I had a double Lung Transplant 4 1/2 months ago. I've only been home for ten days. I feel great for the most part except for two problems I'm not sure how to handle, and am wondering if anyone…Continue
Yes i had a double lung transplant. i would be lying if i didnt say it was the hardest thing i ever been through in my life. i alson had a heart trx at the same time so my recovery took longer but once i got stronger and began to feel…"
"I noticed you had a dbl lung transplant 1 year ago. I have started to look into a transplant again as encouraged by my Doctor. I wanted to do more research as when I researched this issue before I found it bleak in prosepects on success stores. I am…"
" I've been searching on the internet for info on low blood pressure, but no luck yet. This morning it was 112/45. Anybody know if that's a concern, how low can it go before I should call my Dr. I'd hate to…"
"Thanks for the encouragement Doug. I wish I had your weight problem. I've already gained all my weight back, and I'm only taking 10 mg of prednisone. My ankles are better than before, but still swollen. I'm…"
I had my Dbl Lung tx 1 year ago and I had some swelling in both of my ankles and calves. The meds were causing it as I recall. I tried to lower my salt intake and wore compression sox (up to my knees) at times to help out. Keep your legs…"
"Im recieved double lungs in july of 2012 and i still have coughing fits so bad that i vomit. I think that are throat muscles are weeak bc of the type of surgery we had. give it some time it will get better. mine has."
"I do remember now wearing compression socks in the hospital after tx. Then when I left the hospital,I was told to exercise as often as I could which helped alot. You are probably taking lasix and that is why they are giving you potassium. I would…"
"Just wanted to thank you all for responding to my question. I took your advice and talked to my Dr. Some tests were done, and the diagnosis was that I'm retaining water in my feet. Seems that 6 of my 15 different meds I take…"
I do remember some foot swelling but it went down after a week or so. I do not recall exact details but I believe swelling is a big part of post transplant recovery. Some people have alot of swelling while others do not.
"I agree that I would ask your doc about the swelling again. I started having swelling in my feet and ankles (also started more in my right than left) when they changed one of my medications. I had mentioned it to the doc, but it wasn't severe…"
First, get that foot checked right away and don't wait..that can be corrected
Second, I'm about a year out from bilateral, and I get a 'coughing fit" sometimes, where I almost gag--it is totally related to the…"
I've been waiting 33 months for my transplant. I'd like to know if other lung transplants have waited this long, and what their experiences were while they waited. Mainly, I would like to trade experiences with others who are waiting too. I've been on oxygen 24/7 for 13 yrs.
Which Transplant Center has or will perform your life saving surgery?
Mayo Clinic in Jacksonville Fl.
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Congratulations on your transplant! I'm sorry to hear about the lung colapse, but happy to hear that you are doing so well now. I, too, think highly of the staff at Mayo, and, of course, have my favorites. Do you go to the support group meetings on Tuesdays? When I come up to Jax for appts there at Mayo I try to make the meetings, because I'm always learning something new, and I enjoy seeing my old friends and keeping in touch. Perhaps I'll see you there when I come up next time? I hope to be able to go on the 26th of this month. I'm doing very well with my lung function, but still seem tired and fatigued alot of the time. We're still working on that....
Once again, soooo nice to hear from you and happy that you're doing well.
I'm new to this site also and still trying to get the hang of it. Have you consider being listed to more than one place? I asked you because I was told the same thing on Mar 2010. I was stable and functional but in April 2010 I landed in the hospital for about one month. I was sedated for a couple of weeks and the pulm. dr's. came to see me and ask my family what happen I was just in the clinic and was doing okay. I was told I had to get strong before I would be reevaluated, it took one year. I was seen again in Mar 2011 went thru the tests and listed in April 2011. I received my double lungs in May 4, 2011. I was asked if I wanted to be listed in more than one place.