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HELP WITH CELLCEPT

Started this discussion. Last reply by Tulip Jun 3, 2011. 7 Replies

HAS ANYONE BEEN TAKEN OFF CELLCEPT IF SO HAVE THE DOCTORS REPLACED IT OR RAISED THE LEVELS OF THE OTHER IMMUNOSUPPRESSIVE DRUGS TO MAKE UP FOR STOPPING THE CELLCEPT I'M ON PROGRAF, CELLCEPT AND…Continue

 

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David left a comment for Glenn
" Happy Birthday Glenn ! "
Aug 15, 2013
Judith commented on Glenn's blog post 'Anemia'
"Hi Glenn,  I was wondering how you are doing.  I too suffer with extreme Anemia.  I have also been on Cellcept and have recently been changed to Mhfortic (which is a dirivitive of Cellcept but easier on the stomach).  They have…"
Aug 17, 2012
Mr. T left a comment for Glenn
"Happy Birthday Glenn. Have a great day. Enjoy every day because they are a gift. Mr. T"
Aug 15, 2012
Cisco left a comment for Glenn
"Happy birthday Glenn! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 pm CDT. Hope to see you there!"
Aug 15, 2012
Tulip replied to Glenn's discussion 'HELP WITH CELLCEPT'
"First I was having real stomach problems immediately after transplant - cramping diarehea (sp) with cellcept and the doctor reduced it to a low dose thenI was taken off cellcept because my white count dropped dangerously low - nothing replaced it -…"
Jun 3, 2011
Glenn replied to Glenn's discussion 'HELP WITH CELLCEPT'
"hi Jim Thanks for the reply The Doctors are taking me of the Cellcept because of the very low red blood cell count but this started happening after 6 years on this medication The Doctors are not 100% sure this is the problem but are keeping a close…"
May 26, 2011
Jim replied to Glenn's discussion 'HELP WITH CELLCEPT'
"I was taken off Imuran after 40 years and put on Cellcept. The dactor said it was because Cellcept was better. I'm also on Prednisone. I'm having blood count issues, but because my kidney is failing. I guess there's no right or wrong…"
May 24, 2011
Glenn replied to Glenn's discussion 'HELP WITH CELLCEPT'
"Hi Ronald, I am being taken off because Cellcept causes low red blood cell counts I wa sjust seeing if this happened to anyone else and what the results were I feel fine until my blood count dropsa below 6 then weak and tired thanks for asking hope…"
May 10, 2011
Glenn replied to Glenn's discussion 'HELP WITH CELLCEPT'
"HI Gilly,  Thanks for the Help Hope your feeling good. did they take you off Cellcept because of a certain reason or you were not reacting well to it. I am on it for 7 years but the last 2 I have had severe anemia and trhe doctors think…"
May 10, 2011
RONALD replied to Glenn's discussion 'HELP WITH CELLCEPT'
"i am no the same meds. that you are  and i have not been told to stop any of them. i think you really need to have a strong talk with your doctor or maybe, talk to another doctor. i am sure that your doctor has good reason for making this…"
May 10, 2011
Gilly replied to Glenn's discussion 'HELP WITH CELLCEPT'
"Hi Glenn I am 9 months post double lung, i was taken off Cellcept 3 months ago and it was replaced with imuran. I also take prednisone and prograff. So yes it was replaced, hope thsi helps. Gilly"
May 9, 2011
Glenn posted a discussion

HELP WITH CELLCEPT

HAS ANYONE BEEN TAKEN OFF CELLCEPT IF SO HAVE THE DOCTORS REPLACED IT OR RAISED THE LEVELS OF THE OTHER IMMUNOSUPPRESSIVE DRUGS TO MAKE UP FOR STOPPING THE CELLCEPT I'M ON PROGRAF, CELLCEPT AND PREDNISONE See More
May 9, 2011
Glenn updated their profile
May 8, 2011
Glenn left a comment for Lon
"Lon UW Hospital is to me the greatest the care I received there was great I have the same thoughts with the diabetes and the donor health and happiness to you Glenn"
May 8, 2011
Glenn left a comment for Jim
"Hi Jim,  That's a Great story I was diabetic for 40 yrs and for the last seven I have to pinch myself to make sure I'm awake your going 21 years hope it doubles glad to hear good news                                                                  …"
May 8, 2011
Glenn liked Colleen Alvino's blog post 7 years post kidney transplant
May 8, 2011

Profile Information

Were you a member of our Forum on http://TransplantBuddies.com ?
Yes
Where did you hear about Transplant Friends?
website
Share - which illness led up to you needing a transplant?
Juvenile Diabetes
Which Organ(s) did you receive? If you are on the waiting list, please share.
kidney, pancreas
How many years have you had your Transplant for?
7
I am Interested in Transplant Friends because...
info on staying healthy Helping other people with transplant experiences, problems
Which Transplant Center has or will perform your life saving surgery?
UW Health and Hospital Madison WI
Share how your transplant experience changed your life?
I was diabetic from 7 years old developed kidney problems at age 40 stood off dialysis for 6 years not eating proteins but finally on dialysis for 18 months received the gift of life feel very bad for the family and donor had to lose a life to save mine. not being on insulin or low blood sugars and dialysis make my family's life and mine much more rewarding still can't believe it

Glenn's Blog

Anemia

Posted on May 8, 2011 at 7:58pm 1 Comment

Hello everyone Happy Mothers Day 

 I was wondering if any one had a problem with severe anemia. about 2 years ago my physical activity went from jogging 3-4 miles per day to riding a bike then to nothing. my Hemoglobin went from 15 slowly down to 9 the hemotologist started to administer 10,000 of EPO weekly until my Hgb went to 12. I was checked for all viruses CMV, Parvo and BK all negative and all done PCR and blood 1st bone marrow test showed no signs of any cancer ar any kind of…

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At 7:02am on August 15, 2013, David said…

 Happy Birthday Glenn ! 

At 2:59pm on August 15, 2012, Mr. T said…

Happy Birthday Glenn. Have a great day. Enjoy every day because they are a gift.

Mr. T

At 8:23am on August 15, 2012, Cisco said…

Happy birthday Glenn! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 pm CDT. Hope to see you there!

At 8:07am on August 15, 2012, David said…

 Happy Birthday Glenn ! 

At 5:33pm on May 6, 2011, Hostess Risé said…

Hi Glenn

 

You are very welcome! Let me know if you need any help with editing your MY PLACE page.  Cheers!

At 8:11am on May 6, 2011, Hostess Risé said…

Hi Glenn,

 

Many of us that write in will appreciate feedback. Wherever you feel that you can be of help please share.

 

Many Thanks!

Rise'

At 7:55pm on May 5, 2011, Rita said…
Welcome to Transplantfriends Glenn. Please post any thought you have or questions. I am so happy you are doing well and have your transplant 7 years. Wishing you the best.
At 7:36pm on May 5, 2011, DAP1122 (Don) said…
Welcome to TransplantFriends!! We are glad you have found us and if you need anything, please ask. We hope you can visit us often!
At 1:40pm on May 5, 2011, Hostess Risé said…

Hi Glenn,

 

Thank you for joining us here on Transplant Friends! Welcome!

 

Let me know if you have any questions regarding this website.

 

All the best,

Rise'

 
 
 

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