"Hi Jordan, Thank you for thinking of me. I sure need all the hope and prayers in the world. Just got the results of my liver CT...3 or 4 lesions, one of them is approx 2.4 cm. Now I know why I have been in pain, and feeling more tired, weak…"
"anytime i know what it is like been in and out of the hospital all my life with different problems since the age of 5 so just got to have faith in jesus and everything will come out fine that is how i see it"
"Thank you too Will, I will try to get into Mayo Clinic's xplant program as I have no trust or faith with UM / Jacksonville Memorial. It used to be OK there, but they are having major financial problems and the quality of care has deterioriated…"
anytime i know what it is like been in and out of the hospital all my life with different problems since the age of 5 so just got to have faith in jesus and everything will come out fine that is how i see it
Yes I am still taking a large dose of meds. This is my second transplant so I cannot complain. That would be great to receive stem cells from the donor. I did not know that JMH was giving the receipients bone marrow from the donor. That is a miracle! Let us know ok
take care and let us know how you are doing after tx. Perhaps have a family or friend let us know.
AT the time of my transplant they were doing research to see if giving the recipient the donors bone marrow would keep them out of rejection. It did keep me out of any rejection for about 3 years. I have had about 3 episodes of rejection. About 5 years ago, my counts started going up so my Dr. started me on 10 mg of prednisone. We tried to lower it to 5 but my counts started going back up. My Dr. said I will probably be on prednisone the rest of my life. I have taken Prograf since my transplant. About 2 years ago my creatine started going up, so my doctor lowered my Prograf to 1 and 1 and added 1000 mg of cellcept 2 times a day. My counts right now look very good.
If you look up cmv online it will tell you most of the population has been exposed to it. I happened to be the small percentage of people who had not so the gave me meds so I would not get it. It is related to virus that is dormant in most. Being I never had been exposed to this particular virus they gave me meds right after transplant.