Priscilla
  • Female
  • Abingdon, VA
  • United States
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Priscilla's Friends

  • Mark
  • David
  • Hostess Risé
 

Priscilla's Page

Latest Activity

David left a comment for Priscilla
"Happy Birthday Priscilla ! "
Aug 20, 2013
Priscilla liked Lorrine's discussion UNIVERSITY OF VIRGINGIA, CHARLOTTESVILLE VIRGINIA
Sep 8, 2012
Priscilla liked Carla's discussion Duke North Carolina
Sep 8, 2012
Mr. T left a comment for Priscilla
"Happy Birthday Priscilla. Have a great day. Best of luck with your tx. Mr. T"
Aug 20, 2012
Cisco left a comment for Priscilla
"Happy birthday Priscilla! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 pm CDT. Hope to see you there!"
Aug 20, 2012
Priscilla liked Hostess Risé's page ReTransplant Double lung Transplant-Cystic Fibrosis
Jul 25, 2012
Priscilla updated their profile
Jul 20, 2012
Mark and Priscilla are now friends
Jul 13, 2012
Mark left a comment for Priscilla
"Priscilla, please don't fret too much over the evaluation tests.  As Rise' stated earlier, we have all gone through it and it is really no big deal IF you stay relaxed and work closely with the evaluation folks.  They will…"
Jul 12, 2012
Priscilla left a comment for Hostess Risé
"Good Morning to all , I talked to my doctor last night and she said I willl be going home Friday, the heart test will be done on me today to make sure heart is pumping ok before I make the trip to UVA. Can someone tell me some of the things that the…"
Jul 12, 2012
Priscilla left a comment for Hostess Risé
"I just got a call asking  a lot of questions , was told I will be getting a call from someone else maybe next week after they look over some more papers. But did say I will have to walk 6 minutes , how do I do that when I am so weak ?? …"
Jul 11, 2012
Hostess Risé left a comment for Priscilla
"Hi Priscilla Keep up the faith that all will turn out for you. You are blessed to have a wonderful sister. Rise'"
Jul 10, 2012
Priscilla left a comment for Hostess Risé
"Today is the 10th day of July , I was told I was going home tomorrow , my sister called UVA to see who and wherem I willl be going on the 16th only to be told I do not have any appointment now, I am so sad , she is working on trying to get things…"
Jul 10, 2012
Hostess Risé left a comment for Priscilla
"Priscilla We all have gone through an evaluation prior to transplant which determines if we are a candidate for transplantation.    What was most difficult for me was getting up in the morning, having breakfast, doing my therapy and…"
Jul 8, 2012
Hostess Risé left a comment for Priscilla
Jul 7, 2012
Hostess Risé left a comment for Priscilla
"Hi To answer your question- I suggest you join our lung group and post your questiosn to our group. This question can help many people. How does someone get to stay and be tested in a Hospital to get a new lung ?"
Jul 7, 2012

Profile Information

Were you a member of our Forum on http://TransplantBuddies.com ?
Yes
Where did you hear about Transplant Friends?
COPD chatt forum
Are You Male or Female?
Female
Share - which illness led up to you needing a transplant?
I have nott had transplant I am trying to get help information I need lungs only
Which Organ(s) did you receive? If you are on the waiting list, please share.
I am not on waiting list
Drugs, vitamins, favorite foods
symbcort
xophonex
proair
How many years have you had your Transplant for?
0
I am Interested in Transplant Friends because...
I cant breath and need information helping me locate it I am strating to get help and they tell me I am END STAGE BAD breathing less then 16%fev pev 76
Which Transplant Center has or will perform your life saving surgery?
have not located one need help case manager heare at wellmont is trying for vanderbilt today I think we have run out of a place to take me , I need help to live
Share how your transplant experience changed your life?
not yet

Comment Wall (15 comments)

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At 7:18am on August 20, 2013, David said…

Happy Birthday Priscilla ! 

At 9:02am on August 20, 2012, Mr. T said…

Happy Birthday Priscilla. Have a great day. Best of luck with your tx.

Mr. T

At 8:25am on August 20, 2012, Cisco said…

Happy birthday Priscilla! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 pm CDT. Hope to see you there!

At 7:38am on August 20, 2012, David said…

 Happy Birthday Priscilla ! 

At 10:08pm on July 19, 2012, David said…

Have your doctors disabled you yet ?  if not are you still working ?

At 5:32pm on July 19, 2012, David said…

Priscilla,  what type of ins.  do you have ?  if I may ask..  

At 12:52pm on July 12, 2012, Mark said…
Priscilla, please don't fret too much over the evaluation tests.  As Rise' stated earlier, we have all gone through it and it is really no big deal IF you stay relaxed and work closely with the evaluation folks.  They will probably assign you to a coordinator who will handle your scheduled appointments and keep you informed of your status.  In the meantime, please join the lung transplant group on this site - many of your current questions may be answered by people who have experienced the same thing you are now experiencing:  
http://www.transplantfriends.com/group/lungtransplants

In the meantime, there may be some helpful information for you here:  http://my.clevelandclinic.org/services/lung_transplantation/hic_lung_transplant_evaluation_required_tests.aspx

Remember, try to stay as relaxed as possible. For me, the waiting was far worse than the actual tests :)
At 5:14pm on July 10, 2012, Hostess Risé said…

Hi Priscilla

Keep up the faith that all will turn out for you. You are blessed to have a wonderful sister. Rise'

At 12:03pm on July 8, 2012, Hostess Risé said…

Priscilla

We all have gone through an evaluation prior to transplant which determines if we are a candidate for transplantation.    What was most difficult for me was getting up in the morning, having breakfast, doing my therapy and getting to the test on time.  Remember that when everything is over with, you can put it all behind you.  Take care, Rise'

At 11:56am on July 7, 2012, Hostess Risé said…
 
 
 

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