"Although I had a live liver transplant and didn't have to wait on a list, I too had hep C and as someone else commented it is the number one reason for liver transplants and liver cancer in the US.It is nothing to be ashamed of.
"Sadly a few years ago a man was denied a liver transplant for using medicinal mj which was prescribed by his doctor !!
I believe this unfortunate situation comes from the FDA still classifying pot as a class one drug, more dangerous than…"
"Hepatitis C is the leading cause of liver transplantation, liver cancer and causes more deaths in the US than AIDs.
It is what destroyed my liver and I had no idea I had it for probably 30 years until I already had decompensated cirrhosis.
Hep C is…"
" I was on cellcept for 4 months and then it was stopped. I don't recall the dosage but by month 8 post tp, I was only taking prograf.
Be your own advocate. I made it clear to my hepatologist that I wanted to be on as little amount of meds…"
"First of all, is it absolutely necessary that you remain on the dosage of meds that you're on ?
I pushed to reduce mine to a minimum.
Secondly, I truly believe the healthiest thing we can do is eat as fresh, organic and as freshly prepared food…"
"My doctor has no problems with pro-biotics thought I didn't ask about them so early out from my transplant.
Yogurt is good but it doesn't give you the concentration that the pills do or liquid acidophiles, my preference.
Diet is critical…"
"It is normal for your liver functions to fluctuate. It sounds like all is fine, don't worry.
You should trust your team. As long as your GPT is within normal range there is no need to worry.
Your tac level is fine for this stage of the…"
"Although our society urges us to put ourselves in our doctor's hands, we must always be our own advocate.
If your doctor tells you something that 'feels' wrong to you, then you have to trust yourself. They aren't in your…"
"Good luck with your treatment Laurel.
I forced myself to walk every day I could while doing tx. Often I really just wanted to lie on the couch and certainly wasn't up to it the day after my shot, but I feel by keeping up on my walks, it helped…"
"This doesn't answer your question but I had to pipe in.
I had a liver transplant and it took me 8 months to wean off prednisone.During that time I did a lot of research and found it to be vastly over prescribed.
My transplant was in Taiwan and…"
"My liver transplant was caused by the hep C virus. I'm very open about it and I take the opportunity when the subject arises to educate people about the virus.
It's surprising how little people know about it. I myself thought of it as…"
"I'm going to reply to your first question : How can I clear my mind ?
There are many ways to help clear our minds which in turn help us find balance in our lives. One way is through learning a practice such as meditation, where you concentrate…"
Were you a member of our Forum on http://TransplantBuddies.com ?
Where did you hear about Transplant Friends?
Share - which illness led up to you needing a transplant?
Hep C destroyed my liver causing me to have a transplant. Otherwise, I was healthy.
I received a related live liver transplant.
Which Organ(s) did you receive? If you are on the waiting list, please share.
How many years have you had your Transplant for?
Since April 2009
I am Interested in Transplant Friends because...
One person can only know so much. Together we share knowledge, experience, and information helpful to us all.
Which Transplant Center has or will perform your life saving surgery?
Chang Gung Memorial Hospital in Kaohsuing Taiwan,
Share how your transplant experience changed your life?
Since this metamorphosis I am more accepting of life as it is, as opposed to what my ego desires it to be.
Life is beautiful, here for us to enjoy and share.
My focus is less on petty details and more on the essence of what is truly important.
Comment Wall (12 comments)
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Hi. I guess you have completed the new Hep C treatment. Were you on a clinical trial? If not, who paid for your meds etc? I have Medicare and Kaiser. I am still waiting to get treatment. Also, sorry to say Bristol Myers halted their study.
Thank you so much, you'll never know how much it means to me. My doctor put me on it too, but family against it. I feel quilty for it as I was raised that it was bad. I only use when really can't handle it any more. I make rice krispies, not much into brownies. Only probably is I foreget that it's in there, can't taste it. Also have done banana bread. Thanks for taking load off. God bless!
Thanks for your welcome, Ono. As soon as I find my way around this site I'm going to find your zentangles. I hope you get into it, because you'll probably love it. Try this website for all sorts of information on it: www.TanglePatterns.com