"I have my bloodwork evaluated every six weeks, for the basic CBC and liver function stuff, and tacrolimus levels. Then, before my annual testing, pulmonary function & chest X-ray, I have a complete "kitchen sink" type of blood test."
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Raley
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Raley's Discussions
Inhaled tacrolimus
Started Jan 24 0 Replies 0 Likes
I know this is being tested. Has anyone used it, and so how are you doing?
Inhaled Prograf
Started this discussion. Last reply by Hostess Risé Jan 5. 1 Reply 0 Likes
Has anybody heard a progress report?
Raley's Page
Latest Activity
Raley replied to Armand's discussion 'Bactrim/Septra (lung transplant)'"I'm a single lung transplant who is 5-1/2 years out, and I take low dose Bactrim daily. I expect to continue doing so indefinitely. I assume it prevents some bacterial infections?"
Raley posted a discussionInhaled tacrolimus
I know this is being tested. Has anyone used it, and so how are you doing?
Hostess Risé replied to Raley's discussion 'Inhaled Prograf'"No yet? I never knew they were coming out with an inhalation treatment. I know they have one for Cyclo.
Thanks for sharing."
Raley replied to Jay Lackritz's discussion '5 Year Survival' in the group Lung(s) Transplants"Hi Jay, I too will be 5 years out next month. Don't dwell on statistics! Be thankful, and live each day. You've been given a wonderful gift. Take a deep breath and savor it."
Raley joined Bill's group
Lung(s) Transplants
For those who have received one or both lungs. Site is open to anyone who have received a lung(s) along with another organ. Caregivers are also invited. We ask that you share your experiences and be as positive as possible in your comments.See More
Raley replied to Cathy's discussion 'In Memory Of Organ And Tissue Donors' in the group In Memory Of Our Organ Donors"Anybody know the answer to these questions? A. Can a transplant patient donate blood? B. Can a transplant patient become an organ donor? Thanks."
Raley joined Cathy's group
In Memory Of Our Organ Donors
Blessings to our Organ Donors and their loving Families Because of you, we can all make the world a better place.See More
Raley commented on Hostess Risé's group 'Prograf'"Debfay, your new lungs will always be deemed "foreign invaders" by your immune system. Plan on being on Prograf indefinitely. I'm a single lung transplant 4-1/2 years out, and I'm on 1.5 mg
Prograf, which has little side effects.…"
Profile Information
- Were you a member of our Forum on http://TransplantBuddies.com ?
- No
- Where did you hear about Transplant Friends?
- Email invitation at my old internet (webtv) address. New address: raleyp2003@yahoo.com
- Are You Male or Female?
- Male
- Share - which illness lead up to you needing a transplant?
- Diagnosed with IPF on 4/2007.
- Which Organ(s) did you receive? If you are on the waiting list, please share.
- Right lung transplant at U of Washington Med Center on Jan 14,2008.
- Drugs, vitamins, favorite foods
- Prograf, Myfortic, prednisone, smt, acyclovir
- How many years have you had your Transplant for?
- 4-1/2
- I am Interested in Transplant Friends because...
- Happy to help others in any way that I can. Delighted to learn you exist!
- Which Transplant Center has or will perform your life saving surgery?
- UWMC
- Share how your transplant experience changed your life?
- Within a month of my IPF diagnosis, I went from being a completely normal 68year old to living with oxygen 24/7. Like falling off a cliff!. Now, I'm back to normal!!
- Share your interests and hobbies
- Happy retiree, who loves his three granddaughters, golf and puttering.
Comment Wall (3 comments)
- At 8:25am on June 19, 2012,
Cisco said… Happy birthday Raley! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 pm CDT. Hope to see you there!
- At 6:05am on June 19, 2012,
David said… Happy Birthday Raley !
- At 8:04am on June 4, 2012, David said…
Greetings Raley ! Welcome Aboard !
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Prednisone- Coming off of
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My Blog (Post Heart/Double Lung Transplant & Mother )
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Hero of Hope Megan Mobley
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Poem he sent me.
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Michelle's Heart walk 2013
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Hostess Risé Blesses Us
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If you need a Friend :D
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A Tribute in Memory of Brandon
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Is Charity obscene?
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Connecting
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Overcoming Our Point Zero
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I can't breathe ...
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