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David left a comment for Pat Romano
" Happy Birthday Pat ! "
Jul 28, 2013
amberbot replied to Pat Romano's discussion 'Rapamune and treatment by staff' in the group Rapamune Friends
"I don't regret it so far. I have been monitoring my own labs for a long time since my center rarely looks at them. If I notice something out of range then I'll call the nurse but they usually blow me off anyway. One positive thing of…"
Jun 13, 2013
amberbot replied to Pat Romano's discussion 'Rapamune and treatment by staff' in the group Rapamune Friends
"Hello, I did the same thing with my Rapamune, went down to 3 mg from 5 mg without consent. It has been a year now and my creatinine has been stable .7-.8. Have you had any problems after reducing?"
Jun 12, 2013
Pete replied to Pat Romano's discussion 'Rapamune and treatment by staff' in the group Rapamune Friends
"Has anyone here ever just said, "No"?  I was so sick and miserable on 3 mg of rapamune.  I'm down to 1 mg.  I am not going to take any more than that.  I do take CellCept twice a day.  I have an appt in about…"
Feb 17, 2013
Pete liked Pat Romano's discussion Rapamune and treatment by staff
Feb 17, 2013
Cisco left a comment for Pat Romano
"Happy birthday Pat! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 pm CDT. Hope to see you there!"
Jul 28, 2012
Ricky replied to Pat Romano's discussion 'Rapamune and treatment by staff' in the group Rapamune Friends
" "
May 15, 2012
Ricky replied to Pat Romano's discussion 'Rapamune and treatment by staff' in the group Rapamune Friends
"Hi Bill, So happy to hear you had a better experience. My husband has improved quite a bit neurologically since I originally posted. However, it has not been because of any of the medical "professionals" involved in his care that helped.…"
May 15, 2012
Bill replied to Pat Romano's discussion 'Rapamune and treatment by staff' in the group Rapamune Friends
"Hello, I had my kidney transplant March 2008 at Yale New Haven. was on prograf for about 8 mo. changed to rapamune because the side effects on prograf were hard to handle. have had some infections, meningitis, epstein barr, human herpes virus…"
May 15, 2012
Bill replied to Pat Romano's discussion 'Rapamune and treatment by staff' in the group Rapamune Friends
" "
May 15, 2012
Donna replied to Pat Romano's discussion 'Rapamune and treatment by staff' in the group Rapamune Friends
"I should reply to the original thread point, also.  In 12 years I have seen a drastic change in the treatment of post-transplant patients by all kinds of doctors, including the transplant centers.  Back when I was first transplanted, there…"
Feb 10, 2012
Donna replied to Pat Romano's discussion 'Rapamune and treatment by staff' in the group Rapamune Friends
"I am 12 years post liver transplant.  I was switched from CsA to Rapamune about a year and a half ago because of cyclosporin induced peripheral neuropathy.  On  CsA I had regular acne (from being immunosuppressed, I guess) and it…"
Feb 10, 2012
mark replied to Pat Romano's discussion 'Rapamune and treatment by staff' in the group Rapamune Friends
"    I had my tx at JMH 4yrs ago- treated like royalty   now when I go for labs or doctors I am still treated pretty good!  of course maybe cuz they are all like family to me! we have been thru good and bad over 4yrs but always…"
Nov 29, 2011
Bill S. replied to Pat Romano's discussion 'Rapamune and treatment by staff' in the group Rapamune Friends
" I also have the bumps on my neck and head. They didn't start until I was put on rapamune. The prograf had taken a major toll on my kidneys so they switched to rapamune 2mg daily. They really aren't that big of a deal outside of the…"
Sep 15, 2011
brian replied to Pat Romano's discussion 'Rapamune and treatment by staff' in the group Rapamune Friends
"I experience the same thing still. Rapamune has caused a major breakout on my face, neck, shoulders, arms, back, and chest. I called my post transplant team to report the breakout and the a horrible taste in my mouth when I eat anything with vinegar…"
Mar 3, 2011
Pat Romano left a comment for Cathy
"Hi Cathy, Thanks so much for your comments on my health. It was very encouraging. Still don't have a date, but that's a story for another day. Pat"
Aug 1, 2010

Profile Information

Were you a member of our Forum on http://TransplantBuddies.com ?
yes
Share how your transplant experience changed your life?
It has made me miserable. My quality of life stinks. I have been strapped down with a hip and shoulder that need to be replaced and have gotten a complete runaround with the process

Comment Wall (8 comments)

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At 6:07am on July 28, 2013, David said…

 Happy Birthday Pat ! 

At 10:28am on July 28, 2012, Cisco said…

Happy birthday Pat! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 pm CDT. Hope to see you there!

At 7:06am on July 28, 2012, David said…

 Happy Birthday Pat ! 

At 7:47am on July 28, 2010, DAP1122 (Don) said…
Happy Birthday, Pat!!
At 2:24pm on July 27, 2010, Hostess Risé said…

At 3:35am on January 11, 2010, Cathy said…
Hi Pat, Sorry your having problems after your Gift Of Life Heart Transplant

Blessings that Doctors will be able to help you with these other problems. My friend Jean whom is 17 Years Post Liver Transplant Had A Total Hip Replacement down 1/2 a year ago now and she is doing well she will be 65 years young next month!!

Healing Prayers Being Sent Your Way
At 3:27am on January 11, 2010, Cathy said…

To Transplant Friends
Friends of TransplantBuddies.org

At 11:51am on January 7, 2010, Hostess Risé said…
hi Pat

I am so sorry to hear you are facing many obstabcles with your new life. I hope you find a solution. I know many energy medicine tools if you are interested that help with pain control. Check out http://emofree.com
 
 
 

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