I am an Alpha 1 patient currently operating on about 20% lungs, and looking into transplant. I've been on diability, but now taking steps to return to work, part time at least, but not sure I can do it.See More
"What an awesome attitude, Steve. Oh, since it was a single breath you did the 52%, it's almost certain it was a false reading. If you had 52% capacity you would not likely be needing so much O2, I'm at 26, and don't…"
"You mention a 52%. If that is a single blow, I wouldn't even think twice about it; just an anomaly. If now you're consistently getting these numbers, that's kind of a miracle, and wouldn't fret about that either. I…"
The purpose for this group is for our members to share the name of their transplant center and possibly to connect with friends from the same center. Please tell your Transplant Center about us:)See More
"Just called CVS and the guy said it was 245 bucks a month, but he would try to get the doc to request it from the insurance co. He says this works most of the time. Who knew? I will let you know what happens.
"My pulmo gave me a free coupon for the first month of Daliresp. I think it may help. I just put in a new scrip, so don't know how much it is. He says it is helpful for some, but can exacerbate suicidality and depression."
For those who have received one or both lungs. Site is open to anyone who have received a lung(s) along with another organ. Caregivers are also invited. We ask that you share your experiences and be as positive as possible in your comments.See More
I am an Alpha 1 patient currently operating on about 20% lungs, and looking into transplant. I've been on diability, but now taking steps to return to work, part time at least, but not sure I can do it.