I would call one of the transplant coordinators and ask them how to go about this. There are privacy policies and what probably will happen is they will tell you to write a letter and send it to the organ procurement office in your area…"
Which Transplant Center has or will perform your life saving surgery?
2nd Transplant-Jackson Memorial Hospital, Miami Florida
Share how your transplant experience changed your life?
I was born with Cystic Fibrosis and at the age of 36 I received my first double lung transplant. I had a very successful transplant at Loyola Medical Center in Illinois. After eight years I needed another double lung transplant. Two years later I received my second double lung transplant at Jackson Memorial Hospital in Florida. Throughout my transplant life, I have been promoting organ donation through talking to groups and through my online websites Transplantbuddies and Transplant Friends. ~Thank you for joining us~Rise'
Share whatever information you want us to know about you
Thank you Rise'! I was on prograf for over 7 years and about 6 months ago switched to Zortress (evorlimus). They switched me to see if it was causing my headaches (it wasn't) but my Transplant Neph. told me Zortress is less toxic to the kidney, and now my kidney function is better (my creatine went from 1.6 to 0.9). I am on the study for Zortress. It will be interesting to see how Zortress works out. What a great idea for a group who are taking Zortress.