Ono's Page

Latest Activity

Ono replied to Sami Hill's discussion 'Mental Brakedown...How can i clear my mind???'
"I'm going to reply to your first question : How can I clear my mind ? There are many ways to help clear our minds which in turn help us find balance in our lives. One way is through learning a practice such as meditation, where you concentrate…"
May 15
Rita left a comment for Ono
"Happy Birthday, hoping all your birthday wishes come true."
Apr 8
Hostess Risé left a comment for Ono
"I miss hearing from you ONO! Join us soon."
Apr 8
Hostess Risé left a comment for Ono
Apr 8
Ono and richardt001 are now friends
Mar 5
Ono replied to Dave's discussion 'Question about Interferon/Ribavirin treatment post liver transplant'
"Yes, viral load is not important, what is truly important is the health of your liver. The good news is the new all oral meds are doing phenomenally well in clinical trials and should be available to us all within a few years. Check out the Gilead…"
Feb 28
Ono replied to Pam's discussion 'Any Liver Donors here?' in the group Liver Transplants
"My daughter was my donor. This April  will be four years since our surgeries. We are both doing great ! I'm truly sorry for the loss of your brother."
Jan 5
Ono commented on Chris's photo
Thumbnail

pls get along

"Great photo, good color and cute. I think what they're saying is  " feed me !""
Jan 5
Ono replied to Hostess Risé's discussion 'How music prevents organ rejection'
"If I had to do it over again, I would have brought an ipod into the ICU with me. Forget the TV, give me music !"
Dec 11, 2012
Ono posted a status
"About the topic~ how to raise one's spirits: I look up. The sky, vast and blue, or blanketed in clouds. Looking up, I find joy."
Dec 10, 2012
Ono replied to Hostess Risé's discussion 'What if you saw a Baby in a car by itself'
"My experience in life has taught me that we can imagine what we would do in any given situation but in reality, we often behave differently when the time comes. Having said that, I think my first response would be to look at nearby shops or…"
Nov 29, 2012
Ono replied to Dave's discussion 'Question about Interferon/Ribavirin treatment post liver transplant'
"I'm so sorry for your loss. I'm sure you did what you thought was best. Inteferon treatment once you have decompensated cirrhosis is rough, I know because I did it. I did it feeling like I had no other option. I relapsed, had a transplant…"
Nov 21, 2012
Ono commented on Cathy's group 'HCV LIVER TRANSPLANT'
"Laurel: You may know it as GTP or maybe even GT. Gamma-glutamyl Transpeptidase; GGTP; Gamma GT; GTP Thanks Howie:)"
Oct 11, 2012
Ono commented on Cathy's group 'HCV LIVER TRANSPLANT'
"My doctor told me they look at the GGTP on your lab results but what other signs would someone look for to tell if they were having a rejection episode ?BTW: I'm doing fine, just curious."
Oct 10, 2012
Ono commented on India Rose's photo
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Digging sweet taters

"Wow ! Are those still edible ?"
Oct 9, 2012
Ono replied to BOBBI's discussion 'TRANSPLANTS AND MENTAL AFTER EFFECTS' in the group HCV LIVER TRANSPLANT
"My experience having had a live donor was a bit different. At first my sister offered to be my donor but when it came time to really step up to the plate, I could tell she was scared. I didn't want her to do it if she felt frightened. My…"
Oct 7, 2012

Profile Information

Were you a member of our Forum on http://TransplantBuddies.com ?
Yes
Where did you hear about Transplant Friends?
Transplant buddies
Share - which illness lead up to you needing a transplant?
Hep C destroyed my liver causing me to have a transplant. Otherwise, I was healthy.
I received a related live liver transplant.
Which Organ(s) did you receive? If you are on the waiting list, please share.
Liver
How many years have you had your Transplant for?
Since April 2009
I am Interested in Transplant Friends because...
One person can only know so much. Together we share knowledge, experience, and information helpful to us all.
Which Transplant Center has or will perform your life saving surgery?
Chang Gung Memorial Hospital in Kaohsuing Taiwan,
Share how your transplant experience changed your life?
Since this metamorphosis I am more accepting of life as it is, as opposed to what my ego desires it to be.
Life is beautiful, here for us to enjoy and share.
My focus is less on petty details and more on the essence of what is truly important.

Comment Wall (16 comments)

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At 7:30pm on April 8, 2013, Rita said…

Happy Birthday, hoping all your birthday wishes come true.

At 9:18am on April 8, 2013, Hostess Risé said…

I miss hearing from you ONO! Join us soon.

At 9:17am on April 8, 2013, Hostess Risé said…

At 5:35pm on September 24, 2012, BirdGirl said…

Hi again, Ono :) Thanks for being so kind. I wanted to ask, did you receive a live Liver transplant? I've read that a live donor liver reacts better to ribavirin/interferon treatment that those from deceased donor's, like my husband's. Thank you!!! Hope you're having a great day. We just picked apples on a farm.

At 5:31pm on September 24, 2012, BirdGirl said…

Looks like we have the same Dr. He is the 3rd we've had at CPMC. Seems smart, but we haven't gotten as direct of a diagnosis as you, probably because it's , from what he said, a "rare situation," yet added "we have 10 people currently exhibiting similar symptoms." Just switched to him very recently. We are all waiting to see what happens w/ the change in medication. Good idea on the biopsy prior to treatment . However, w/ what my husband has been through, I believe he would run away screaming if someone said he had to have another one right now. We pray that this new drug and time, will give us room to breathe, heal, & make a logical decision.

At 1:53pm on September 24, 2012, BirdGirl said…

Hi Ono~ My husband was transplanted 9/2012 - CPMC as well. Since then he has had about 9, maybe 10 biopsies. They are not being upfront w/ the results. CPMC was, in my opinion, much better run in 2010. They did say he has mild ductopenia (the smaller bile ducts w/in the liver itself, not the large ones). I don't think he was fibrotic, necrotic, or cirrhotic , but not exactly sure.....as they aren't either. We really would rather wait a few months and see exactly where he stands , come January 2013.

At 12:51pm on September 24, 2012, BirdGirl said…

Thanks for reaching out, Ono!

At 3:14pm on August 25, 2012, laura said…

Thanks alot I hope I can remember this as I am moving and gonna be without interent for awhile. While talk then. Havea good day as I keep in in mind daily!

At 7:50pm on August 2, 2012, Laurel said…

Hi. I guess you have completed the new Hep C treatment. Were you on a clinical trial? If not, who paid for your meds etc? I have Medicare and Kaiser. I am still waiting to get treatment. Also, sorry to say Bristol Myers halted their study.

http://online.wsj.com/article/BT-CO-20120802-717576.html

At 12:07am on July 21, 2012, laura said…

Thank you so much, you'll never know how much it means to me. My doctor put me on it too, but family against it. I feel quilty for it as I was raised that it was bad. I only use when really can't handle it any more. I make rice krispies, not much into brownies. Only probably is I foreget that it's in there, can't taste it. Also have done banana bread. Thanks for taking load off. God bless!

 
 
 

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