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Sue's Groups

Dialysis Group

17 members
3 Comments 1 Like
Prograf

295 members
124 Comments 40 Likes

Neoral-Cyclosporine

86 members
38 Comments 14 Likes
Rapamune Friends

67 members
40 Comments 4 Likes

I love my Pet(s)

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89 Comments 5 Likes

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Sue's Page

Latest Activity

Hostess Risé left a comment for Sue

"Wishing you a wonderful birthday Sue"

Apr 11

David left a comment for Sue

"" Happy Birthday Sue ! ""

Apr 11

Sue joined Hostess Risé's group

Dialysis Group

This is a place for those who are about to begin dialysis or those who are currently on dialysis or has someone that is close to them on dialysis.This group idea was inspired by RitaSee More

Dec 11, 2012

3 Comments 1 Like

Sue replied to hearttxp's discussion '.5 mg Rapamune' in the group Rapamune Friends

"I had a liver tx 14 1/2 years ago and do take rapamune for it along with prograf. I didn't know it was now made in .5 mg tablets. I take 1 mg tablet every day and .5 of prograf every other day. Will check that out now that I know.…"

Dec 10, 2012

Sue replied to Kristy's discussion 'What is an average "normal" for Prograf/TAC levels?' in the group Prograf

"I too was born with one kidney. I had a liver tx 14 1/2 years ago and take both rapamune and prograf.............thanks to them I am now on dialysis 3 times a week for 4 hours each time and have been for 4 years. I started dialysis with a creatinine…"

Dec 9, 2012

Sue joined Hostess Risé's group

Prograf

If you are currently taking Prograf consider joining this group.See More

Dec 9, 2012

124 Comments 40 Likes

Sue joined Hostess Risé's group

Neoral-Cyclosporine

This is a group for those who are currently taking Cyclosporine.See More

Jul 14, 2012

38 Comments 14 Likes

Sue commented on Cathy's group 'Rapamune Friends'

"I had my liver tx 14 yrs ago this month. I'm on both rapamune, 1 mg daily, and 0.5 of prograf every other day and so far am doing fine ! My tx was done at UNMC and the follow up has been great......every month they call to see how I am doing.…"

Jul 13, 2012

Sue joined Cathy's group

Rapamune Friends

Join us if you are currently taking Rapamune.See More

Jul 13, 2012

40 Comments 4 Likes

Sue commented on Cathy's group 'Liver Transplants'

"I had my liver tx in July of 1998....almost 14 years. My spleen wasn't renmoved but quite often I have that bloated feeling. I occassionaly have the feeling of a very full something at the incision site. Does anyone else have that feeling…"

Apr 15, 2012

Cisco left a comment for Sue

"Happy birthday Sue! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 p.m. CDT. Hope to see you there!"

Apr 11, 2012

David left a comment for Sue

" Happy Birthday Sue ! "

Apr 11, 2012

Sue replied to Teresa's discussion 'Kidney transplant after liver transplant?' in the group Liver Transplants

"I had a liver tx in July of 1998. I take Rapamune and Prograf for my liver. I have been in dialysis for 3 1/2 years now. My creatinine is now down to 5.6 but started out at 10.3 but all of my other labs are normal, the labs are done monthly. I was…"

Mar 13, 2012

Sue commented on Cathy's group 'Liver Transplants'

"I had my liver tx in July of 1998 at the Univ.of NE Med. Center. I got great care from the tx Drs. and the nurses. I had to wait 2 days short of a year, which wasn't at all bad. I was yellow and had few days left. I believe in staying VERY…"

Feb 25, 2012

Sue commented on Cathy's group 'Liver Transplants'

"I had a liver tx in July of 1998. Although I started out on all sorts of things I now, and for the past several years, take only 0.5 of Prograf every other day and 1 mg. of Rapamune daily. I was on prednisone for quite awhile but it was stopped…"

Nov 3, 2011

Hostess Risé left a comment for Sue

"Thank you for sharing your story Sue I am glad that you have us to turn to. Feel better! Write often ok"

Oct 31, 2011

Profile Information

Were you a member of our Forum on http://TransplantBuddies.com ?: No

Where did you hear about Transplant Friends?: from a friend on kidney chats.

Share - which illness lead up to you needing a transplant?: I had ulcerative colitis for 9 yrs, when I had an iliostomy I was told then that I wouldd be needing a liver tx as it already had a secondary infection.

Which Organ(s) did you receive? If you are on the waiting list, please share.: Liver

How many years have you had your Transplant for?: 13

I am Interested in Transplant Friends because...: we all share the same affliction.

Which Transplant Center has or will perform your life saving surgery?: Nebraska Medical Center in Omaha, Nebraska

Share how your transplant experience changed your life?: because of the anti-rejection drugs I take I'm now on kidney dialysis

Share whatever information you want us to know about you: none

Comment Wall (6 comments)

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At 3:54pm on April 11, 2013, Hostess Risé said…: Wishing you a wonderful birthday Sue

At 8:19am on April 11, 2013, David said…: " Happy Birthday Sue ! "

At 11:02am on April 11, 2012, Cisco said…: Happy birthday Sue! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 p.m. CDT. Hope to see you there!

At 5:35am on April 11, 2012, David said…: Happy Birthday Sue !

At 3:20pm on October 31, 2011, Hostess Risé said…: Thank you for sharing your story Sue

I am glad that you have us to turn to. Feel better!

Write often ok

At 8:05pm on October 22, 2011, Hostess Risé said…: Welcome to Transplant Friends! Please tell your friend I said thank you for sending you this way.

Join our groups here. To start with check out

http://www.transplantfriends.com/group/kidneytransplants

Be well and let me know if you have any questions. it takes awhile to learn a new website-be patient.

Be well,

Rise'