"Hi Jordan, Thank you for thinking of me. I sure need all the hope and prayers in the world. Just got the results of my liver CT...3 or 4 lesions, one of them is approx 2.4 cm. Now I know why I have been in pain, and feeling more tired, weak…"
"anytime i know what it is like been in and out of the hospital all my life with different problems since the age of 5 so just got to have faith in jesus and everything will come out fine that is how i see it"
"Thank you too Will, I will try to get into Mayo Clinic's xplant program as I have no trust or faith with UM / Jacksonville Memorial. It used to be OK there, but they are having major financial problems and the quality of care has deterioriated…"
I did liv
er transplant on 14 Nov 2003 , I am very well as normal before, Do not warry,you will be cover soon after transplant , keep in touch if you need any help
God bless you ,enjoy your live , welcome to Beijng China
anytime i know what it is like been in and out of the hospital all my life with different problems since the age of 5 so just got to have faith in jesus and everything will come out fine that is how i see it
Yes I am still taking a large dose of meds. This is my second transplant so I cannot complain. That would be great to receive stem cells from the donor. I did not know that JMH was giving the receipients bone marrow from the donor. That is a miracle! Let us know ok
take care and let us know how you are doing after tx. Perhaps have a family or friend let us know.
AT the time of my transplant they were doing research to see if giving the recipient the donors bone marrow would keep them out of rejection. It did keep me out of any rejection for about 3 years. I have had about 3 episodes of rejection. About 5 years ago, my counts started going up so my Dr. started me on 10 mg of prednisone. We tried to lower it to 5 but my counts started going back up. My Dr. said I will probably be on prednisone the rest of my life. I have taken Prograf since my transplant. About 2 years ago my creatine started going up, so my doctor lowered my Prograf to 1 and 1 and added 1000 mg of cellcept 2 times a day. My counts right now look very good.
If you look up cmv online it will tell you most of the population has been exposed to it. I happened to be the small percentage of people who had not so the gave me meds so I would not get it. It is related to virus that is dormant in most. Being I never had been exposed to this particular virus they gave me meds right after transplant.
Hi Susan I live in Queens (Little Neck). I went to the clinic a few times a week when I first got the gift of a transplant because I had to get meds. I was cmv negitive and my donor was cmv+ Then after they felt all was good with labs and the cmv I would go every six weeks. Now I go 2x a year. Actually I am taking off work tomorrow and going to the city to the clinic to see my transplant doctor.
Hi Susan, I actually live in NYC. I have a kidney transplant and yes there are some issues with the meds, but nothing that would prevent me from living a full life. I am so sorry that you are still battling illness that was picked up in the hospital. The healing process after transplant is kind of the same for any other operation that I have had in the past. Yes, washing hands and being clean and trying to stay away from sick people help keep you well when first transplanted. As far as other things related to drugs, I have found that doctors watch labs closely to see how you are doing on meds and if there is a problem they may change meds or adjust dose. Do you have to stay at the transplant center/hospital or can you change to another being you are unhappy with their cleaness?