Kristy Female Mokena, IL United States: Like

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Kristy's Groups

Neoral-Cyclosporine

86 members
38 Comments 14 Likes
Myfortic Friends

67 members
34 Comments 11 Likes

Prograf

295 members
124 Comments 40 Likes
Kidney-Pancreas

70 members
15 Comments 4 Likes

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Kristy's Page

Latest Activity

Tulip replied to Kristy's discussion 'What is an average "normal" for Prograf/TAC levels?' in the group Prograf

"my transplant clinic switched everyone to time released Advagraf rather than generic prograf in case of issues with it"

May 9

Tulip replied to Kristy's discussion 'What is an average "normal" for Prograf/TAC levels?' in the group Prograf

"I am taking this new version too - Advagraf - it is tacrolimus in a time released form - taken once in the morning, I find it easier on my system at least in terms of how I feel - my skin is less irritated. "

May 9

Bigger replied to Kristy's discussion 'What is an average "normal" for Prograf/TAC levels?' in the group Prograf

"I had Liver tx 26 months ago and had numerous med adjustments during first 5-6 months following. I've been on a steady level for 18 months now of 2mg twice a day using a generic. A commonly used generic is Tacrolimus for many people, which has…"

May 8

Shirley replied to Kristy's discussion 'What is an average "normal" for Prograf/TAC levels?' in the group Prograf

"Have you been on the brand name prograf since your transplant. I had a lung transplant 4 yrs ago and I am on 2.5 in the am an 2 in the pm. I had to get a refill this week and the transplant team is saying it is ok to use the generic prograf…"

May 2

Shirley liked Kristy's discussion What is an average "normal" for Prograf/TAC levels?

May 2

Shirley replied to Kristy's discussion 'What is an average "normal" for Prograf/TAC levels?' in the group Prograf

"8-10"

May 2

Sara Nagle replied to Kristy's discussion 'What is an average "normal" for Prograf/TAC levels?' in the group Prograf

"I've only been on Prograf for almost two months but my doctor said that he wants my level between 6 and 12"

Apr 22

Carla replied to Kristy's discussion 'What is an average "normal" for Prograf/TAC levels?' in the group Prograf

"I'm sure the transplant nephrologist is concerned about creatinine levels. Your level may not be at a worry stage. My nephrologist tells me that the high number of 6 is the level of dialysis. I jump over the line at 2…"

Apr 22

james replied to Kristy's discussion 'What is an average "normal" for Prograf/TAC levels?' in the group Prograf

"As a lung recipient my transplant team keep my tac level between 8 & 12, so I am taking 4mg in the AM and 3mg in the PM. I am 6+ years out, so I am giving them blood every 2 months or so. The side effects? I take 40+ pills a day, so to say…"

Apr 14

Carolyn replied to Kristy's discussion 'What is an average "normal" for Prograf/TAC levels?' in the group Prograf

"This would be very convenient and probably safer to have less peaks and troughs in blood levels. Looking forward to more info from you!"

Apr 13

JP replied to Kristy's discussion 'What is an average "normal" for Prograf/TAC levels?' in the group Prograf

"My doc has provided a new script for Prograf/Tac. Apparently the usual tablet causes spikes in tac levels. High at first then grasully decling. The new Tac derivative causes levels to stay at much steadier ( and higher) rate throughout teh whole…"

Apr 12

Luce replied to Kristy's discussion 'What is an average "normal" for Prograf/TAC levels?' in the group Prograf

"It depends on your immune status, from low levels on. Mine goes up and down like crazy."

Mar 14

james replied to Kristy's discussion 'What is an average "normal" for Prograf/TAC levels?' in the group Prograf

"Jessi hope you are doing well, I just saw you were experience rejection of your lungs in 2012, How are you doing? james"

Mar 12

Bigger replied to Kristy's discussion 'What is an average "normal" for Prograf/TAC levels?' in the group Prograf

"Hi Tulip.. Remember the typical Tac range is 5-15 so you're not doing bad it would seem. Also other drugs, immunos can affect the dry, itchy skin too."

Mar 11

Bigger replied to Kristy's discussion 'What is an average "normal" for Prograf/TAC levels?' in the group Prograf

"Mr. T your comments are right on...every patient is different. Everyone's individual health and fitness has a bearing on how various immunos are accepted/rejected by them. Where their Tac levels are quite dependant on diet, other drugs, time…"

Mar 11

Mr. T replied to Kristy's discussion 'What is an average "normal" for Prograf/TAC levels?' in the group Prograf

"Every patient is different, every Neph has different procedures. For my personal health, at the beggining of my tx, my Neph had me on higher levels with a step down process. After 8 months, my Tacro range is now at 4-8. I currently take 2mg in…"

Mar 11

Profile Information

Were you a member of our Forum on http://TransplantBuddies.com ?: Yes

Where did you hear about Transplant Friends?: on yahoo forum

Are You Male or Female?: Female

Share - which illness lead up to you needing a transplant?: 21 years of uncontrollable diabetes led me to a pancreastransplant

Which Organ(s) did you receive? If you are on the waiting list, please share.: pancreas only

Drugs, vitamins, favorite foods: prednisone
myfortic]
prograff
bactrim
valcyte

How many years have you had your Transplant for?: 9 weeks!

I am Interested in Transplant Friends because...: I have questions

Which Transplant Center has or will perform your life saving surgery?: University of Chicago

Share how your transplant experience changed your life?: Some days it has been the best decision ever. . . . other days I wonder what the hell I did and if I traded one disease for a lunchbox of pills and nasty side effects
!

Kristy's Blog

HELP!!!! I will be losing my insurance!!

Posted on April 28, 2012 at 6:25pm 2 Comments 0 Likes

Hey all - I need some info/advice if you don't mind. I am not quite 6 months post pancreas transplant, and will be losing my health insurance more than likely. I am likely ending up in divorce court soon (Gee, thanks for your love and suppost during the transplant and afterwards, jerk, lol) ANYWAY, he carries my health insurance, and I do not have insurance offered theough my job. I know when I was deemed "diabetic", I had to go theoughthe state of Illinois and use their ICHIP (Illinois…

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What happened to pancreas transplant group?

Posted on March 10, 2012 at 8:31pm 2 Comments 0 Likes

Hey all -

I went to post a discussion to the pancreas transplant goup/ I noiced it said pancreas-kideny, which it did not used to - no biggie. When I clicked on the post discussion, it said this group did not exist/ Hmmmfff.... Where did it go? Lol, since I don't really know what other group to post this to, I will ask here. I have been through heck with transplant meds and side effects. Now that my blood pressure is nice and high too, they put me on Norvasc as well. Well, I…

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Curiosity got the best of me. . . now I'm just sad. . .

Posted on January 15, 2012 at 8:56pm 0 Comments 0 Likes

I was at my niece's christening today, when my sister tells me she is pretty sure that she knows the identity of my organ donor. Up to this point, (its been 10 weeks today), I haven;t given it too much thought. I wondered, but never dwelled. I intended on sending a letter to the family through Gift of Hope, when I felt ready and found the right words. Well, when she told me she was fairly certain, my curiosity got the best of me, I googled the information. All I had known…

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Is Prednisone the devil in disguise???

Posted on January 13, 2012 at 8:24pm 2 Comments 0 Likes

New to transplant friends and 9 weeks new to a pancreas transplant. After battling some serious medication side effects, it seems we have everything right but the prednisone. It's making me crazy. Outside of the mood swings, and my now round face, I have insomnia and hand tremors something fierce/ I was sent home on a split dose of 30 mg daily. That was down to 10 mg daily in a split dose until I spiked a fever they couldn't find a reason for. . . .. they increased me to 20 mg daily in…

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At 8:53pm on January 14, 2013, Duane Kellar said…: Happy birthday Kristy! And many moreHave a great day! . You should join us for chat on Saturdays and Sundays starting at 3 pm eastern/ 2 pm central time. Hope to see you there!"

At 9:50am on January 14, 2013, Cisco said…: Happy birthday Kristy! Have a great day! You should join us for chat on Saturdays and Sundays starting at 3 pm eastern/ 2 pm central time. Hope to see you there!

At 7:56am on January 14, 2013, David said…: Happy Birthday Kristy !

At 2:42pm on March 21, 2012, Herbert said…: Hey Kristy all thanks goes to you for being strong enough to realize that we all need be more thankful. I struggled a lot in my life, besides health issues, and if you go back and read some of my stuff you will shall see just how "in the funk" I was. Bless your heart for dealing with the problems and not losing faith, the problems in this life are temporary and hopefully you can find more inspiration along the way.

At 1:18pm on January 20, 2012, Hostess Risé said…: Hi Kristy

Welcome and happy birthday

At 6:29am on January 14, 2012, David said…: Happy Birthday Kristy !!

At 12:44pm on January 13, 2012, Cisco said…: I guess you have a birthday coming up! I want to wish you a happy one for tomorrow. I am Gregg and I help to run chat on Saturdays and Sundays. I would like tio invite you to join us and see what we are all about, if you are so inclined. Have a great day!