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Blood Pressure Monitoring

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Rosemary's Discussions

Bilateral Lung transplant problems?

Started this discussion. Last reply by mari May 8. 13 Replies 0 Likes

I had a double Lung Transplant 4 1/2 months ago. I've only been home for ten days. I feel great for the most part except for two problems I'm not sure how to handle, and am wondering if anyone…Continue

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mari replied to Rosemary's discussion 'Bilateral Lung transplant problems?'

"hello pas Yes i had a double lung transplant. i would be lying if i didnt say it was the hardest thing i ever been through in my life. i alson had a heart trx at the same time so my recovery took longer but once i got stronger and began to feel…"

May 8

pas replied to Rosemary's discussion 'Bilateral Lung transplant problems?'

"I noticed you had a dbl lung transplant 1 year ago. I have started to look into a transplant again as encouraged by my Doctor. I wanted to do more research as when I researched this issue before I found it bleak in prosepects on success stores. I am…"

May 7

pas replied to Rosemary's discussion 'Bilateral Lung transplant problems?'

"I noticed your lung transplant in 2012. I am venturing to speak to Doctors about a lung transplant. How was your experience? Thanks PAS"

May 7

pas replied to Rosemary's discussion 'Bilateral Lung transplant problems?'

"I noticed you had a lung transplant 4 years ago. I am looking into a lung transplant. Tell me about your experience. Four Years that gives me hope! Thanks PAS"

May 7

Rosemary commented on Hostess Risé's group 'Blood Pressure Monitoring'

"I just took my BP again. I remembered my Dr. saying if BP gets low, take it again in a few minutes, it could be totally different. This time was better, 122/42. Thanks."

Apr 29

Rosemary commented on Hostess Risé's group 'Blood Pressure Monitoring'

" I've been searching on the internet for info on low blood pressure, but no luck yet. This morning it was 112/45. Anybody know if that's a concern, how low can it go before I should call my Dr. I'd hate to…"

Apr 29

Rosemary joined Hostess Risé's group

Blood Pressure Monitoring

We all need to know our Blood Pressure numbers and the importance of healthy blood pressure maintenance.See More

Apr 29

7 Comments 1 Like

Rosemary replied to Rosemary's discussion 'Bilateral Lung transplant problems?'

"Thanks for the encouragement Doug. I wish I had your weight problem. I've already gained all my weight back, and I'm only taking 10 mg of prednisone. My ankles are better than before, but still swollen. I'm…"

Apr 29

Doug replied to Rosemary's discussion 'Bilateral Lung transplant problems?'

"Hi Rosemary I had my Dbl Lung tx 1 year ago and I had some swelling in both of my ankles and calves. The meds were causing it as I recall. I tried to lower my salt intake and wore compression sox (up to my knees) at times to help out. Keep your legs…"

Apr 29

mari replied to Rosemary's discussion 'Bilateral Lung transplant problems?'

"Im recieved double lungs in july of 2012 and i still have coughing fits so bad that i vomit. I think that are throat muscles are weeak bc of the type of surgery we had. give it some time it will get better. mine has."

Apr 26

Hostess Risé replied to Rosemary's discussion 'Bilateral Lung transplant problems?'

"I do remember now wearing compression socks in the hospital after tx. Then when I left the hospital,I was told to exercise as often as I could which helped alot. You are probably taking lasix and that is why they are giving you potassium. I would…"

Mar 31

Rosemary replied to Rosemary's discussion 'Bilateral Lung transplant problems?'

"Just wanted to thank you all for responding to my question. I took your advice and talked to my Dr. Some tests were done, and the diagnosis was that I'm retaining water in my feet. Seems that 6 of my 15 different meds I take…"

Mar 31

Jean replied to Rosemary's discussion 'Bilateral Lung transplant problems?'

"Hi , I had double lung transplant 4 years ago ,no I didn't have that problem. Talk to the transplant team they will help you. Stay strong"

Mar 31

Hostess Risé replied to Rosemary's discussion 'Bilateral Lung transplant problems?'

"Hi Rosemary I do remember some foot swelling but it went down after a week or so. I do not recall exact details but I believe swelling is a big part of post transplant recovery. Some people have alot of swelling while others do not. About room…"

Mar 30

Coltsy replied to Rosemary's discussion 'Bilateral Lung transplant problems?'

"I agree that I would ask your doc about the swelling again. I started having swelling in my feet and ankles (also started more in my right than left) when they changed one of my medications. I had mentioned it to the doc, but it wasn't severe…"

Mar 30

Bill replied to Rosemary's discussion 'Bilateral Lung transplant problems?'

"Rosemary, First, get that foot checked right away and don't wait..that can be corrected Second, I'm about a year out from bilateral, and I get a 'coughing fit" sometimes, where I almost gag--it is totally related to the…"

Mar 12

Profile Information

Were you a member of our Forum on http://TransplantBuddies.com ?: Yes

Where did you hear about Transplant Friends?: email

Are You Male or Female?: Female

Share - which illness lead up to you needing a transplant?: COPD

Drugs, vitamins, favorite foods: Singulair, Advair, Trazadone, oxygen 3.5, bipap, Spirivera,

I am Interested in Transplant Friends because...: I've been waiting 33 months for my transplant. I'd like to know if other lung transplants have waited this long, and what their experiences were while they waited. Mainly, I would like to trade experiences with others who are waiting too. I've been on oxygen 24/7 for 13 yrs.

Which Transplant Center has or will perform your life saving surgery?: Mayo Clinic in Jacksonville Fl.

Comment Wall (8 comments)

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At 6:48pm on February 6, 2013, Sally said…: Hi Rosemary,

Congratulations on your transplant! I'm sorry to hear about the lung colapse, but happy to hear that you are doing so well now. I, too, think highly of the staff at Mayo, and, of course, have my favorites. Do you go to the support group meetings on Tuesdays? When I come up to Jax for appts there at Mayo I try to make the meetings, because I'm always learning something new, and I enjoy seeing my old friends and keeping in touch. Perhaps I'll see you there when I come up next time? I hope to be able to go on the 26th of this month. I'm doing very well with my lung function, but still seem tired and fatigued alot of the time. We're still working on that....

Once again, soooo nice to hear from you and happy that you're doing well.

Sally

At 10:13am on December 25, 2012, Cisco said…: Happy birthday Rosemary! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 pm central time. Hope to see you there! Merry Christmas!!

At 7:28am on December 25, 2012, David said…: Happy Happy Birthday and A Very Merry Christmas to you !

At 2:02am on December 25, 2012, Duane Kellar said…: Merry X-Mas. Happy Birthday to u. Prayers and Wishes to u and r's

At 12:13pm on December 25, 2011, Hostess Risé said…: Happy Birthday Rosemary! Wishing you well, Rise'

At 8:26am on December 25, 2011, David said…: Happy Birthday Rosemary ! and a very merry christmas !!

At 6:44pm on October 25, 2011, Rachel said…: Hello, Rosemary

I'm new to this site also and still trying to get the hang of it. Have you consider being listed to more than one place? I asked you because I was told the same thing on Mar 2010. I was stable and functional but in April 2010 I landed in the hospital for about one month. I was sedated for a couple of weeks and the pulm. dr's. came to see me and ask my family what happen I was just in the clinic and was doing okay. I was told I had to get strong before I would be reevaluated, it took one year. I was seen again in Mar 2011 went thru the tests and listed in April 2011. I received my double lungs in May 4, 2011. I was asked if I wanted to be listed in more than one place.

At 4:18pm on October 10, 2011, Hostess Risé said…: Hi Rosemary

Welcome to Transplant Friends!

I suggest you join our lung transplant group. Perhaps you can gain some insights from the questions you have. What have your doctors said about your wait.

If you have any questions regarding this website you can send me a message and I will be able to answer you.

I wish you well,

Rise'