thank you so much for saying everything you said. I find the hardest thing right now is the waiting and worrying that everything will go according to plan. My husband and I went to a seminar last Wed. in NYC about post transplant and I left…"
"Hi to all!
My name is Mary and I was told I have PF in November 2009. It was a total shock to me and my family. It has been a scary ride so far... I live in upstate New York where I have not met anyone with this disease and that to me is the hardest…"