"Please read and sign White House petition to facilitate rapid availability of new treatment for HCV. Link…"
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Mike K replied to Howie's discussion 'Clinical Trial with GS-7977 and RIbavirin' in the group UCSF Transplant Center"I have been treated three times using peg-interferon and ribavirin, once pre transplant and twice post transplant. All attempts were stopped due to severe anemia. My viral load was >17,000,000 and dropped to 1200 before treatment was…"
Cisco left a comment for Mike K"Happy birthday Mike! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 pm central time. Hope to see you there!"
Mike K commented on Cathy's group 'Liver Transplants'"Yes Laurel. You said it perfectly. I worked in a major cancer center all my life and saw many patients go off established medical treatments in favor of supplements. Few are still here to talk about their decision. Stick with scientifically proven…"
Mike K commented on Hostess Risé's group 'UCSF Transplant Center'"Hmmm. Wonder if I got billed too. LOL"
Mike K commented on Hostess Risé's group 'UCSF Transplant Center'"You are so very welcome Laurie. I had a wonderful day with you at UCSF, in Chinatown and touring the Civic Center/Library. You are a good friend and I am so lucky."
Mike K left a comment for BOBBI"Hey Bobbi...I have to use your comment wall to respond to the message you sent the other day. I did write a response but couldn't get the Send button to work. Anyway Laurel called and read me the message you sent her. Anytime a woman as pretty…"
"funny thing is mike im not on any pain pills at all.i refused all that stuff decided i want to meet my maker sober .so what i say to you is of sound mind scary huh?imagine what id probably say if i was doped up omg.have a great day mike"
Profile Information
- Were you a member of our Forum on http://TransplantBuddies.com ?
- Yes
- Where did you hear about Transplant Friends?
- Transplant Buddies
- Are You Male or Female?
- Male
- Share - which illness lead up to you needing a transplant?
- HCV
- Which Organ(s) did you receive? If you are on the waiting list, please share.
- Liver
- Drugs, vitamins, favorite foods
- Sirolumus, Cellcept, Prednisone
- How many years have you had your Transplant for?
- 5
- I am Interested in Transplant Friends because...
- I hope to find people in my area to talk with
- Which Transplant Center has or will perform your life saving surgery?
- University of California at San Francisco
- Share how your transplant experience changed your life?
- Too many ways to respond. Most importantly, I am alive.
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Comment Wall (22 comments)
- At 4:53pm on October 27, 2012,
Hostess Risé said… Happy Birthday Mike!
- At 12:50pm on October 27, 2012,
Mr. T said… Happy Birthday Mike, enjoy your day and life.
- At 9:08am on October 27, 2012, Cisco said…
Happy birthday Mike! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 pm central time. Hope to see you there!
- At 8:33am on October 27, 2012,
David said… Happy Birthday Mike !
- At 1:45pm on October 12, 2012,
Laurel said… I will try to call this weekend.
- At 7:44pm on June 15, 2012, Laurel said…
- How's it going?
- At 10:43am on April 20, 2012,
BOBBI said…
funny thing is mike im not on any pain pills at all.i refused all that stuff decided i want to meet my maker sober .so what i say to you is of sound mind scary huh?imagine what id probably say if i was doped up omg.have a great day mike
- At 9:55am on April 20, 2012,
goodmorning mike i dont think its energy mike im running on pure adrenaline my blood just gets to boiling when i get mad . especially when i see such complacency about the sick and poor.and for some reason we have alot of that these days.i wonder tho if i would be so adament about it if i wasnt sick myself.so thats what i think is so lacking anymore is empathy.or maybe its because of my work in nursing homes and saw how the different classes of people were treated.any way the people that know me just call me stubborn.i dont know is that a good or bad thing .my ex husband thought it was a bad thing but who cares what he thought have a great day mike .i am one of your biggest admirers for all that youve been thru and for your calm demeanor. .i ppreciate it because when i get upset your words to me have a calming affect. thank you for that bobbi
- At 5:27pm on April 16, 2012,
hi mike well i applied to a different hospital and transplant clinic this morning.they took all my info and are going to get my records from uwmadison.then they said theyll get back to me in probably a week and itll take another few weeks to get an appt.i feel good about this . the place is in milw. st lukes there affiliated with a dr whose doing the new hepc study .so i hope i qualify for the study.my mother also lives outside miwaukeeso all the way around its better than madison.i know they probably wont be as good as john hopkins or another big hospital .but then you never know its all a gamble.i will let you know how it goes .im glad i will be staying in the state so i can still go back and forth to my house and pets.its still a 4 hr drive but what are you going to do when you live in the sticks.talk to you later bobbi
- At 8:05pm on April 13, 2012,
hi mike well now im in a dilema.my coordinator told me to find out whose doing the hepc study groups with the new meds.so i did .gave her all the names phone nos. everything.i now got a reply back...it sounded like i was talking to a lawyer.i have to get all the medical specifics from these places.i said isnt that your job?well looks like im on my own she more or less read a legal document to me about how its not. why did she ask me to find these places if she wasnt going to help. i dont know the medical language to get all the specific details and terms from the different drs. on their study groups .she more or less said you stay with us and maybe get treatment when it becomes available here or go somewhere else for everything.i dont know now if i should just move on to a different transplant clinic and hospital altogether or stick with them and maybe in 7 mos get the new treatment.what would you do ?please give me your opinion.i think youve been thru alot of this medical politics yourself havent you ?thanx bobbi seeking advice
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