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Raley's Discussions

Inhaled tacrolimus

Started Jan 24, 2013 0 Replies

I know this is being tested. Has anyone used it, and so how are you doing?

Inhaled Prograf

Started this discussion. Last reply by Hostess Risé Jan 5, 2013. 1 Reply

Has anybody heard a progress report?

 

Raley's Page

Latest Activity

Raley liked jtracy's blog post waiting time for lungs
Dec 24, 2013
Raley commented on jtracy's blog post 'waiting time for lungs'
"I have pulmonary fibrosis. I made the list in October, 2007, and received my "new" right lung on Jan 14, 2008. Good luck! Raley"
Dec 24, 2013
Raley replied to Jay Lackritz's discussion '5 Year Survival' in the group Lung(s) Transplants
"Hi Donna, What was it Mark Twain said? There are lies, damn lies and statistics. Five years is just a number. So are ten and twenty. Think twenty!! Raley Single lung 5-1/2 years out"
Oct 11, 2013
Doug commented on Raley's blog post 'To Sarah regarding pulmonary fibrosis'
"Hi all I had a similar experience with PF. My PF came on in 48 hours. Walked 3 miles on a Wednesday in February 2012 and was in the hospital on Friday in the ER on O2. Dbl lung tax march 3, 2012, Methodist hospital, Houston. Doing great! No known…"
Oct 6, 2013
Raley posted a blog post

To Sarah regarding pulmonary fibrosis

Hi Sarah,With absolutely no advanced warning or symptoms, I was diagnosed with IPF in 2007.9 In three months, I went from leading a perfectly normali life to being on oxygen 24/7. Nine months later I received a right lung transplant at the University of Washington Medical Center. I support your efforts to put pulmonary fibrosis in the public eye. Like most people, I had never heard of pulmonary fibrosis before my diagnosis. No family history, no career in toxic industry, no nothing. Thirty…See More
Sep 30, 2013
David left a comment for Raley
" Happy Birthday Raley ! "
Jun 19, 2013
Raley replied to Armand's discussion 'Bactrim/Septra (lung transplant)'
"I have my bloodwork evaluated every six weeks, for the basic CBC and liver function stuff, and tacrolimus levels. Then, before my annual testing, pulmonary function & chest X-ray, I have a complete "kitchen sink" type of blood test."
Apr 12, 2013
joanne liked Raley's profile
Mar 30, 2013
joanne liked Raley's profile
Mar 30, 2013
joanne liked Raley's profile
Mar 30, 2013
Raley replied to Armand's discussion 'Bactrim/Septra (lung transplant)'
"I'm a single lung transplant who is 5-1/2 years out, and I take low dose Bactrim daily. I expect to continue doing so indefinitely. I assume it prevents some bacterial infections?"
Mar 30, 2013
Raley added a discussion to the group Prograf
Thumbnail

Inhaled prograf

Anyone know how the research is coming?
Jan 27, 2013
Raley posted a discussion

Inhaled tacrolimus

I know this is being tested. Has anyone used it, and so how are you doing?
Jan 24, 2013
Hostess Risé replied to Raley's discussion 'Inhaled Prograf'
"No yet? I never knew they were coming out with an inhalation treatment. I know they have one for Cyclo. Thanks for sharing."
Jan 5, 2013
Raley posted a discussion

Inhaled Prograf

Has anybody heard a progress report?
Jan 5, 2013
Raley replied to Jay Lackritz's discussion '5 Year Survival' in the group Lung(s) Transplants
"Hi Jay, I too will be 5 years out next month. Don't dwell on statistics! Be thankful, and live each day. You've been given a wonderful gift. Take a deep breath and savor it."
Dec 10, 2012

Profile Information

Were you a member of our Forum on http://TransplantBuddies.com ?
No
Where did you hear about Transplant Friends?
Email invitation at my old internet (webtv) address. New address: raleyp2003@yahoo.com
Are You Male or Female?
Male
Share - which illness led up to you needing a transplant?
Diagnosed with IPF on 4/2007.
Which Organ(s) did you receive? If you are on the waiting list, please share.
Right lung transplant at U of Washington Med Center on Jan 14,2008.
Drugs, vitamins, favorite foods
Prograf, Myfortic, prednisone, smt, acyclovir
How many years have you had your Transplant for?
4-1/2
I am Interested in Transplant Friends because...
Happy to help others in any way that I can. Delighted to learn you exist!
Which Transplant Center has or will perform your life saving surgery?
UWMC
Share how your transplant experience changed your life?
Within a month of my IPF diagnosis, I went from being a completely normal 68year old to living with oxygen 24/7. Like falling off a cliff!. Now, I'm back to normal!!
Share your interests and hobbies
Happy retiree, who loves his three granddaughters, golf and puttering.

Raley's Blog

To Sarah regarding pulmonary fibrosis

Posted on September 30, 2013 at 4:52pm 1 Comment

Hi Sarah,



With absolutely no advanced warning or symptoms, I was diagnosed with IPF in 2007.9 In three months, I went from leading a perfectly normali life to being on oxygen 24/7. Nine months later I received a right lung transplant at the University of Washington Medical Center. I support your efforts to put pulmonary fibrosis in the public eye. Like most people, I had never heard of pulmonary fibrosis before my diagnosis. No family history, no career in toxic industry, no nothing.… Continue

Comment Wall (4 comments)

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At 6:30am on June 19, 2013, David said…

 Happy Birthday Raley ! 

At 8:25am on June 19, 2012, Cisco said…

Happy birthday Raley! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 pm CDT. Hope to see you there!

At 6:05am on June 19, 2012, David said…

 Happy Birthday Raley ! 

At 8:04am on June 4, 2012, David said…

 Greetings Raley ! Welcome Aboard ! 

 
 
 

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