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Liver Transplants

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Latest Activity

Cisco left a comment for Susan

"Happy birthday Susan! Have a great day! You should join us for chat on Saturdays and Sundays satrting at 2 pm CDT. Hope to see you there!"

Jul 1, 2012

Cathy and Susan are now friends

May 13, 2011

jordan left a comment for Susan

"good luck my prayers are with you"

May 12, 2011

Susan liked Kimberly's profile

May 12, 2011

Susan left a comment for jordan

"Hi Jordan, Thank you for thinking of me. I sure need all the hope and prayers in the world. Just got the results of my liver CT...3 or 4 lesions, one of them is approx 2.4 cm. Now I know why I have been in pain, and feeling more tired, weak…"

May 12, 2011

jordan left a comment for Susan

"anytime i know what it is like been in and out of the hospital all my life with different problems since the age of 5 so just got to have faith in jesus and everything will come out fine that is how i see it"

May 10, 2011

Susan liked Cathy's group Liver Transplants

May 10, 2011

Susan and luoming are now friends

May 10, 2011

Susan left a comment for jordan

"Jordan, Thank you for your kind words. All my best to you, Susan"

May 10, 2011

Susan left a comment for mike

"Mike, Great to hear you are doing well, it's reassuring. Best, Susan"

May 10, 2011

Susan commented on Cathy's group 'Liver Transplants'

"Thank you too Will, I will try to get into Mayo Clinic's xplant program as I have no trust or faith with UM / Jacksonville Memorial. It used to be OK there, but they are having major financial problems and the quality of care has deterioriated…"

May 10, 2011

Susan commented on Cathy's group 'Liver Transplants'

"Thanks Mikey! Going for my next liver CT Scan tomorrow...I've had so many I glow in the dark! Pease to you too, Susan "

May 10, 2011

luoming left a comment for Susan

"hello Susan I did liv er transplant on 14 Nov 2003 , I am very well as normal before, Do not warry,you will be cover soon after transplant , keep in touch if you need any help God bless you ,enjoy your live , welcome to Beijng China "

May 9, 2011

Profile Information

Were you a member of our Forum on http://TransplantBuddies.com ?: Yes

Where did you hear about Transplant Friends?: FB

I am Interested in Transplant Friends because...: Not only do I fear the transplant surgery, I am very concerned about the physical healing process (incision) as well the horrible sides from the anti rejection meds.

Which Transplant Center has or will perform your life saving surgery?: Unfortunately UM, but I prefer to go to Mayo in Jacksonville as their infection & survival rate is better.

Comment Wall (13 comments)

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At 8:07am on July 1, 2012, Cisco said…: Happy birthday Susan! Have a great day! You should join us for chat on Saturdays and Sundays satrting at 2 pm CDT. Hope to see you there!

At 11:06pm on May 12, 2011, jordan said…: good luck

my prayers are with you

At 9:08pm on May 10, 2011, jordan said…: anytime i know what it is like been in and out of the hospital all my life with different problems since the age of 5 so just got to have faith in jesus and everything will come out fine that is how i see it

At 12:17am on May 9, 2011, luoming said…: hello Susan

I did liv

er transplant on 14 Nov 2003 , I am very well as normal before, Do not warry,you will be cover soon after transplant , keep in touch if you need any help

God bless you ,enjoy your live , welcome to Beijng China

At 2:41pm on May 6, 2011, Hostess Risé said…: Hostess Rise' said…
Hi Susan,

Yes I am still taking a large dose of meds. This is my second transplant so I cannot complain. That would be great to receive stem cells from the donor. I did not know that JMH was giving the receipients bone marrow from the donor. That is a miracle! Let us know ok

take care and let us know how you are doing after tx. Perhaps have a family or friend let us know.

Rise'

At 1:22pm on May 6, 2011, jordan said…: susan my prayers and thoughts are with you

At 7:14am on May 6, 2011, Mariann said…: AT the time of my transplant they were doing research to see if giving the recipient the donors bone marrow would keep them out of rejection. It did keep me out of any rejection for about 3 years. I have had about 3 episodes of rejection. About 5 years ago, my counts started going up so my Dr. started me on 10 mg of prednisone. We tried to lower it to 5 but my counts started going back up. My Dr. said I will probably be on prednisone the rest of my life. I have taken Prograf since my transplant. About 2 years ago my creatine started going up, so my doctor lowered my Prograf to 1 and 1 and added 1000 mg of cellcept 2 times a day. My counts right now look very good.

At 10:11pm on May 5, 2011, Rita said…: If you look up cmv online it will tell you most of the population has been exposed to it. I happened to be the small percentage of people who had not so the gave me meds so I would not get it. It is related to virus that is dormant in most. Being I never had been exposed to this particular virus they gave me meds right after transplant.

At 9:56pm on May 5, 2011, Rita said…: Hi Susan I live in Queens (Little Neck). I went to the clinic a few times a week when I first got the gift of a transplant because I had to get meds. I was cmv negitive and my donor was cmv+ Then after they felt all was good with labs and the cmv I would go every six weeks. Now I go 2x a year. Actually I am taking off work tomorrow and going to the city to the clinic to see my transplant doctor.

At 9:18pm on May 5, 2011, Rita said…: Hi Susan, I actually live in NYC. I have a kidney transplant and yes there are some issues with the meds, but nothing that would prevent me from living a full life. I am so sorry that you are still battling illness that was picked up in the hospital. The healing process after transplant is kind of the same for any other operation that I have had in the past. Yes, washing hands and being clean and trying to stay away from sick people help keep you well when first transplanted. As far as other things related to drugs, I have found that doctors watch labs closely to see how you are doing on meds and if there is a problem they may change meds or adjust dose. Do you have to stay at the transplant center/hospital or can you change to another being you are unhappy with their cleaness?