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Walter J. Blacha said… Pete, I too have experienced the Heartmate II LVAD. I had it for 8 mos. from May 06 to Jan 07. You look like you have adapted well. I was very comfortable with mine and then I got the call for my heart. I really had to consider if I wanted to take that next step, but the docs got me healthier for the purpose of the transplant so after thinking about it for 2.5 milliseconds I started to get ready for the trip to the hospital.
I was suffering from cardiomyopathy similar to you, only I had a few more years under my belt. I thought that I would have to wait quite a while if ever for a match because of my blood type A+ and size (I'm 6'7") but one became available. My best advice to you is to enjoy each day as it comes along. Enjoy the time you have to spend with your family and be tankful that you have been able to resume much of your normal life.
I took a look at your blog and am quite impressed. It's nice to share these experiences with others, as it helps the writer as well as those who wish to learn from your experiences.
Good luck, keep writing, and just wait for that phone call!
Joe said… Pete, "PM"--Personal Mail??? Yes, I'm definitely interested in your book recommendations. Thanks. Joe
Pete said… Thank you all for the comments. i have been bouncing back and forth between here and transplantbuddies.
I am doing great, feel awesome. I had my chest CT and right heart cath yesterday in preparation for the next step. I am still a 1B but have accrued about 180 days as a 1B. By next summer will be well up over a year as a 1B.
June 2 is a great day, my bday, and now Todd's new bday:-)
Lisa said… Hi Pete:
My husband had his LVAD implanted Jan. 6, 2011, and heart & kidney transplant June 2 & 3, 2011. At five months post Xplant, he is doing great. Best of luck to you. If you want to talk or have questions, get in touch.
~Lisa & Todd
David said…
David said… Hi Pete
Welcome to Transplant Friends:) I am so glad that you joined us. If you have any questions you can send me a message on the Hostess Rise' page or read our instructions page on the home page (top left).
Join a group, create a blog post or post to our forum.
I wish you the best during your wait.
Blessings,
Rise'
Posted on February 10, 2012 at 6:05pm 2 Comments 1 Like
Hi everyone.
I am returning from San Fransisco to Minneapolis today. I spent yesterday at the Thoratec HQ in Pleasanton. They make my Heartmate 2 LVAD. While out there I was asked to share with them my blog and was asked about what other blogs I follow. Anyway, I shared my blog with them. I would really appreciate it if in your travels, some folks out here might check it out. What do you like, what don't you like? I was asked a lot about connecting LVAD patients and…
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