I don't believe in heaven or hell. I made peace with my family and friends and even went so far as to travel to see some of them. I made my will, trust and paid for my cremation. I do not want a painful death but I am not afraid of dying even…
Although I have not been through a transplant yet. I often think about life after death. The Dr.'s said that I do have the option to not go through the transplant and I may have about 10 yrs left without a transplant.
I am really not…
Hey Mike.....I felt and thought the same way as a mom when my daughter received her liver transplant almost 27 years ago.All those questions, not really having any answers, made me wonder every day. Kristy grew up and did all the things her…
Mike: Do not, I repeat, DO NOT, waste your precious time on these thoughts!!! Yes, there is life after death - not like what we know here on earth - much better. But, in my opinion, part of God's plan for each of us is exactly…
Whenever I feel weird I just say it is the drugs. I have never felt the same as I did before my operation. It is still hard to believe that I was really dying since I had no symptoms. I guess we all have bad or off days. Think of all the extra…
I walk about 2 miles or more almost every day. I try to go up and down hills. I used to get winded but I do much better now. I am 57 1/2. I am naturally a couch potato but I make myself walk. I was never really over weight. I lost 20 lbs in the last…
My energy came at about 7-12 months,but it was double lung and liver.even still its so good now I'm at 2 yrs/10 months.And so Blessed!.... OH I almost forgot early in during a PFT.He said to me Get a treadmill walk 20minutes a day, and next…
If you are not working, who cares if you sleep half a day? I hope you get to be at the energy level where you want to be. Congratulations on your transplant.
I have days I can just clean, shop, chat on the phone and run around all day and other days I can sleep over half the day. I never know what I am going to wake up to. They are still tweaking my meds and I am only at five months so am hoping it will…
I am 4yrs post liver tx and now following a spiritual path and living in the now! I have done many things and traveled paths never taken since I got a do over in life ! enjoying my grand children grow and life is good! I caught…
Donald has not been given his MELD score yet. i guess we will get that when we go to our initial visit with the transplant team on the 16th. we went to the store today and bought a digital recorder so we have something to take with us to the meetings. Like you said before we wont miss any info then and we can play back the tape for his family that lives near us and keep track of everything on the computer as well. Thanks again for the idea, it was a great one. :0)
what is acities? the only meds he is on right now is for his kidneys he has IGA NEPHRITIS. he is on bloodpressure meds to keep his nephritis under control not for his blood pressure. and he gets shots for anemia. he has pills for edemia incase he starts to retain water too.
I like your suggestion to bring along a tape recorder. i am going to look for one to take along with us for this visit to record as you say the conversations so we can play them for the family as well so that way if they have any questions about what we learned they can find out the same thing we were told as well. I guess right now we just have to wait for the 16th to arrive and go to the team meeting and find out what their plan of action for Donald will be. Thanks for your help.
Hi Mike. Thanks for the "welcome" We are new at this so there are alot of questions i have if you dont mind me asking you. My fiance just found out he has cirrhosis of the liver due to fatty tissue. We are still in shock about the whole thing and go to Hershey on Aug 16th for our initial visit with the transplant team. How long did you wait for your liver? What can we expect on this first visit and can you give us any suggestions as to what to ask the team as far as questions go ? Thanks for your help.
Hi Mike, Thanks for asking me to be friends. I've been told that University of Penn is one of the best. I'm so nervous about this whole situation. I want to get it over with, but at the same time, I want to keep my own heart as long as possible. However, I also want to get my life back. In the posts that I've read here, it sounds like everyone feels so much better post surgery. I think it is more the drugs, rejection, sickness that comes after surgery. I think this is what scares me the most. Any positive feedback is most welcome. I'm afraid but I'm trying to be strong and think positive. thanks Mike