"HI sTEVEN, 7-09-2010 WILL BE 3 YRS POST for me. Doing sanfrantastic with the exception of CMV which I'm on and off of frequently. You will be fine as I know a Navy Seal who recieved his transplant due to CF. He is doing awesome !!!!!!!!!!!!!!!!…"
"Hi Steven: i had my bi-lateral tx end of October and waited a year.....also have ab bloodtype and was called in four times, only to be sent home because lungs were not healthy. the fifth time was the charm. My advise is stay…"
"Hi Steven, I'm john I'm 25 and today is actually my 2 month post double lung transplant. It took me 3 yrs to get listed and a bit over 7 months for the call. If you would like to talk more you can Facebook me
"I had an O2 company that had offices through out the country. I had my O2 delivered in Fl, Ga, Tn, Me, Ma, Az, and other states. 6 Mos out my wife and I took an 11,000 Mi trip. Good luck and God bless."
just last month I was listening to the local radio station and heard about a young mother in her mid- Thirtys that was in desperate need of a kiddney transplant, well a week later I saw it on the local…"
"Waiting is to me the hardest part, but in the end it is worth it. Mediation. relaxation therapy, reading, tv, exercise. computer and support groups got me through it. I waited 2 1/2 yrs. for dbl lung tx."
"As far as your O2 goes, I would recommend getting a portable oxygen concentrator for travel and you can also use it at home. Usually your oxygen provider will provide one for you if you are awaiting transplant. Make sure you have enough batteries…"
"hi Hostess Rise your welcome I wish I could tell him to raise money but thats not as easy but the best way I would say is do they have a restruant or his old highschool ask to put up flyers and a donitions lockbox with a hole for people to give and…"
"You could check into angel flight there is 1-800352-4256 I spoke to a Ken Gorden they will sometimes help in this way Iknow its a 800 number but they can set you up with your local I live in florida there a really great bunch of piolet …"
I sure hope you get your new lungs soon. When I had heart failure I also had a 24/7 horrible, awful choking cough. It made me think how awful it must be to live with cystic fibrosis. When I got my heart transplant all that was gone, gone, gone. I hope the same for you.
I wish you WELL and able to enjoy a long healthy life. Holly (old enough to be your grandmother! )