Lola's Page

Latest Activity

Kelley and Lola are now friends
Dec 20, 2013
Judy L. left a comment for Lola
"Hi Lola, Love your name and the song L.O.L.A. Lola.....I've been trying to find "pre-lung Friends" this afternoon. And here you are. I am also in a program (at Columbia/New York Presbyterian) but I'm not quite sick enough to be…"
Oct 31, 2013
Lola commented on Jay Lackritz's group 'Insurance'
"Jay, I am not on prednisone either. My pulmonary MD has not helped with the weight situation either. He just tells me stories of other pts who have succeeded with more weight loss than what I require. I weigh about 195 and Duke wants me to be below…"
Oct 20, 2013
Lola commented on Jay Lackritz's group 'Insurance'
"Hi Jay, no I do not retain CO2. Yes, I use 2 liquid tanks at PR, each on 15 liters. 1 with oximizer, and the other tank hooked to. Non-rebreather mask which I wear on top of the other cannula. If I did not have the liquid, then I wouldn't be…"
Oct 20, 2013
Lola commented on Jay Lackritz's group 'Insurance'
"Ok I've been on O2 for 18 yrs and I understand that Lincare or any O2 company accepting Medicare gets paid the first 36 mos. and must continue to provide maintenance and supplies for up to 5 yrs. per contract. There is a "cap" on…"
Oct 19, 2013
Lola joined Jay Lackritz's group
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Insurance

Discussion on all insurance topics. Medicare, Medicaid, HMO's, Work insurance, Health Reform, and so on.Please post comments, issues, ask questions, whatever pleases or irks you.See More
Oct 19, 2013
Lola liked james's discussion Lung Transplant Friends
May 27, 2013
Lola replied to jon's discussion 'lung transplant questions' in the group Lung(s) Transplants
"Very informative information. Thanks!"
May 27, 2013
barb left a comment for Lola
"Hi Lola. How do you like the rehab"
May 14, 2013
Lola and barb are now friends
May 13, 2013
Rita left a comment for Lola
"Lol, Happy Birthday, hoping all your birthday wishes come true."
Mar 15, 2013
Cisco left a comment for Lola
"Happy birthday Lola! Have a great day! You should join us for chat on Saturday, Sunday and Monday starting at 3 pm eastern/ 2 pm central time. Hope to see you there!"
Mar 15, 2013
David left a comment for Lola
" Happy Birthday Lola ! "
Mar 15, 2013
Vicky left a comment for Lola
"hI Lola, lovely to meet you."
Jul 16, 2012
Lola updated their profile
Jun 24, 2012
Lola left a comment for Susan Kline
"Oh! Now I see."
Jun 24, 2012

Profile Information

Were you a member of our Forum on http://TransplantBuddies.com ?
Yes
Where did you hear about Transplant Friends?
online
Are You Male or Female?
Female
Share - which illness led up to you needing a transplant?
Idiopathic pulmonary fibrosis
Which Organ(s) did you receive? If you are on the waiting list, please share.
Not on the list yet...Will need 2 lungs
How many years have you had your Transplant for?
Not yet
I am Interested in Transplant Friends because...
Planning a double lund transplant
Which Transplant Center has or will perform your life saving surgery?
Duke University, NC
Share how your transplant experience changed your life?
Hopefully for the better!
What Part of The World Do you Live? Feel free to share city, state, country
Asheville, NC

Comment Wall (19 comments)

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At 4:25pm on October 31, 2013, Judy L. said…
Hi Lola,
Love your name and the song L.O.L.A. Lola.....I've been trying to find "pre-lung Friends" this afternoon. And here you are. I am also in a program (at Columbia/New York Presbyterian) but I'm not quite sick enough to be added to the list. I have ILD hypersensitivy pneumonitis. I've been on O2 about 18 months now and lots of other meds as needed. And just to stay ahead of things, I'm going to put my house on the market next week. My plan is to move in with my daughter...she says it's ok, I'm feeling like I need to give up on trying to maintain my house on my own, but Catholic girl guilt makes me feel like I'm intruding in her life.

I read one of your previous posts about weight issues. Don't know if you've had success at this point, but I gained about 30 pounds after nearly a year of 60mg Prednisone daily. My lung doc at Yale gave me the key to loosing. It worked for me. It is to cut out salt, fat, and sugar...all at the same time. It really wasn't bad after three or four days. It changed my entire shopping experience, but everything except my lungs are very healthy now. It's the combination of these three things that makes it successful. So the diet is fresh or frozen fruits, vegetables, yogurt, small portions of meat or other protein. I am on approximately 1000 calories a day, but only 5'2". I started with Healthy Choice dinners about 220 or so calories to get myself used to the portion sizes. It started coming off quickly. If I don't have food in the house I don't eat it or crave it anymore.

Happy Halloween,
Judy
At 3:38pm on May 14, 2013, barb said…

Hi Lola. How do you like the rehab

At 2:40pm on March 15, 2013, Rita said…

Lol, Happy Birthday, hoping all your birthday wishes come true.

At 9:01am on March 15, 2013, Cisco said…

Happy birthday Lola! Have a great day! You should join us for chat on Saturday, Sunday and Monday starting at 3 pm eastern/ 2 pm central time. Hope to see you there!

At 7:46am on March 15, 2013, David said…

 Happy Birthday Lola ! 

At 11:35am on July 16, 2012, Vicky said…

hI Lola, lovely to meet you.

At 9:41pm on June 24, 2012, Susan Kline said…

I am an Alpha-1 Patient looking at having a double lung transplant I hope, hard to explain what I have its better to look it up. 

At 2:39pm on June 24, 2012, Susan Kline said…

Thanks for the add on your friends list, hope things are well

At 9:25am on April 8, 2012, Kathryn Flynn said…

Hi Lola. I see you are a Duke patient. Do you know about the small group we have on FB. Would you like to be added.

Kathryn

At 8:10am on March 15, 2012, Cisco said…

Happy birthday Lola! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 p.m. CDT. Hope to see you there!

 
 
 

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