took so long to reply to you! I am so glad that your kidney is working well for you! What a wonderful gift to give! That is very precious! Hope you had a wonderful Christmas and New Year! We sure did! Life can be so short, and it is so precious! I don't take a second for granted anymore. Very thankful to my Donor Family, who I don't know, and my wonderful surgeons and nurses at St. Louis University Hospital. They are Awesome!
Yes, Leah and I are dog people, and we now have two, a 13 yr old datsun, Jasmine, and a 5 yr old Pit bull, Morgan, who we rescued while on vacation in Mobile, Al. in 2007. She looked like a Jack Russel terrier when we first saw her, walking around, abandoned by someone. She was so skinny, and had worms, and a fish hook embedded in her left paw! We could not leave her like she was, so we had the vet there in Orange Beach, remove the fish hook, and we took her home a few days later, after our vacation was over. She is such a sweet dog! Funny thing, she is so afraid of helium filled balloons! I hope you are doing well! God Bless!
Hello, Nice to meet you and I hope you are doing well. I am about 12 weeks post transplant, liver and kidney, doing very well now. Taking the prograf and Cellcept plus other meds too. I have some slight numbness in my left foot and toes, but I hear that is normal. How long ago were you transplanted? My transplant was a two day event. I had a wound-vac place over the site, as my surgeon wanted to check everything out the next day before closing me up. I had a double-jump graft on my liver, due to congenital deformity on my hepatic artery. I had PSC, which caused my liver to start failing. I also have U/C, but have been asymptomatic with it for over 12 years now. Still take Asacol.
Hello Humminbird! I too, have received a kidney. I have had mine since 2007. I have been doing pretty well, other than the weight gain. I also hated dialysis. I did not have a good reaction to it and had a lot of pain and extreme fatigue while I was on it. Sooo much pain! I try to block it out of memory now because it just depresses me. I am glad to hear that you are doing better. It is a long journey to feel like yourself again. I do not feel like myself right now for one reason, that I am 40lbs heavier than I have ever been. My body just won't let go of fat since the transplant and the immunosuppressant meds. I am now on only 4 meds a day, a total of 10 pills a day. My function has been great, I can thank my brother for that, he was my donor. Welcome to transplant friends, keep in touch and let me know how you are doing! -Jenessa