"Happy birthday TerriO! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 pm central time. Hope to see you there!"
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Carole commented on TerriO's photo
Missy's wedding me and my girls
"Hi TerriO
So sorry to hear you've been on a downward hill. Can relate to how you feel (dbl. lung tx '06), but you are going through so much worse. Did you ever get your snow. Hope so. I love snow and it makes me happy too. …"
Holly commented on TerriO's blog post 'It's Been Awhile'"Trying to navigate this site is confusing to me. I just read your latest post. I'm sorry to read that you are still waiting for your tx...pray that like Spring, it will surely come soon. I love Portland. We got to visit there when 1 of…"
Hostess Risé commented on TerriO's blog post 'It's Been Awhile'"Smiles being sent from my place to yours. Take a picture of the snow and post it for us to see.
i know what you mean about waiting and fighting. We can all relate."
TerriO replied to Sharon's discussion 'Rough times over here.' in the group How was your day today?"Sharon, I am fairly new to TF and don't know you personally, but I just want to say "Keep up the Good Work" and fight like heck! I am inspired by your tenacity and your courage! Keep the Faith! :)"
TerriO posted a blog postIt's Been Awhile
Been a hard month or so. Fighting the good fight but seem to be inching backward. As strong as I am in my faith and believing that transplant will come quickly, I feel a little saddened that nothing has happened yet. My little bit of energy is evaporating and I'm just plain tired of being tired! On a good note, we may get snow tonight here in Portland. That would be beautiful! We have not had hardly any snow this year. Snow always makes me smile and I could use a smile tonight!Tomorrow…See More
Bobbi commented on TerriO's blog post 'Keeping the couch warm'"I so understand this post. I also have a magic couch that takes me on fabulous journeys. My physical therapist asked me for some goals the other day and I said I want to vacuum and be able to do the dishes! he did not think those were goals,…"
Profile Information
- Were you a member of our Forum on http://TransplantBuddies.com ?
- Yes
- Where did you hear about Transplant Friends?
- on the NFT site.
- Are You Male or Female?
- Female
- Share - which illness lead up to you needing a transplant?
- started in 1981 with post-partum cardiomyopothy, congestive heart failure and an Atrial-Septal defect. Had surgery to repair the ASD had complications with my heart stopping and ended up with a pacemaker. For 20+ years went on to lead a fairly normal life until September of 2005 when I ended up having several large blood clots in my arm as a result of Atrial fib. Unfortunately, the Atrial Fib led to CHF and Cardiomyopothy. After 3 years and trying medication management with symptoms getting worse and my energy level progressing downward, went to Mayo clinic in Rochester Mn for a pericardial stripping or complete pericardectomy. Surgery was successful in stripping the pericardium but unfortunately, I arrested twice the day after surgery and ended up on ECMO for about 5 days. After over 3 weeks at Mayo a bi-ventricular pacemaker/defribillator was put in because my ejection fraction was at about 15. I was blessed to have made it for the past 3.5 years but the heart failure and the cardiomyopothy has continued to worsen. My only option is heart transplant. So here I am on the transplant list as of December 22, 2011.
- Which Organ(s) did you receive? If you are on the waiting list, please share.
- I am on the waiting list for a new heart as of December 22nd, 2011
- Drugs, vitamins, favorite foods
- I currently take too many medications to count.
- How many years have you had your Transplant for?
- have not yet had it
- I am Interested in Transplant Friends because...
- I feel alone! No one I have ever known has walked this path. I am somewhat scared, somewhat excited and a little fearful of the unknown. I have a strong belief in God and have relied on Him heavily to get through this. I have a wonderful support group of friends and family but really no-one that understands what I am going through. This...is why I want to be a part of this group.
- Which Transplant Center has or will perform your life saving surgery?
- OHSU Oregon Health Sciences University Center
- Share how your transplant experience changed your life?
- has not happened yet but it is already changing my life. Just knowing that we are not putting a band-aid on the old heart and that a new heart that will work and allow me to have a life again.....that is ...in itself, LIFE CHANGING.
- Share your interests and hobbies
- I love to sing, sew, I love to entertain (however that is practically non-existent now). I enjoy spending time with my husband, 4 daughters and 2 granddaughters. I have a wonderful job that I enjoy working at a local hospital in the staff education department. However, my hours are dwindling more and more to the point I am barely over 1/2 time now. However, it is this job that keeps me active. It is the only place that I can still be the same person. Everywhere else, I am not able to perform as I used to.
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It's Been Awhile
Posted on March 5, 2012 at 11:35pm 2 Comments 0 Likes
Been a hard month or so. Fighting the good fight but seem to be inching backward. As strong as I am in my faith and believing that transplant will come quickly, I feel a little saddened that nothing has happened yet. My little bit of energy is evaporating and I'm just plain tired of being tired!
On a good note, we may get snow tonight here in Portland. That would be beautiful! We have not had hardly any snow this year. Snow always makes me smile and I could use a smile…
Continue Back In The Saddle Again
Posted on February 7, 2012 at 11:43pm 0 Comments 1 Like
After a long hard week of dealing with no energy, too much heart failure and not being able to work, I am finally able to get out and about. Last week is but a bad memory. This week, I am enjoying life more. It is amazing what a difference a week makes.
God says He will not give us more than we can handle, but I sometimes wonder just exactly how much is...too much! For the most part, I have been able to stay positive. But when things get really rough, I find myself playing that…
Continue Thirsty, and too full of fluid to drink!
Posted on January 31, 2012 at 11:57pm 3 Comments 2 Likes
Today was a hard day. Made it only through about 3.5 hours at work. Too out of breath, no energy, just exhaustion. Kind of a sad day. Today I almost felt like I was drowning in fluid. So, home I went and had to double up on my Toresimide. YUK.. When I double up on my diaretics, I end up tanking my BP. So not the best day.
My hope is that I can go in to work tomorrow, but not sure it's going to happen. Just too tired. The good part is that I can watch Dr. Phil (ha-ha). That…
Continue What ls Normal?
Posted on January 30, 2012 at 4:13am 1 Comment 1 Like
I used to think about what the word "normal" really meant and who really defined "normal." What puzzled me...was the people who defined what "normal" is....Where they normal? When used as a noun, the word normal means "the usual, average, or typical state or condition." The reason I bring this up is that for those of us who are suffering from debilitating illness or chronic illness, we have to re-define what our new normal or ...our new usual is. Normal for me…
ContinueComment Wall (7 comments)
- At 8:59am on December 29, 2012,
Cisco said… Happy birthday TerriO! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 pm central time. Hope to see you there!
- At 8:17am on December 29, 2012,
David said… Happy Birthday TerriO !!
- At 6:28pm on January 25, 2012, Hostess Risé said…
I like your page!
- At 10:47pm on January 24, 2012, Holly said…
Hi Terri. I was in your shoes a little over a year ago and spent 6 wks in ICU knowing I could not walk out without a new heart. It sure was worth waiting for.
Sounds like you have alot of family support and we are here to walk beside you every step of the way.
I was pretty scared too but could see the "hand of God" at work and gave HIm my trust. Now, I can do most anything. It is so wonderful to be able to breath and not be coughing all the time. Sometimes now, even at my age, I JUMP into
bed just because I can!!! Holly
- At 7:52pm on January 24, 2012, Hostess Risé said…
Hi Terri
Welcome to Transplant Friends! I wish you all the best along your new journey for your new heat. You will find many people who you can talk to. Reach out and chat with others here.
- At 3:04pm on January 24, 2012, David said…
Hi TerriO .. your not alone many of us have gone through what your going through now .. you may seem alone but your not , there is a ton of wonderfull people here who can help, give some advice, their insight as to what they have gone through.. I too have had a heart tx. 19 months now and yes had a pacemaker/difibulator/ plus I had an LVAD heart pump for 15 months prior to tx. Wishing you all the best ! hope your wait is a short one, Please ask any question , the only DUMB question is the one you don't ask ! .. David ..
- At 8:05am on January 24, 2012, David said…
Greetings TerriO !! Welcome Aboard !!
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