"John, your Question 2 gave me a chuckle. Throughout the period of my illness I have been in the hospital about 7 times and each time their GF (+ low sodium) menu was all I was allowed to eat from. My appetite has always been good and it usually…"
"Question 1)...Don't you know Carbs are good for you..;-)
Question 2). I don't think the transplant doctors are going to consider a Gluten free diet, our so called nutritional experts are still preaching 40-50 even 60% carb diet's. I…"
There are many, many recent articles about wheat gluten intolerance and related health problems, including potential liver damage. More and more people are adopting gluten free diets with immediate positive impact to their health. I have several questions for possible discussion:1. Why does the mainstream medical establishment continue to marginalize this as a causal factor in many internal diseases? Does your treatment team take this condition seriously?2. Given that symptoms are not always present, do liver transplant recipients that are NCGS (Non-Celiac Gluten Sensitive) continue to be at risk for liver damage if a strict gluten free diet is not followed?I have been NCGS since symptoms were diagnosed 15 years ago. Do any other pre or post tx patients have experience with this condition and the potential consequences?…See More
"Well Kt, you certainly stirred up a hornet's nest with this one :) As an ex-smoker I have to agree with all of these comments - smoking is antithetical with organ transplants, if for no other reason it is a carcinogen. Add immunosuppressants…"
"Hello Lisset, welcome to TF. As you probably know, back pain can be caused by a variety of things. About 2 months after my liver transplant, I began a regular walking program and had the back pain that you describe. After 15 minutes, my back…"
"Kayla, I covered these topics in the letter I wrote after a year post tx:
1. Who I am - age, gender, mother, father, grandma, etc. (no names, dates)
2. Health circumstances - why I needed an organ transplant (specify which organ(s) you received)
"Yes there are many less of us than the 'normal' population does. In 1999. the year I had my liver transplant only a little over 8000 liver transplants were preformed in that year. No one I met there is still alive AFAIK.
Thank you for…"
Were you a member of our Forum on http://TransplantBuddies.com ?
Where did you hear about Transplant Friends?
Are You Male or Female?
Share - which illness lead up to you needing a transplant?
I was diagnosed with end stage liver disease (cirrhosis) in May, 2010 and hepatocellular carcinoma (liver cancer) in June, 2010
Which Organ(s) did you receive? If you are on the waiting list, please share.
Drugs, vitamins, favorite foods
How many years have you had your Transplant for?
1.5 years. It was done on July 26, 2011.
I am Interested in Transplant Friends because...
My transplant journey has just begun and it's nice to have company along the way. The stories and reflections shared by the people here touch such a broad array of emotions. Some are happy, some are humorous, some are very sad. Like I said, it is nice to have company along the way :)
Which Transplant Center has or will perform your life saving surgery?
Methodist Transplant Center, The Methodist Hospital, Houston, TX. Drs. Galati, Ghobrial and Gordon. I will never forget your names!!
Share how your transplant experience changed your life?
The post surgery phase was dicey at times but after 6 months I began to realize that my health was REALLY getting better. With exercize, good nutrition and a lot of luck I have celebrated my first year out, feeling very normal and well. Spiritual recovery is on a different track but also progressing :)
Share whatever information you want us to know about you
Oh, the comfort, the inexpressible comfort
of feeling safe with a person;
having neither to weigh thoughts nor measure words,
but to pour them all out, just as they are,
chaff and grain together,
knowing that a faithful hand will take and sift them,
keep what is worth keeping, and then,
with a breath of kindness, blow the rest away.
- George Eliot
Share your interests and hobbies
I love spending time with my extended family, especially my two sons, their wives and my five grandchildren. Outdoor activities are always enjoyable to me especially trips to the beach or forest with my trusty ol' jeep. In my off time I relax with a book or my ongoing genealogical research (hobby).
Great information. Yes, my polycystic disease (PLD) is very advanced, and rare. The current volume of my liver is just over 7000 cc's. So, that is the equivalant of 3 1/2 big bottles of soda (2 liter type). So, there is an over crowding problem! No room for anything else in my body, like my stomach, intestines, lungs, etc. My Meld number is a 20 right now, and that is where I started. This is all still new to me. I just learned I even had PLD in August. I will apply to UNOS for more points in early March, and should get 3 more. I should get 3 points every 3 months. My blood work still looks very good, it truly is a space problem. Malnutrition is the biggest hurdle for me right now. I have lost 30lbs in the last few months. I am disappointed that you were all the way to a 32 before you got the call. I was hoping with your proximity to the hospital it would be closer to 27-28. I really hope that I will get to celebrate my 40th birthday in July with a new liver. We shall see. I will see what other questions pop up. Thanks again. Tracy
Thank you so much, for replying. I am pretty tech savvy, but am still getting used to how this site works. Yes, Liver disease is a bit inconvenient for me. With 4 elementary school kids, and 2 with special needs, oh ya, and a full time job. Yikes! Thank goodness for a good support system. I guess my questions are probably odd...I wondered what your original MELD was? How quickly did you move up the list? How did your center let you know that you were getting close, or did they? How much lead time did you get. How was the immediate post op? I am a bit afraid of being on a ventilator. Were you in a lot of pain before surgery (I am), how about after? Sorry, That is probably enough for now. I hope that all isn't too overwhelming. Thank you again!
Thank u Mark on both comments, I was doing a tune up on a car i was driving at the time and had just start to change dist. cap. When my bro came out to tell me i lost all of what i was doing trying to accepte what had happen. it took him and me both 2 days for find the right firing order to get the car back on the road. tc
Yes, I was laughing at the looks from the lion players/fans and now I have that same look :( (karma-boo hoo) I can still pray for a miracle :D. I'm sweating don't know if from turkey or cowboys :D. later.