Susan's Friends

  • jordan
  • Mariann
  • Rita
  • Cathy
  • luoming
 

Susan's Page

Latest Activity

Duane Kellar left a comment for Susan
"Happy Birthday Susan and many more to come, Take care, Prayer and wishes to u. hope to see u on the chat on sat and sunday's 3pm est."
Jul 1, 2013
David left a comment for Susan
" Happy Birthday Susan ! "
Jul 1, 2013
Cisco left a comment for Susan
"Happy birthday Susan! Have a great day! You should join us for chat on Saturdays and Sundays satrting at 2 pm CDT. Hope to see you there!"
Jul 1, 2012
Cathy and Susan are now friends
May 13, 2011
jordan left a comment for Susan
"good luck my prayers are with you"
May 12, 2011
Susan liked Kimberly's profile
May 12, 2011
Susan left a comment for jordan
"Hi Jordan, Thank you for thinking of me. I sure need all the hope and prayers in the world.  Just got the results of my liver CT...3 or 4 lesions, one of them is approx 2.4 cm. Now I know why I have been in pain, and feeling more tired, weak…"
May 12, 2011
jordan left a comment for Susan
"anytime i know what it is like been in and out of the hospital all my life with different problems since the age of 5 so just got to have faith in jesus and everything will come out fine that is how i see it"
May 10, 2011
Susan liked Cathy's group Liver Transplants
May 10, 2011
Susan and luoming are now friends
May 10, 2011
Susan left a comment for jordan
"Jordan, Thank you for your kind words. All my best to you, Susan"
May 10, 2011
Susan left a comment for mike
"Mike, Great to hear you are doing well, it's reassuring. Best, Susan"
May 10, 2011
Susan commented on Cathy's group 'Liver Transplants'
"Thank you too Will, I will try to get into Mayo Clinic's xplant program as I have no trust or faith with UM / Jacksonville Memorial. It used to be OK there, but they are having major financial problems and the quality of care has deterioriated…"
May 10, 2011

Profile Information

Were you a member of our Forum on http://TransplantBuddies.com ?
Yes
Where did you hear about Transplant Friends?
FB
I am Interested in Transplant Friends because...
Not only do I fear the transplant surgery, I am very concerned about the physical healing process (incision) as well the horrible sides from the anti rejection meds.
Which Transplant Center has or will perform your life saving surgery?
Unfortunately UM, but I prefer to go to Mayo in Jacksonville as their infection & survival rate is better.

Comment Wall (15 comments)

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At 12:02pm on July 1, 2013, Duane Kellar said…

Happy Birthday Susan and many more to come, Take care, Prayer and wishes to u. hope to see u on the chat on sat and sunday's 3pm est.

At 6:51am on July 1, 2013, David said…

 Happy Birthday Susan ! 

At 8:07am on July 1, 2012, Cisco said…

Happy birthday Susan! Have a great day! You should join us for chat on Saturdays and Sundays satrting at 2 pm CDT. Hope to see you there!

At 11:06pm on May 12, 2011, jordan said…

good luck

my prayers are with you

At 9:08pm on May 10, 2011, jordan said…
anytime i know what it is like been in and out of the hospital all my life with different problems since the age of 5 so just got to have faith in jesus and everything will come out fine that is how i see it
At 12:17am on May 9, 2011, luoming said…

hello Susan

I did liv

er transplant on 14 Nov 2003 , I am very well as normal before, Do not warry,you will be cover soon after transplant , keep in touch if you need any help

God bless you ,enjoy your live , welcome to Beijng China

 

 

At 2:41pm on May 6, 2011, Hostess Risé said…
Hostess Rise' said…

Hi Susan,

 

Yes I am still taking a large dose of meds. This is my second transplant so I cannot complain. That would be great to receive stem cells from the donor. I did not know that JMH was giving the receipients bone marrow from the donor. That is a miracle!   Let us know ok

take care and let us know how you are doing after tx.  Perhaps have a family or friend let us know.

Rise'

At 1:22pm on May 6, 2011, jordan said…

susan my prayers and thoughts are with you

 

At 7:14am on May 6, 2011, Mariann said…
AT the time of my transplant they were doing research to see if giving the recipient the donors bone marrow would keep them out of rejection. It did keep me out of any rejection for about 3 years. I have had about 3 episodes of rejection. About 5 years ago, my counts started going up so my Dr. started me on 10 mg of prednisone. We tried to lower it to 5 but my counts started going back up. My Dr. said I will probably be on prednisone the rest of my life. I have taken Prograf since my transplant. About 2 years ago my creatine started going up, so my doctor lowered my Prograf to 1 and 1 and added 1000 mg of cellcept 2 times a day. My counts right now look very good.
At 10:11pm on May 5, 2011, Rita said…
If you look up cmv online it will tell you most of the population has been exposed to it. I happened to be the small percentage of people who had not so the gave me meds so I would not get it. It is related to virus that is dormant in most. Being I never had been exposed to this particular virus they gave me meds right after transplant.
 
 
 

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