"I'm going to reply to your first question : How can I clear my mind ?
There are many ways to help clear our minds which in turn help us find balance in our lives. One way is through learning a practice such as meditation, where you concentrate…"
"Yes, viral load is not important, what is truly important is the health of your liver.
The good news is the new all oral meds are doing phenomenally well in clinical trials and should be available to us all within a few years. Check out the Gilead…"
"My experience in life has taught me that we can imagine what we would do in any given situation but in reality, we often behave differently when the time comes.
Having said that, I think my first response would be to look at nearby shops or…"
"I'm so sorry for your loss. I'm sure you did what you thought was best.
Inteferon treatment once you have decompensated cirrhosis is rough, I know because I did it.
I did it feeling like I had no other option. I relapsed, had a transplant…"
"My experience having had a live donor was a bit different. At first my sister offered to be my donor but when it came time to really step up to the plate, I could tell she was scared. I didn't want her to do it if she felt frightened. My…"
Were you a member of our Forum on http://TransplantBuddies.com ?
Where did you hear about Transplant Friends?
Share - which illness lead up to you needing a transplant?
Hep C destroyed my liver causing me to have a transplant. Otherwise, I was healthy.
I received a related live liver transplant.
Which Organ(s) did you receive? If you are on the waiting list, please share.
How many years have you had your Transplant for?
Since April 2009
I am Interested in Transplant Friends because...
One person can only know so much. Together we share knowledge, experience, and information helpful to us all.
Which Transplant Center has or will perform your life saving surgery?
Chang Gung Memorial Hospital in Kaohsuing Taiwan,
Share how your transplant experience changed your life?
Since this metamorphosis I am more accepting of life as it is, as opposed to what my ego desires it to be.
Life is beautiful, here for us to enjoy and share.
My focus is less on petty details and more on the essence of what is truly important.
Comment Wall (16 comments)
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Hi again, Ono :) Thanks for being so kind. I wanted to ask, did you receive a live Liver transplant? I've read that a live donor liver reacts better to ribavirin/interferon treatment that those from deceased donor's, like my husband's. Thank you!!! Hope you're having a great day. We just picked apples on a farm.
Looks like we have the same Dr. He is the 3rd we've had at CPMC. Seems smart, but we haven't gotten as direct of a diagnosis as you, probably because it's , from what he said, a "rare situation," yet added "we have 10 people currently exhibiting similar symptoms." Just switched to him very recently. We are all waiting to see what happens w/ the change in medication. Good idea on the biopsy prior to treatment . However, w/ what my husband has been through, I believe he would run away screaming if someone said he had to have another one right now. We pray that this new drug and time, will give us room to breathe, heal, & make a logical decision.
Hi Ono~ My husband was transplanted 9/2012 - CPMC as well. Since then he has had about 9, maybe 10 biopsies. They are not being upfront w/ the results. CPMC was, in my opinion, much better run in 2010. They did say he has mild ductopenia (the smaller bile ducts w/in the liver itself, not the large ones). I don't think he was fibrotic, necrotic, or cirrhotic , but not exactly sure.....as they aren't either. We really would rather wait a few months and see exactly where he stands , come January 2013.
Hi. I guess you have completed the new Hep C treatment. Were you on a clinical trial? If not, who paid for your meds etc? I have Medicare and Kaiser. I am still waiting to get treatment. Also, sorry to say Bristol Myers halted their study.
Thank you so much, you'll never know how much it means to me. My doctor put me on it too, but family against it. I feel quilty for it as I was raised that it was bad. I only use when really can't handle it any more. I make rice krispies, not much into brownies. Only probably is I foreget that it's in there, can't taste it. Also have done banana bread. Thanks for taking load off. God bless!