"I have been treated three times using peg-interferon and ribavirin, once pre transplant and twice post transplant. All attempts were stopped due to severe anemia. My viral load was >17,000,000 and dropped to 1200 before treatment was…"
"Yes Laurel. You said it perfectly. I worked in a major cancer center all my life and saw many patients go off established medical treatments in favor of supplements. Few are still here to talk about their decision. Stick with scientifically proven…"
"Hey Bobbi...I have to use your comment wall to respond to the message you sent the other day. I did write a response but couldn't get the Send button to work. Anyway Laurel called and read me the message you sent her. Anytime a woman as pretty…"
"funny thing is mike im not on any pain pills at all.i refused all that stuff decided i want to meet my maker sober .so what i say to you is of sound mind scary huh?imagine what id probably say if i was doped up omg.have a great day mike"
"Hey Bobbi sounds like you've been hitting the pain meds too hard. No one says such nice things to me without being chemically altered. In fact when I go on that rare date I usually pack a few pills, you know kinda like being insured. That way…"
"goodmorning mike i dont think its energy mike im running on pure adrenaline my blood just gets to boiling when i get mad . especially when i see such complacency about the sick and poor.and for some reason we have alot of that these days.i wonder…"
funny thing is mike im not on any pain pills at all.i refused all that stuff decided i want to meet my maker sober .so what i say to you is of sound mind scary huh?imagine what id probably say if i was doped up omg.have a great day mike
goodmorning mike i dont think its energy mike im running on pure adrenaline my blood just gets to boiling when i get mad . especially when i see such complacency about the sick and poor.and for some reason we have alot of that these days.i wonder tho if i would be so adament about it if i wasnt sick myself.so thats what i think is so lacking anymore is empathy.or maybe its because of my work in nursing homes and saw how the different classes of people were treated.any way the people that know me just call me stubborn.i dont know is that a good or bad thing .my ex husband thought it was a bad thing but who cares what he thought have a great day mike .i am one of your biggest admirers for all that youve been thru and for your calm demeanor. .i ppreciate it because when i get upset your words to me have a calming affect. thank you for that bobbi
hi mike well i applied to a different hospital and transplant clinic this morning.they took all my info and are going to get my records from uwmadison.then they said theyll get back to me in probably a week and itll take another few weeks to get an appt.i feel good about this . the place is in milw. st lukes there affiliated with a dr whose doing the new hepc study .so i hope i qualify for the study.my mother also lives outside miwaukeeso all the way around its better than madison.i know they probably wont be as good as john hopkins or another big hospital .but then you never know its all a gamble.i will let you know how it goes .im glad i will be staying in the state so i can still go back and forth to my house and pets.its still a 4 hr drive but what are you going to do when you live in the sticks.talk to you later bobbi
hi mike well now im in a dilema.my coordinator told me to find out whose doing the hepc study groups with the new meds.so i did .gave her all the names phone nos. everything.i now got a reply back...it sounded like i was talking to a lawyer.i have to get all the medical specifics from these places.i said isnt that your job?well looks like im on my own she more or less read a legal document to me about how its not. why did she ask me to find these places if she wasnt going to help. i dont know the medical language to get all the specific details and terms from the different drs. on their study groups .she more or less said you stay with us and maybe get treatment when it becomes available here or go somewhere else for everything.i dont know now if i should just move on to a different transplant clinic and hospital altogether or stick with them and maybe in 7 mos get the new treatment.what would you do ?please give me your opinion.i think youve been thru alot of this medical politics yourself havent you ?thanx bobbi seeking advice