"patient assistance has helped me alot!!!!!! Every thankful to them. I have medicare (schedule d) for scripts and still I couldn't afford to pay for my prograf, mepron, nexium, and valcyte. I was approved for all four of these…"
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cough
Started this discussion. Last reply by Rachel Oct 28, 2011. 2 Replies 0 Likes
Hello everyone! My name is Rachel from San Antonio. I had my double lung tx on May 4, 2011. I had a slow start. I was intubated first two weeks and the dr's wanted me off the vent (me too) so…Continue
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Latest Activity
Rachel replied to Hostess Rise''s discussion 'Hair Talk' in the group Girl Talk"I went to the dr. last week, followup on my ear ache and asked some questions on things I could do like paint -answer was no. They gave me the ok to fly, happy about that. I forgot to ask about my hair, I will ask when I go back for my…"
Rachel commented on Hostess Rise''s group 'How was your day today?'"Hi
Last week I had to go to dr, had a ear ache (bad). They gave me ear drops and amox x 10 days. Dr. said she could see dried blood inside, the pain went away the next day but I can't hear clearly on that ear. It feels like…"
Rachel replied to Ron Martin's discussion 'Prograf Shakes and Ticks' in the group Prograf"I'm one year post Double lung tx and I'm taking prograf 3mg am and 2mg pm, Valcyte am, mag400 twice a day, mvi once a day, pred 5mg once a day, Mepron 10ml once a day, zantac 150mg once a day, was on Nexium 40mg twice a day (temp on…"
Rachel commented on Cathy's group 'Cellcept Friends'"I'm one year out (dlung tx). I went to dr last week and they put me back on cellcept. I've notice some diarrhea. It's only been a week. I'm taking it 250mg twice a day. I just finish 10 days of…"
Rachel commented on Hostess Rise''s group 'How was your day today?'"Hello everyone
I've been feeling sluggish the past two days. Bad allergies, not letting me sleep."
Rachel replied to Hostess Rise''s discussion 'Hair Talk' in the group Girl Talk"I agree that there's someone out there worse off. I didn't want my hair to be in anyone's way so as soon as I learned that I was listed I had my hair cut short (above my shoulder). It will be one…"
Rachel replied to Hostess Rise''s discussion 'Hair Talk' in the group Girl Talk"Glad to hear your hair came back."
Rachel replied to Hostess Rise''s discussion 'Hair Talk' in the group Girl Talk"I'm jealous, I'm one week short of my one year anniversary and they still won't let me dye my hair so I have lots of white hair. I have notice that it has gotten thinner. I'm scheduled…"
Rachel replied to Rachel's discussion 'candles' in the group Transplant No-No's"Thanks for the info. That was interesting.
Rachel"
DebbieK replied to Rachel's discussion 'candles' in the group Transplant No-No's"If they are petroleum bases paraffin candles they are toxic as are all petroleum products
http://findarticles.com/p/articles/mi_m0HKL/is_5_7/ai_66918312/"
Mohan Sagar replied to Rachel's discussion 'candles' in the group Transplant No-No's"I don't think candles would be a problem. Incense may be an issue because of the smoke."
Rachel replied to Jay Lackritz's discussion '5 Year Survival' in the group Lung(s) Transplants"Hi Kathryn
I also have some gloomy days and then I start to think I'm so ungrateful but like you said life is not always so easy. I just hope I get over it and hope tomorrow is a better day; It usually is. …"
Rachel commented on Cathy's group 'Cellcept Friends'"Hi, I'm 11 months out (d lung tx). I'm off the cellcept, take 5mg prograf, 5mg pred, 450mg valcyte, 750mg mepron and my nausea and diarrhea have stopped. Feeling lots better. Now I'm gaining too much weight, have to…"
Rachel replied to Laura Jennie's discussion 'My dad is not doing well after liver transplant. Very worried' in the group Liver Transplants"Hi Laura
I'm so sorry your dad is going thru this. Hope he's doing better, will pray for your dad. Just reading your story got me thinking about how depress and how scared I was but it's now 11 months later and it seems…"
Rachel replied to Sharon's discussion 'Ups and downs!!!!!!!!!!!!!!!!!' in the group How was your day today?"Don't give up Sharon, not yet. Hang in there. I will say prayers for you.
lots of hugs. think positive. keep going, you can do this.
rachel"
Profile Information
- Are you a member of http://TransplantBuddies.com ?
- Yes
- Where did you hear about Transplant Friends?
- on facebook
- Are You Male or Female?
- Female
- Share why you had to have a transplant.
- I had plumonary fibrosis
- Which Organ(s) did you receive? If you are on the waiting list, please share.
- lungs
- Optional: Share the Medications that you take
- prograf
valcyte
prednisone
mepron
mvi
mag oxide
mag
mvi
- How many years have you had your Transplant for?
- 9 months
- I am Interested in Transplant Friends because...
- To learn from people who have gone thru this.
- Which Transplant Center has or will perform your life saving surgery?
- University Health System in San Antonio, TX
- How has transplantation changed your life? If Yes, please share.
- Appreciate life more. Live one day at at time.
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