Ltl Lof's Friends

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  • Kathryn Flynn
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Ltl Lof's Page

Latest Activity

Ltl Lof replied to Eric's discussion 'St. Joseph's Hospital-Phoenix, AZ.' in the group Transplant Centers Connect
"Hi Eric Hanson! Deb Lofgreen here, and as you well know, I also had a double lung TX at St Joe's - in Nov 2011. If you look through the list of centers, you'll see that I signed St Joe's in to this program back in April. I used Heart…"
Jul 22, 2013
Hostess Risé left a comment for Ltl Lof
"Happy Birthday to you"
May 18, 2013
David left a comment for Ltl Lof
"" Happy Birthday Ltl Lof ! ""
May 18, 2013
Ltl Lof added a discussion to the group Tx Centers Connect
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Heart & Lung Institute, St; Joseph's Medical Center, Phoenix AZ

Received my double lung gift on Nov 15, 2011Number 103 - and they have now done about 90 more lung transplant's in less that 1.5 years!See More
Apr 10, 2013
Ltl Lof joined Hostess Risé's group
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Tx Centers Connect

The purpose for this group is for our members to share the name of their transplant center and possibly to connect with friends from the same center. Please tell your Transplant Center about us:)See More
Apr 10, 2013
Ltl Lof joined Hostess Risé's group
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Better Labs

Do you know your numbers? Has diet or medication help to lower your lab numbers? See More
Mar 3, 2013
Ltl Lof commented on Hostess Risé's group 'Transplant No-No's'
"OH, just remembered, the Priest would also bring communion to Mom at home, if she requested, or at the church during the week. That way you could have communion and be sure to be the only one using the chalice.  I know it is not the…"
Jul 24, 2012
Ltl Lof commented on Hostess Risé's group 'Transplant No-No's'
"I would be more concerned about having grape juice than wine. At least the wine has alcohol in it that can kill some germs on the chalice. I'm sure if you talked with your priest, they could arrange for you to have your own cup and to take…"
Jul 24, 2012
Ltl Lof replied to Steven's discussion 'waiting' in the group Lung(s) Transplants
"Steven - I would highly recommend you look for a local lung transplant group in your area, whether it is a formal meeting sponsored by  your transplant team - or if you just collect a few you meet in rehab.  I, too, have a large family and…"
Jun 28, 2012
Kathryn Flynn and Ltl Lof are now friends
May 20, 2012
DebbieK left a comment for Ltl Lof
May 18, 2012
Cisco left a comment for Ltl Lof
"Happy birthday Ltl Lof! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 pm CDT. Hope to see you there!"
May 18, 2012
David left a comment for Ltl Lof
" Happy Birthday Ltl Lof ! "
May 18, 2012
Ltl Lof replied to Hostess Risé's discussion 'Hair Talk' in the group Girl Talk
"And I am hoping for curly instead of straight - just for a change of pace (grins).  "
May 1, 2012
Ltl Lof replied to Hostess Risé's discussion 'Hair Talk' in the group Girl Talk
"I've always had very fine hair - the kind that tangles if a butterfly flys by.  I've also been a natural blond my whole life - until after TX.  Now I have much darker hair - even eyebrows and public hair.  What a hoot. Who…"
May 1, 2012
Ltl Lof commented on dr than zaw's blog post 'avoid infection'
"Watch out if you get Vfend as a replacement for Itraconazole - if you are taking Prograf (tacromilis) or a statin drug.  It doubles (or more) the effects of tacolimus (prograf) and causes lots of side effects with statins. My experience was 2x…"
Apr 28, 2012

Profile Information

Were you a member of our Forum on http://TransplantBuddies.com ?
Yes
Where did you hear about Transplant Friends?
friend referal
Are You Male or Female?
Female
Share - which illness led up to you needing a transplant?
bronchetis/COPD
Which Organ(s) did you receive? If you are on the waiting list, please share.
Double lung
Drugs, vitamins, favorite foods
Prograf, Cellcept, prednisone, Vfend,
How many years have you had your Transplant for?
5 months
I am Interested in Transplant Friends because...
It is always good to share and we learn so much from each other!
Which Transplant Center has or will perform your life saving surgery?
Heart and Lung Institute, St. Joseph's Hospital, Phoenix
Share how your transplant experience changed your life?
Freedom - can now drive, shop, visit friends, plan a holiday with family. Even a little travel and I am only 5 months out at this point! Bigger and better to come.

Comment Wall (9 comments)

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At 11:23am on May 18, 2013, Hostess Risé said…

Happy Birthday to you

At 7:38am on May 18, 2013, David said…

" Happy Birthday Ltl Lof ! "

At 7:57pm on May 18, 2012, DebbieK said…

At 8:24am on May 18, 2012, Cisco said…

Happy birthday Ltl Lof! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 pm CDT. Hope to see you there!

At 7:18am on May 18, 2012, David said…

 Happy Birthday Ltl Lof ! 

At 10:19pm on December 17, 2011, DebbieK said…

Congratulations LTL LOF! So happy and excited for you. Just remember your reflexes are slow if you are taking pain meds so be careful driving!

At 10:16am on December 15, 2011, Gilly said…

Great to hear, i was the same way, but beware UPMC advised i waited till 8 weeks just incase the worst happened on the road, said an air bag would be bad or a sudden jolt, so i waited, i also had a little trouble with upper body strenght opening the door was easy but closing it was another story so practice in the driveway!!!They also suggested i had my air filter changed in the car!!!!

I am one year and 4 months and just was at UPMC for tests and bronc and all was good again, so eat the good stuff, exercise and stay away from crowds. Keep up the good work. But most of all stay safe walk dont run.

Gilly

At 11:43pm on December 14, 2011, Steve said…
Wow, I am so impressed, and so happy for you!
You are quite impressive! 4 weeks out and ready to drive. I just can't believe how differently your experience was from mine. I guess there are so many variables that influence outcomes.

At any rate, keep up the good work and congratulations on your terrific progress!

Best wishes,

Steve D
At 5:34am on October 4, 2011, Hostess Risé said…

I am so glad that you joined us.  Join a group, post to our forum or create a blog. Share more about yourself when you have the time.  If you have any questions about this website, please email me transplantfriends@gmail.com or click on our instructions page top left of the home page.

 

 

Be well,

Rise'

 
 
 

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