"Sharon.... how did your appt go with the doctor on that Wednesday? I have not seen you back on, and hoping to hear great news. Please let us know the latest as we are all here for you... and praying for good feedback..
Debi "
-
Sharon
- Female
- Dumfries, VA
- United States
- Blog Posts
- Discussions (3)
- Events
- Groups (28)
- Photos (4)
- Photo Albums
- Videos
Sharon's Groups
Sharon's Discussions
Bloody Nose - HELP
Started this discussion. Last reply by Sharon Oct 31, 2011. 4 Replies 0 Likes
Hi all any pre or post lung transplanters have to deal with bloody noses. I am on constant O2, 6 liters at rest 7 - 8 when doing stuff, and I have been fighting a sinus cold / infection for a…Continue
Sharon's Page
Latest Activity
DebbieK replied to Sharon's discussion 'Rough times over here.' in the group How was your day today?"I had all those same problems before my dbl lung transplant last May. Hang in there because it is going to get a lot better. If you have not been to rehab you definitely want to do so. I started on the treadmill(pretransplant) at .05 mph for 5 min…"
T. Sepulveda replied to Sharon's discussion 'Rough times over here.' in the group How was your day today?"Reading this is like, looking at my daughter. She goes through the very samething. She doesn't get out much due to the germ factor and even less now because she has gotten worse in the past few months. The good thing about her…"
T. Sepulveda replied to Sharon's discussion 'Ups and downs!!!!!!!!!!!!!!!!!' in the group How was your day today?"sharon, my daughter has faught so hard and has lasted 2 yrs longer than expected. In 09 she was given six months to live, and she's still here. I've watched her fight so hard , I yelled, screamed, wrote letters, but most of all prayed from…"
Rachel replied to Sharon's discussion 'Ups and downs!!!!!!!!!!!!!!!!!' in the group How was your day today?"Don't give up Sharon, not yet. Hang in there. I will say prayers for you.
lots of hugs. think positive. keep going, you can do this.
rachel"
Sharon added a discussion to the group How was your day today?
Ups and downs!!!!!!!!!!!!!!!!!
Whated to say thank you for the Birthday well wishes, my sister's who live in WVA and TX surprised me with a birthday party with some of my church friends, family friends and a co-worker and the Biggest Surpise was my sister from TX, I haven't seen her in a couple of years - it was amazing.My health on the other hand is getting worse, it doesn't take much for me to become winded (just standing for 3 - 4 min. can do it). My doctor got all the lab work, letters of rec. and CD's sent off to Duke…See More
Cisco left a comment for Sharon"Happy birthday Sharon! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 p.m. CDT. Hope to see you there!"
Rachel replied to Sharon's discussion 'Finally some good news!' in the group How was your day today?"Good News! I'm happy for you.
Rachel"
"Awesome NEWS! I am so HAPPY for you!! I can hear you are dancing with your emotions right now."
Sharon added a discussion to the group How was your day today?Finally some good news!
Up Date 3/9/12 Well Dr. Priebat called us tonight and he said "YOU HAVE NO CANCER ANY WHERE!!", he said he is willing to write a letter stating the fact that the chances of the cancer I had on my finger recurring are very very slim. He is also willing to put his name and reputation on the line and state that I should be considered for a Lung Transplant! PRAISE THE LORD AND PRAISE EACH AND EVERYONE OF YOU FOR ALL YOUR PRAYERS!!!!! Thank you just doesn't even touch how much I love and am…See More
TerriO replied to Sharon's discussion 'Rough times over here.' in the group How was your day today?"Sharon, I am fairly new to TF and don't know you personally, but I just want to say "Keep up the Good Work" and fight like heck! I am inspired by your tenacity and your courage! Keep the Faith! :)"
Profile Information
- Are you a member of http://TransplantBuddies.com ?
- Yes
- Where did you hear about Transplant Friends?
- Share why you had to have a transplant.
- My name is Sharon and I am fighting Fibrosis of the Lungs. I had a Sarcoma form of Cancer 40 years ago in my pelvis and by time they figured out what it was it spread to my lungs, I am alive today thanks to our Lord and Many great People at Walter Reed Army Medical Center. I am now fighting for my life due to the damages caused by the Cancer, Chemo and Radiation, and I need your help. I was on the Transplant List a month ago, but Satin decided to test me and gave me another Sarcoma on the tip if my finger. All the doctors are amazed, they say that it is very rare for 1 person to get 2 different forms of Sarcoma in a life time; they say it “might” be genetic. The Head of the Transplant team also said that I have cancer in my body, it might just be a cell or two, but it is there and he is taking me off the List. Why you ask, well he says that if I have the transplant and they put me on the Immunosuppressant drugs this cancer cell that might be there will spread like fire. Well my Oncology doctor and the Pathologists say that the cancer I had in my finger are gone with my finger and they gave me good prognosis, they said no need for Chemo or Radiation. My Oncologist said that I would do fine on the Immunosuppressant drugs, but the transplant doctor says it is not true – he says he knows best and he know what will happen and he doesn’t care what other doctors have to say. He said that in 2 or more years he will reassess my case. So I am left with the scare that I may not have 2 or more years with my lungs, in fact a year ago this same transplant doctor told my husband and me that odds of me being around in 2 years are more likely with a transplant than without. I am going to go to other Transplant Hospitals and see if I can get help, but most importantly I am going to FIGHT and I am going to call out to Our Lord for help to guide me and keep me strong. I thank each and every one of you for reading this and praying on this.
God Bless <>br/> Sharon
- I am Interested in Transplant Friends because...
- I need friends that are going through the same thing I am going through.
Sharon's Photos
Comment Wall (14 comments)
- At 8:39am on March 30, 2012, Cisco said…
Happy birthday Sharon! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 p.m. CDT. Hope to see you there!
- At 6:36am on March 30, 2012,
David said… Happy Birthday Sharon !
- At 2:04pm on January 6, 2012,
JoAnne said… hey sharon, just thinkin of you,hope u had good holidays, soo i was told iam not ready to be listed yet in dec, i have to go back for another pft test with 6 min walk in feb,now itll run ever 3 months, how are u making out,hope its all for the best :)joanne.
- At 11:06pm on November 29, 2011, JoAnne said…
ohh thats so good, iam glad you got to speak with her, iam goin thursday to see the colon dr then next thursday i see the surgons and do the bone scan, then im completly done with my testing, i was just on preds for about alil more then a wk now 2 days off and iam stuggling all over again, well, enjoy ur company and try not to over do it, talk to u soon. & feel good.
- At 4:29pm on November 28, 2011, JoAnne said…
hello sharon. stopping in to say hello and see if you ever got hold of my friend there on f/b. hope she was able to help u.hope u are feeling good these days.
- At 3:01pm on November 22, 2011, JoAnne said…
hello sharon,iam waiting for a lung or lungs not sure yet, both my lungs are done due to 40 yrs worth of smoking, stage 4 copd with end emphysema, i dont no tho how my one lung will hold up if anything goes wrong with the new one as i hear alot of talk on rejection. iam meeting with the surgen early dec, have 2 more test to go b4 iam completly done. i just read ur story, I was told also any form of cancer ur off the list, i think b/c 1you wont do good. rejection alone can kill u. so why not get another opinion. im like you, both lungs are bad,im in good shape and im waiting. sometimes i do feel like iam waiting to long and iam not even there yet haha but i can see how iam goin down the tube and fast.and iam exerciseing too, my theroy is, stay positive,laugh as much as you can,and we have better chance at surviving,, best medicine in the world.:)) well, i wish you all the best. are u on f/b thereis a lady who runs a page there for transplants,joanne, shes been there done it all, and i highly respect her for her courage,her strength & for just being there for everyone, she seems to know so much about transplants and she fibrosis too,she also wrote a few books and shes reli a wonderful lady. mayb it would be good if u talk to her,inless ur already there lmao let me and if u want ill tell u how to get in there,ok.. hang in there,better days are coming.:))
- At 1:40pm on October 28, 2011,
Hostess Rise' said…
Hi Sharon,
Thank you for joining us on the group share connections. It means a lot to me that others are joining this group. :)
If you have any questions, please ask. Wishing you well always, Rise'
- At 6:53pm on October 20, 2011,
Jim said… Duke University Hospital
Durham, NC
Average wait for lungs is 14 to 19 days once approved for being listed
- At 6:52pm on October 20, 2011, Jim said…
Duke University Hospital
Durham, NC 27718
- At 3:19pm on October 19, 2011, Jim said…
- Sharon, have you checked Duke University Hospital out for possible transplant. They gave me my lungs and seem to be more risk taker than other hospitals. Hope and pray that that works for you.
Thank You
Click & Find
Groups
Blog Posts
SSD
Posted by Christine Hilton on May 15, 2012 at 12:15am 2 Comments 1 Like
HELP!!!! I will be losing my insurance!!
Posted by Kristy on April 28, 2012 at 6:25pm 2 Comments 0 Likes
Side effects
Posted by Susan on April 27, 2012 at 9:35pm 3 Comments 3 Likes
Birthdays
Birthdays Today
Birthdays Tomorrow
© 2012 Created by Hostess Rise'.
