"Thanks for the info, I'll keep my eye's open for anything like that and I'll ask my Dr next time I see him about the probablity of that happening to me. You know with that weight gain I had with the predisone, the Dr gave me Topamax…"
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Mel
- 59, Male
- Lawton, OK
- United States
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Ladies help me out.......
Started this discussion. Last reply by Mel Feb 7. 20 Replies 0 Likes
I had my heart transplant back in August of 2010, had a few probablems, but everything turned out fine. But thats not really why I'm writing this. I've been single for quite a while now primarly…Continue
Mel's Page
Latest Activity
Mel commented on Cathy's group 'Cellcept Friends'"What type of side effects are you having with cellcept.....predisone I normally blow up, but I have that under control...But so far I haven't had any problems with cellcept..."
John left a comment for Mel"Hi Mel
I am 4yrs out from heart transplant. I take 250mg Cellcept twice a day and 3 mg of prograf twice a day. The dose of predinsone appears to be relatively low --- I started at 60 mg/day post transplant and was total weaned off at the one…"
Mel commented on Cathy's group 'Cellcept Friends'"Well, I'm hoping to ween down on the cellcept and prograf after time. Maybe eventually get off predinsone. I'm thinking also it might be because our age difference to, there's ten years there. But I will ask my Dr. about the…"
Mel commented on Cathy's group 'Cellcept Friends'"I'm on 1000mg of cellcept twice a day, 5mg of prograf twice a day, and 2.5mg of predisone once a day. It will be two years on my heart transplant in August of this year. I'm surprised they took you off the predisone Steve, I was told I…"
Laurel replied to Mel's discussion 'Tanning...' in the group Transplant No-No's"I would not feel bad if the family never got back to me. It was good for me to write the letter.It made me grateful and humble.We are very lucky people.
"
Mel replied to Mel's discussion 'Tanning...' in the group Transplant No-No's" David, I believe I'd be fine not knowing who the donor was...my main thing is that I would like to let the family know how thankful I am of the gift of life I recieved from their family member. That and like you said, closeur for the…"
Mel replied to Mel's discussion 'Tanning...' in the group Transplant No-No's" You know Laurel, its funny you ask me that....I just talked to the Coordinator of Lifeshare, is what's its called here, when they try to put the donor family and recipient in contact. They sent me booklet on how to write a…"
Laurel replied to Mel's discussion 'Tanning...' in the group Transplant No-No's"Mel, I am glad that you are getting along. Have you tried to reach your donor's family? I wrote a letter to my transplant coordinator and she read it and sent it to UNOS. It has been about 6 weeks and I have not heard anything. It sure felt…"
Mel replied to Mel's discussion 'Tanning...' in the group Transplant No-No's" Please feel free to ask any questions you like....My new heart is doing great, it will be two years come August 7th. You know it was really strange cause when they came and got me I was in my room, they wheeled me into the…"
T. Sepulveda replied to Mel's discussion 'Tanning...' in the group Transplant No-No's"Oh thank you so much. Yes, the alternative is strange....lol. I even used a spray tan last summer, so she wouldn't feel weird. We just laughed. Thank you for taking a look at her video, and for your prayers. I know…"
Mel replied to Mel's discussion 'Tanning...' in the group Transplant No-No's" Hi Tani
Thanks for the insight....I use to be on 15mg of Prednisone, now I'm on 2.5mg. I use to be so blown up from that medication, I hared it. I use to tan all the time, you could say I was addicted, it took me a while to get…"
T. Sepulveda replied to Mel's discussion 'Tanning...' in the group Transplant No-No's"I would look into the side affects of Prednisone and being in the sun. My daughter is on 15 Mg of Prednisone and her doctor says to now allow her to be in the sun to long. Last summer she insisted on sitting out at a pool to get a little…"
Mel replied to MIKEY's discussion 'Who's on Cellcept' in the group Cellcept Friends" Hi Mike,
It will be two years on my heart transplant in August and I'm currently on 2000mg Cellcept a day and 11mg Prograf a day and 5mg of Prednisone a day. I'm hoping when I hit that two year mark they will cut that Cellcept…"
cthelite replied to Mel's discussion 'Tanning...' in the group Transplant No-No's"Considering the drugs you are on, your are at a significantly increased risk of skin cancer. Without serious sun protection (clothing, hat and SPF3000 to bare skin), you will gain additional medical issues. So, to answer your question; YES, sun…"
Profile Information
- Are you a member of http://TransplantBuddies.com ?
- Yes
- Where did you hear about Transplant Friends?
- Computer
- Which Organ(s) did you receive? If you are on the waiting list, please share.
- Heart
- How many years have you had your Transplant for?
- 1 year
- I am Interested in Transplant Friends because...
- Talking to other people who have been through the same experience has I have.
- Which Transplant Center has or will perform your life saving surgery?
- Integres Babtist Hospital Oklahoma City, OK
- How has transplantation changed your life? If Yes, please share.
- Yes it has, I have been given another chance to watch my grand kids grow into young adults and to watch my first grandson be born.
Comment Wall (4 comments)
- At 1:41pm on April 3, 2012, John said…
Hi Mel
I am 4yrs out from heart transplant. I take 250mg Cellcept twice a day and 3 mg of prograf twice a day. The dose of predinsone appears to be relatively low --- I started at 60 mg/day post transplant and was total weaned off at the one year mark. Wish the the best. Take care ................... John.
- At 7:05pm on September 27, 2011,
Steve said… Hi Mel,
They go through the neck except when they do a right and left cath. They have to go through the groin for that one. Biopsys aren't to bad. I am alternating my biopsys with AlloMap. I was taken off prednisone this month so next month I will have another biopsy to make sure I'm still good. My fourth grandchild was born February 2010. I never thought I would live long enough to see her first birthday. We did and I'm still going strong. Congratulations on the grandson.
- At 7:23pm on September 21, 2011, Steve said…
Hi Mel,
Welcome to Transplant Friends! Lots of good stuff here. I had my heart transplant July 4, 2010 at the Medical University of South Carolina in Charleston. Every thing is going great. I return in October for my 1year 3month check up. I hope you are doing well and good health.
- At 5:31pm on September 21, 2011,
Hostess Rise' said…
Hello Mel
Welcome to Transplant Friends:) Glad to have you join us here. We have a heart transplant group and you can find folks to talk to by clicking on Find Friends (top of websites). You can type in the search box under find friends heart and you will see a bunch of folks who appear. You can send them messages.
You can write to me with any questions,
be well
Rise'
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