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diane replied to Judy's discussion 'Home again, home again, jiggity jig' in the group LOL with your BuddiesPosted on May 2, 2013 at 11:17am 4 Comments 2 Likes
I am listed at Tampa General for almost 15 months now. I need two lungs and am type B +
They never thought I'd wait this long nor did I. I am practically helpless. The biggest thing I do every day is shower and then have to sit for a while…
ContinuePosted on April 5, 2012 at 11:01am 7 Comments 1 Like
My transplant coordinator said I can't drink green tea with the anti rejection meds. Does anyone know about this? I don't drink hot tea but Arizona diet tea with Splenda, green tea and ginseng. I drink it so I can get in all of my liquids every day. I am pre transplant double lung tx. On the list for 2 weeks now.
Judy in florida
Posted on April 3, 2012 at 9:48am 2 Comments 0 Likes
I cannot find where to communicate other than chat room. Something must be wrong with me.
Any help much appreciated. Will try the chat if i remember.
Judy on the list in Tampa for double lung
Hostess Risé said… Hi Judy
I saw that you sent a message to the group. The only way to reply to a group message is to actually write in the group. So I wrote to you in the group titled "Dear Judy"
I hope you feel better and you are not brusied to badly. Be careful!
Mr. T said… Happy Birthday Judy, have a great day.
Cisco said… Happy birthday Judy! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 pm central time. Hope to see you there!
David said… Happy Birthday Judy !
Judith said… Hi Judy,
I can answer your question about the Green Tea. The Green Tea has been linked with some rejections. I used to drink it too and also drank some Pomagranet but that too we can't have. That works like grapefruit so is a no no. After transplant you cannot have caffeine so I can only have decaf tea and no herbal teas as well. I only drink decaf black tea. I always look for other decaf teas but never find them. The herbals aren't regulated and can be very dangerous. Better safe than sorry. I just make a pitcher of tea with tea bags and add Stevia to it and sometimes lemon. I had a kidney transplant 21-1/2 years ago with 2 rejections that they saved me. I don't do anything to rock the boat.
My prayers are with you that you get your lungs really soon. You might want to start your change with the tea now so you can be used to it!! :-)
Hi Judy,
My brother lives in FL, and just turned 65, so he now has health insurance for the first time in many, many years. I went on disability a few years before my transplant, so I was lucky and got the entire thing covered. My hospital didn't list people until they were within 2 years of death, so I spent a few years on their "inactive" list, and when my FEV1 dropped to 10%, they listed me, and I got my first call only 6 weeks later.
Best of luck and hope your wait isn't too long. Tamps has an excellent transplant center with high survival rates. If you want to communicate, you can do it through Friends (Just search for a name and click on Comment), or write me privately. You can find my email address on my web page at lackritz.com or my email Jay at Lackritz.net or Airmont at GMail.com or Lackritz at Optonline.net
princess p said… Hi Judy I am post transplant heart lung. How are you?
David said… Greetings Judy ! welcome aboard !
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