Been a hard month or so. Fighting the good fight but seem to be inching backward. As strong as I am in my faith and believing that transplant will come quickly, I feel a little saddened that nothing has happened yet. My little bit of energy is evaporating and I'm just plain tired of being tired!
On a good note, we may get snow tonight here in Portland. That would be beautiful! We have not had hardly any snow this year. Snow always makes me smile and I could use a smile…Continue
After a long hard week of dealing with no energy, too much heart failure and not being able to work, I am finally able to get out and about. Last week is but a bad memory. This week, I am enjoying life more. It is amazing what a difference a week makes.
God says He will not give us more than we can handle, but I sometimes wonder just exactly how much is...too much! For the most part, I have been able to stay positive. But when things get really rough, I find myself playing that…Continue
Today was a hard day. Made it only through about 3.5 hours at work. Too out of breath, no energy, just exhaustion. Kind of a sad day. Today I almost felt like I was drowning in fluid. So, home I went and had to double up on my Toresimide. YUK.. When I double up on my diaretics, I end up tanking my BP. So not the best day.
My hope is that I can go in to work tomorrow, but not sure it's going to happen. Just too tired. The good part is that I can watch Dr. Phil (ha-ha). That…Continue
I used to think about what the word "normal" really meant and who really defined "normal." What puzzled me...was the people who defined what "normal" is....Where they normal? When used as a noun, the word normal means "the usual, average, or typical state or condition." The reason I bring this up is that for those of us who are suffering from debilitating illness or chronic illness, we have to re-define what our new normal or ...our new usual is. Normal for me…Continue