Rosemary's Friends

  • jtracy
  • Rachel
  • Lola
  • Lynn
  • cthelite
  • Sally
  • Jim
  • Hostess Risé

Rosemary's Discussions

Bilateral Lung transplant problems?

Started this discussion. Last reply by mari May 8, 2013. 13 Replies

   I had a double Lung Transplant 4 1/2 months ago.  I've only been home for ten days. I feel great for the most part except for two problems I'm not sure how to handle, and am wondering if anyone…Continue

 

Rosemary's Page

Latest Activity

Rosemary and jtracy are now friends
Apr 10
Rosemary replied to jtracy's discussion 'lung transplant'
"    I hope you've had your transplant by now.  But if you haven't, don't get discouraged.  I waited 3 yrs./9 mos. for my double lung transplant which took place 10/24/12.  I wish it hadn't been such a…"
Apr 10
Rosemary liked Andy's blog post One Year Ago - Part 72 (Lung Transplant)
Feb 25
Rosemary commented on Andy's blog post 'One Year Ago - Part 72 (Lung Transplant)'
"I had bilateral lung transplant 10/24/12.  Four days after the transplant my new left lung collapsed.  I was unaware of anything for 6 days.  Spent 7 weeks in intensive care, had to learn to walk again.  I't's been a…"
Feb 25
Rosemary replied to Judith's discussion 'NO Green Tea, Herbal Teas or Pomegranate' in the group Transplant No-No's
"I had a double lung transplant 10/24/12, I was told to stay away from grapefruit, and pomagranate.  Which I have, and I feel great.  Haven't had any problems, but nobody ever told me to stay away from green tea, which I drink all the…"
Feb 18
Rosemary posted a status
"Merry Christmas to everyone. I have to change the photo of me. I don't look like that anymore. ."
Dec 25, 2013
David left a comment for Rosemary
"  Rosemary  Have a Happy Birthday and a Very Merry Christmas !! "
Dec 25, 2013
Rosemary liked Gregg's discussion The Adversity of life post Transplant
Aug 20, 2013
Rosemary replied to Hostess Risé's discussion 'America's Got Talent' in the group Movies and TV Shows
"I love this show too.  When will Tv get the message.  With it's high ratings each year why not bring back the variety show?  One with an emcee like Nick Gannon, or if you remember Ed Sullivan. I put my vote in for that kind of…"
Aug 7, 2013
Rosemary replied to Hostess Risé's discussion 'America's Got Talent' in the group Movies and TV Shows
"I liked him too.  I also liked the girl on the Unicycle, balancing the bowls on one leg, then flipping on top of her head. Incredible. Looks like the Asians have the talent so far.  "
Jun 21, 2013
mari replied to Rosemary's discussion 'Bilateral Lung transplant problems?'
"hello pas Yes i had a double lung transplant. i would be lying if i didnt say it was the hardest thing i ever been through in my life. i alson had a heart trx at the same time so my recovery took longer but once i got stronger and began to feel…"
May 8, 2013
pas replied to Rosemary's discussion 'Bilateral Lung transplant problems?'
"I noticed you had a dbl lung transplant 1 year ago. I have started to look into a transplant again as encouraged by my Doctor. I wanted to do more research as when I researched this issue before I found it bleak in prosepects on success stores. I am…"
May 7, 2013
pas replied to Rosemary's discussion 'Bilateral Lung transplant problems?'
"I noticed your lung transplant in 2012. I am venturing to speak to Doctors about a lung transplant. How was your experience? Thanks PAS"
May 7, 2013
pas replied to Rosemary's discussion 'Bilateral Lung transplant problems?'
"I noticed you had a lung transplant 4 years ago. I am looking into a lung transplant. Tell me about your experience. Four Years that gives me hope! Thanks PAS"
May 7, 2013
Rosemary commented on Hostess Risé's group 'Blood Pressure Monitoring'
"I just took my BP again.  I remembered my Dr. saying if BP gets low, take it again in a few minutes, it could be totally different.  This time was better, 122/42.   Thanks."
Apr 29, 2013
Rosemary commented on Hostess Risé's group 'Blood Pressure Monitoring'
"   I've been searching on the internet for info on low blood pressure, but no luck yet. This morning it was 112/45.  Anybody know if that's a concern, how low can it go before I should call my Dr.  I'd hate to…"
Apr 29, 2013

Profile Information

Were you a member of our Forum on http://TransplantBuddies.com ?
Yes
Where did you hear about Transplant Friends?
email
Are You Male or Female?
Female
Share - which illness led up to you needing a transplant?
COPD
Drugs, vitamins, favorite foods
Singulair, Advair, Trazadone, oxygen 3.5, bipap, Spirivera,
I am Interested in Transplant Friends because...
I've been waiting 33 months for my transplant. I'd like to know if other lung transplants have waited this long, and what their experiences were while they waited. Mainly, I would like to trade experiences with others who are waiting too. I've been on oxygen 24/7 for 13 yrs.
Which Transplant Center has or will perform your life saving surgery?
Mayo Clinic in Jacksonville Fl.

Comment Wall (9 comments)

You need to be a member of TransplantFriends.com to add comments!

Join TransplantFriends.com

At 8:32am on December 25, 2013, David said…

  Rosemary  Have a Happy Birthday and a Very Merry Christmas !! 

At 6:48pm on February 6, 2013, Sally said…

Hi Rosemary,

Congratulations on your transplant! I'm sorry to hear about the lung colapse, but happy to hear that you are doing so well now.  I, too, think highly of the staff at Mayo, and, of course, have my favorites. Do you go to the support group meetings on Tuesdays?  When I come up to Jax for appts there at Mayo I try to make the meetings, because I'm always learning something new, and I enjoy seeing my old friends and keeping in touch. Perhaps I'll see you there when I come up next time? I hope to be able to go on the 26th of this month.  I'm doing very well with my lung function, but still seem tired and fatigued alot of the time. We're still working on that....

Once again, soooo nice to hear from you and happy that you're doing well.

Sally

At 10:13am on December 25, 2012, Cisco said…

Happy birthday Rosemary! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 pm central time. Hope to see you there! Merry Christmas!!

At 7:28am on December 25, 2012, David said…

 Happy Happy Birthday and A Very Merry Christmas to you ! 

At 2:02am on December 25, 2012, Duane Kellar said…

Merry X-Mas.  Happy Birthday to u. Prayers and Wishes to u and r's

At 12:13pm on December 25, 2011, Hostess Risé said…

Happy Birthday Rosemary! Wishing you well, Rise'

At 8:26am on December 25, 2011, David said…

Happy Birthday Rosemary !  and a very merry christmas !!

At 6:44pm on October 25, 2011, Rachel said…

Hello, Rosemary

I'm new to this site also and still trying to get the hang of it.   Have you consider being listed to more than one place?  I asked you because I was told the same thing on Mar 2010.  I was stable and functional but in April 2010 I landed in the hospital for about one month.  I was sedated for a couple of weeks and the pulm. dr's. came to see me and ask my family what happen I was just in the clinic and was doing okay.  I was told I had to get strong before I would be reevaluated, it took one year.  I was seen again in Mar 2011 went thru the tests and listed in April 2011.  I received my double lungs in May 4, 2011.  I was asked if I wanted to be listed in more than one place.  

At 4:18pm on October 10, 2011, Hostess Risé said…

Hi Rosemary

 

Welcome to Transplant Friends! 

 

I suggest you join our lung transplant group. Perhaps you can gain some insights from the questions you have.  What have your doctors said about  your wait. 

 If you have any questions regarding this website you can send me a message and I will be able to answer you.

 

I wish you well,

Rise' 

 

 

 
 
 

© 2014   Created by Hostess Risé.

Badges  |  Report an Issue  |  Terms of Service