"Can u not be on the UNOS list and also if u find a living donor, I dont think there will be any issues with the transplant center.
BraveHeart
"
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braveheart's Discussions
Spots on my face and arms. What to do?
Started this discussion. Last reply by Rita yesterday. 4 Replies 0 Likes
I seem to be getting black spots that looks like moles and also some colorless spots. At the moment I am using Cetaphil skin cleanser, I dont see any improvement. Has any one have had this problem.…Continue
Prograf and blisters
Started this discussion. Last reply by Mark Apr 17. 3 Replies 0 Likes
Within one month my prograf dosage has been increased from 0.5mg twice a day to 3mg twice a day.Now I am getting blisters, some of the blisters are red, some are black and the others are colorless.…Continue
Disability payment and medicare coverage
Started this discussion. Last reply by lovingmyself May 12. 17 Replies 1 Like
Is it true that u lose your disability check and medicare coverage when u reach 1st anniversary of your heart transplant. Please tell me it is not true. I am 60 and had my transplant in nov…Continue
3 1/2 months post heart transplant, still feel horrible. Will it ever get better
Started this discussion. Last reply by Walt Mar 11. 4 Replies 0 Likes
I am 3 1/2 months post heart transplant. All my test results comes out great, biopsies, echos, blood work every thing looks great. Then why do I feel so fatiqued, tired, no energy whatsoever, joint…Continue
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Rita replied to braveheart's discussion 'Spots on my face and arms. What to do?'"I would bring it to your doctor's attention and chances are he/she will refer you to a dermatologist. After my transplant I was told that I should go to the dermatolgist and I go often now. I have found with the drugs that I get many little…"
Hostess Risé replied to braveheart's discussion 'Spots on my face and arms. What to do?'"Hi Brave
Several years ago, a young lady on transplantbuddies wrote about dark spots on her face.
You can try and search to see if the message is still there.
Glad to know you are going to the doctor.
Not sure if this will help but look up Rose hip…"
braveheart replied to braveheart's discussion 'Spots on my face and arms. What to do?'"I will be seeing the dermatologist next week
BraveHeart"
Hostess Risé replied to braveheart's discussion 'Spots on my face and arms. What to do?'"Hi Braveheart
What did your dermatologist say? Are you taking anti fungal medications?"
braveheart replied to Hari's discussion 'Not yet completed one month after kidney transplant'"Also pay close attention to ur blood sugar. I was diabetic before my transplant and was well controlled with med. Ant rejection drugs has played havoc with my blood sugar, im now on insulin.
BraveHeart"
braveheart posted a discussionSpots on my face and arms. What to do?
I seem to be getting black spots that looks like moles and also some colorless spots. At the moment I am using Cetaphil skin cleanser, I dont see any improvement. Has any one have had this problem. The spots are mostly on my face. These seem to appear when they raised my prograf dose from 0.5mg twice a day to 3mg twice a day over a period of 6 weeks,even through my prograf levels were withing normal range. Any advice, suggestions shall be highly appreciated. my prograf level at the moment is…See More
braveheart replied to Hari's discussion 'Not yet completed one month after kidney transplant'"I was on valcyte for 3 months. First 6 weeks 450mg twice a day and the next six weeks 450mg once a day. If u are able to walk this much for being only 1 month post, then u are doing excellent. with anti rejection drugs most people gain weight…"
lovingmyself replied to braveheart's discussion 'Disability payment and medicare coverage'"I'm 47 now and after three years with my kidney transplant before it rejected, disability sent me a letter saying that I was considered disabled they wasn't going to ask me to do a review I think they look at…"
maverick replied to braveheart's discussion 'Disability payment and medicare coverage'"No that is not really true. I have been on SSI since 1999 and Medicare also. It is true there is a technical change when reaching 65. You will only notice a change in the title of your payments. SSI stops and SS Retirement starts. It just come s out…"
Walt replied to braveheart's discussion 'Disability payment and medicare coverage'"Don't quote me, but I'm in the same boat. I went on SSDI about 4 months after my LVAD implant. At that time (I was 56), they told me that I would be reviewed when I hit my 5 year anniversary. I am about to hit 7 years and I have…"
braveheart replied to Ron's discussion 'Heart Transplant'"Congratulations. In order to get the most response, just post your issues here.
God bless us all always
BraveHeart
"
braveheart replied to braveheart's discussion 'Disability payment and medicare coverage'"Were you ever contacted by SSA during that 9 years
God bless us all always
BraveHeart"
braveheart replied to braveheart's discussion 'Disability payment and medicare coverage'"Walt Thanks for your response. I will be 61 on my 1st heart transplant anniversary. As I read from your reply, that if i am able to go to any of the work that i did in the last 15 years i will not be considered disable, but i have not worked…"
Kt* replied to braveheart's discussion 'Disability payment and medicare coverage'"I got disability benefits for like 9 yrs after 1st Txp.. and was fortunate enough to find work "under the table". SSD and med coverage as well. It's not true..although that was during the Clinton Adm. So things might have…"
Walt replied to braveheart's discussion 'Disability payment and medicare coverage'"Here is some info that I found regarding organ transplants and SSDI. I didn't see any 3 yr reference, but lots of age references.
Organ Transplants and Social Security Disability Insurance
Here is an explanation of Social…"
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Comment Wall (4 comments)
- At 9:02am on November 2, 2012,
Cisco said… Happy birthday Braveheart! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 pm central time. Hope to see you there!
- At 8:34am on November 2, 2012,
David said… Happy Birthday BH !
- At 12:21pm on November 2, 2011, Rachel said…
- Happy Happy Birthday! Enjoy your day.
- At 8:35pm on May 13, 2011, Hostess Risé said…
Hello Braveheart,
Welcome to Transplant Friends:) Wishing you and everyone here who is waiting for a new organ the very best.
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