"Hi Mark
A day early but wanted to wish you a beautiful Happy Birthday
Thank you for all you do for so many people here. Your Words of Wisdom travel far and wide.
"
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Mark
- 65, Male
- Pearland, TX
- United States
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Did you know?
Started this discussion. Last reply by maverick May 11. 17 Replies 5 Likes
Total living transplant recipients in the U.S. = 183,222Heart - 19,308Heart/Lung - 244Intestine - 678Kidney - 109,500Kidney/Pancreas - 7,225Liver - 42,286Lung - 6,731Pancreas after Kidney -…Continue
Tags: demographics, trivia, figures, facts, statistics
Mark's Page
Latest Activity
Mark replied to Mark's discussion 'Gluten Intolerance and Liver Transplants' in the group Liver Transplants"John, your Question 2 gave me a chuckle. Throughout the period of my illness I have been in the hospital about 7 times and each time their GF (+ low sodium) menu was all I was allowed to eat from. My appetite has always been good and it usually…"
"Question 1)...Don't you know Carbs are good for you..;-)
Question 2). I don't think the transplant doctors are going to consider a Gluten free diet, our so called nutritional experts are still preaching 40-50 even 60% carb diet's. I…"
A discussion started by Mark was featuredGluten Intolerance and Liver Transplants
There are many, many recent articles about wheat gluten intolerance and related health problems, including potential liver damage. More and more people are adopting gluten free diets with immediate positive impact to their health. I have several questions for possible discussion:1. Why does the mainstream medical establishment continue to marginalize this as a causal factor in many internal diseases? Does your treatment team take this condition seriously?2. Given that symptoms are not always present, do liver transplant recipients that are NCGS (Non-Celiac Gluten Sensitive) continue to be at risk for liver damage if a strict gluten free diet is not followed?I have been NCGS since symptoms were diagnosed 15 years ago. Do any other pre or post tx patients have experience with this condition and the potential consequences?…See More
Hostess Risé replied to Mark's discussion 'Gluten Intolerance and Liver Transplants' in the group Liver Transplants"What an amazing thread! GREAT topic!"
Mark commented on Bobbiejo's photo
The white dogwood and me: 2013
"Looking good Bobbiejo :) You really do look like the girl in the white dress!"
Mark replied to Kt*'s discussion 'Kidney Transplant and tobacco use.'"Well Kt, you certainly stirred up a hornet's nest with this one :) As an ex-smoker I have to agree with all of these comments - smoking is antithetical with organ transplants, if for no other reason it is a carcinogen. Add immunosuppressants…"
Mark replied to Sami Hill's discussion 'Mental Brakedown...How can i clear my mind???'"Excellent advice from Kt*. It is good that you have your friends ... hold them and your family close."
Mark replied to Lisset's discussion 'Post liver transplant problems'"The stretching exercises must be done correctly to have a beneficial effect and avoid injury. Our resident fitness expert, Cisco, might give you some pointers :)"
Mark replied to Lisset's discussion 'Post liver transplant problems'"Hello Lisset, welcome to TF. As you probably know, back pain can be caused by a variety of things. About 2 months after my liver transplant, I began a regular walking program and had the back pain that you describe. After 15 minutes, my back…"
Mark commented on Hostess Risé's blog post 'Happy Mother's Day'"When I saw this, it reminded me of my mother. She was a matriarch who believed these words.
Happy Mothers Day!"
Mark commented on Lawrence's blog post 'Hostess Risé Blesses Us'"Lawrence, the greatest challenge was making the choice to live. The dying part was surprisingly easy to accept. God and my caregivers dragged me to the finish line :)"
Mark replied to Kayla's discussion 'Letter' in the group Chat Live on Transplant Friends.com"Kayla, I covered these topics in the letter I wrote after a year post tx:
1. Who I am - age, gender, mother, father, grandma, etc. (no names, dates)
2. Health circumstances - why I needed an organ transplant (specify which organ(s) you received)
3.…"
Mark joined Hostess Risé's group
Chat Live on Transplant Friends.com
Our open chat meets Saturday and Sunday. at 3:00 pm eastern standard time right here on TransplantFriends.com See More
maverick replied to Mark's discussion 'Did you know?'"Yes there are many less of us than the 'normal' population does. In 1999. the year I had my liver transplant only a little over 8000 liver transplants were preformed in that year. No one I met there is still alive AFAIK.
Thank you for…"
Profile Information
- Were you a member of our Forum on http://TransplantBuddies.com ?
- Yes
- Where did you hear about Transplant Friends?
- internet link
- Are You Male or Female?
- Male
- Share - which illness lead up to you needing a transplant?
- I was diagnosed with end stage liver disease (cirrhosis) in May, 2010 and hepatocellular carcinoma (liver cancer) in June, 2010
- Which Organ(s) did you receive? If you are on the waiting list, please share.
- Liver
- Drugs, vitamins, favorite foods
- PROGRAF 1mg
- How many years have you had your Transplant for?
- 1.5 years. It was done on July 26, 2011.
- I am Interested in Transplant Friends because...
- My transplant journey has just begun and it's nice to have company along the way. The stories and reflections shared by the people here touch such a broad array of emotions. Some are happy, some are humorous, some are very sad. Like I said, it is nice to have company along the way :)
- Which Transplant Center has or will perform your life saving surgery?
- Methodist Transplant Center, The Methodist Hospital, Houston, TX. Drs. Galati, Ghobrial and Gordon. I will never forget your names!!
- Share how your transplant experience changed your life?
- The post surgery phase was dicey at times but after 6 months I began to realize that my health was REALLY getting better. With exercize, good nutrition and a lot of luck I have celebrated my first year out, feeling very normal and well. Spiritual recovery is on a different track but also progressing :)
- Share whatever information you want us to know about you
- Oh, the comfort, the inexpressible comfort
of feeling safe with a person;
having neither to weigh thoughts nor measure words,
but to pour them all out, just as they are,
chaff and grain together,
knowing that a faithful hand will take and sift them,
keep what is worth keeping, and then,
with a breath of kindness, blow the rest away.
- George Eliot
- Share your interests and hobbies
- I love spending time with my extended family, especially my two sons, their wives and my five grandchildren. Outdoor activities are always enjoyable to me especially trips to the beach or forest with my trusty ol' jeep. In my off time I relax with a book or my ongoing genealogical research (hobby).
Mark's Photos
Comment Wall (19 comments)
- At 5:49pm on May 20, 2013, Hostess Risé said…
Hi Mark
A day early but wanted to wish you a beautiful Happy Birthday
Thank you for all you do for so many people here. Your Words of Wisdom travel far and wide.
- At 3:33pm on February 28, 2013,
Rachel said… Thanks Mark
Feeling much better today. Vented to a couple more people and had a laugh, still feeling a little sad especially if I think about her so I'm trying not to. :)
- At 3:41pm on January 31, 2013, Tracy said…
Great information. Yes, my polycystic disease (PLD) is very advanced, and rare. The current volume of my liver is just over 7000 cc's. So, that is the equivalant of 3 1/2 big bottles of soda (2 liter type). So, there is an over crowding problem! No room for anything else in my body, like my stomach, intestines, lungs, etc. My Meld number is a 20 right now, and that is where I started. This is all still new to me. I just learned I even had PLD in August. I will apply to UNOS for more points in early March, and should get 3 more. I should get 3 points every 3 months. My blood work still looks very good, it truly is a space problem. Malnutrition is the biggest hurdle for me right now. I have lost 30lbs in the last few months. I am disappointed that you were all the way to a 32 before you got the call. I was hoping with your proximity to the hospital it would be closer to 27-28. I really hope that I will get to celebrate my 40th birthday in July with a new liver. We shall see. I will see what other questions pop up. Thanks again. Tracy
- At 11:19am on January 31, 2013, Tracy said…
Thank you so much, for replying. I am pretty tech savvy, but am still getting used to how this site works. Yes, Liver disease is a bit inconvenient for me. With 4 elementary school kids, and 2 with special needs, oh ya, and a full time job. Yikes! Thank goodness for a good support system. I guess my questions are probably odd...I wondered what your original MELD was? How quickly did you move up the list? How did your center let you know that you were getting close, or did they? How much lead time did you get. How was the immediate post op? I am a bit afraid of being on a ventilator. Were you in a lot of pain before surgery (I am), how about after? Sorry, That is probably enough for now. I hope that all isn't too overwhelming. Thank you again!
Tracy
- At 5:57pm on January 22, 2013, Rachel said…
I took a lesson from the coach, haha. They're probably not going to the pro bowl :'( Sorry, I'm still enjoying it. Keep watching the sports channel where they keep repeating it. Priceless!! lol
- At 12:42pm on January 21, 2013, Rachel said…
Hello Mark
Enjoyed the loss of the patriots yesterday. :D
- At 11:29am on January 5, 2013,
Duane Kellar said…
Thank u Mark on both comments, I was doing a tune up on a car i was driving at the time and had just start to change dist. cap. When my bro came out to tell me i lost all of what i was doing trying to accepte what had happen. it took him and me both 2 days for find the right firing order to get the car back on the road. tc
- At 3:05pm on November 29, 2012, Harvey said…
Thanks Mark
- At 9:02pm on November 22, 2012, Rachel said…
Yes, I was laughing at the looks from the lion players/fans and now I have that same look :( (karma-boo hoo) I can still pray for a miracle :D. I'm sweating don't know if from turkey or cowboys :D. later.
- At 5:45pm on November 22, 2012, Rachel said…
Mark
Just had to log on to tell you that was some game the Texans just played in OT. I hope the boys play well today :) Later.
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