Ono's Page

Latest Activity

Ono replied to mish's discussion 'Pre Transpant Issues/Waiting List'
"Although I had a live liver transplant and didn't have to wait on a list, I too had hep C and as someone else commented it is the number one reason for liver transplants and liver cancer in the US.It is nothing to be ashamed of. I'm really…"
Nov 2, 2013
Ono replied to Hostess Risé's discussion 'Deny Organ Transplants to Marijuana Users?'
"Sadly a few years ago a man was denied a liver transplant for using medicinal mj which was prescribed by his doctor !! I believe this unfortunate situation comes from the FDA still classifying pot as a class one drug, more dangerous than…"
Oct 22, 2013
Ono replied to Hostess Risé's discussion 'Which Illness led up to your Transplant?'
"Hepatitis C is the leading cause of liver transplantation, liver cancer and causes more deaths in the US than AIDs. It is what destroyed my liver and I had no idea I had it for probably 30 years until I already had decompensated cirrhosis. Hep C is…"
Aug 28, 2013
Ono replied to Chip's discussion 'Effect of Cellcept on liver'
" I was on cellcept for 4 months and then it was stopped. I don't recall the dosage but by month 8 post tp, I was only taking prograf. Be your own advocate. I made it clear to my hepatologist that I wanted to be on as little amount of meds…"
Aug 21, 2013
Ono replied to Tanya's discussion 'Superfoods: Wellness Detox and Colon Cleanse?'
"First of all, is it absolutely necessary that you remain on the dosage of meds that you're on ? I pushed to reduce mine to a minimum. Secondly, I truly believe the healthiest thing we can do is eat as fresh, organic and as freshly prepared food…"
Aug 16, 2013
Ono replied to RulaLenska's discussion 'probiotic'
"My doctor has no problems with pro-biotics thought I didn't ask about them so early out from my transplant. Yogurt is good but it doesn't give you the concentration that the pills do or liquid acidophiles, my preference. Diet is critical…"
Aug 16, 2013
Ono replied to Chip's discussion 'Effect of Cellcept on liver'
"No but have you asked your doctor why you are still taking cellcept ?"
Aug 1, 2013
Ono replied to shaufi's discussion 'post liver transplant complications'
"It is normal for your liver functions to fluctuate. It sounds like all is fine, don't worry. You should trust your team. As long as your  GPT is within normal range there is no need to worry. Your tac level is fine for this stage of the…"
Aug 1, 2013
Ono replied to Hostess Risé's discussion 'Prograf'
"I had itchy feet, and it was from a clogged bile duct. A simple outpatient procedure, an ERCP took care of the problem. You should talk to your transplant team about your symptoms."
Jul 24, 2013
Ono replied to Hostess Risé's discussion 'How do you disagree with your doctor?'
"Although our society urges us to put ourselves in our doctor's hands, we must always be our own advocate. If your doctor tells you something that 'feels' wrong to you, then you have to trust yourself. They aren't in your…"
Jul 20, 2013
Ono commented on Cathy's group 'HCV LIVER TRANSPLANT'
"Good luck with your treatment Laurel. I forced myself to walk every day I could while doing tx. Often I really just wanted to lie on the couch and certainly wasn't up to it the day after my shot, but I feel by keeping up on my walks, it helped…"
Jul 3, 2013
Ono replied to frank's discussion 'prednisone'
"This doesn't answer your question but I had to pipe in. I had a liver transplant and it took me 8 months to wean off prednisone.During that time I did a lot of research and found it to be vastly over prescribed. My transplant was in Taiwan and…"
Jul 3, 2013
Ono replied to Rita's discussion 'How we are perceived by others and how we feel about that.'
"My liver transplant was caused by the hep C virus. I'm very open about it and I take the opportunity when the subject arises to educate people about the virus. It's surprising how little people know about it. I myself thought of it as…"
May 30, 2013
Ono replied to Sami Hill's discussion 'Mental Brakedown...How can i clear my mind???'
"I'm going to reply to your first question : How can I clear my mind ? There are many ways to help clear our minds which in turn help us find balance in our lives. One way is through learning a practice such as meditation, where you concentrate…"
May 15, 2013
Rita left a comment for Ono
"Happy Birthday, hoping all your birthday wishes come true."
Apr 8, 2013
Hostess Risé left a comment for Ono
"I miss hearing from you ONO! Join us soon."
Apr 8, 2013

Profile Information

Were you a member of our Forum on http://TransplantBuddies.com ?
Yes
Where did you hear about Transplant Friends?
Transplant buddies
Share - which illness led up to you needing a transplant?
Hep C destroyed my liver causing me to have a transplant. Otherwise, I was healthy.
I received a related live liver transplant.
Which Organ(s) did you receive? If you are on the waiting list, please share.
Liver
How many years have you had your Transplant for?
Since April 2009
I am Interested in Transplant Friends because...
One person can only know so much. Together we share knowledge, experience, and information helpful to us all.
Which Transplant Center has or will perform your life saving surgery?
Chang Gung Memorial Hospital in Kaohsuing Taiwan,
Share how your transplant experience changed your life?
Since this metamorphosis I am more accepting of life as it is, as opposed to what my ego desires it to be.
Life is beautiful, here for us to enjoy and share.
My focus is less on petty details and more on the essence of what is truly important.

Comment Wall (12 comments)

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At 7:30pm on April 8, 2013, Rita said…

Happy Birthday, hoping all your birthday wishes come true.

At 9:18am on April 8, 2013, Hostess Risé said…

I miss hearing from you ONO! Join us soon.

At 9:17am on April 8, 2013, Hostess Risé said…

At 3:14pm on August 25, 2012, laura said…

Thanks alot I hope I can remember this as I am moving and gonna be without interent for awhile. While talk then. Havea good day as I keep in in mind daily!

At 7:50pm on August 2, 2012, Laurel said…

Hi. I guess you have completed the new Hep C treatment. Were you on a clinical trial? If not, who paid for your meds etc? I have Medicare and Kaiser. I am still waiting to get treatment. Also, sorry to say Bristol Myers halted their study.

http://online.wsj.com/article/BT-CO-20120802-717576.html

At 12:07am on July 21, 2012, laura said…

Thank you so much, you'll never know how much it means to me. My doctor put me on it too, but family against it. I feel quilty for it as I was raised that it was bad. I only use when really can't handle it any more. I make rice krispies, not much into brownies. Only probably is I foreget that it's in there, can't taste it. Also have done banana bread. Thanks for taking load off. God bless!

At 4:21pm on July 20, 2012, laura said…

HI Ono- Did I read right you do cannis too? What's your doctors and your thaughts in it?

At 12:17am on June 24, 2012, Holly said…

Hi Ono...pleased to meet you!!!  I agree this site can be very confusing.  Keep doodling! Holly

At 11:49am on June 23, 2012, Judi said…

Thanks for your welcome, Ono.  As soon as I find my way around this site I'm going to find your zentangles.  I hope you get into it, because you'll probably love it.  Try this website for all sorts of information on it:  www.TanglePatterns.com

At 10:39pm on April 7, 2012, Cisco said…

Happy birthday Ono! Have a great day! Yous hbould join us for chat on Saturdays and Sundays starting at 2 p.m. CDT. Hope to see you there!

 
 
 

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