Diana Female Merrick, NY United States: Like

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CellCept and Proton Pump Inhibitors (GERD drugs)

Started Jan 19, 2011 0 Replies 0 Likes

Tags: drugs, GERD, and, Cellcept

Bronchiolitis Obliterans and Lung Transplant

Started this discussion. Last reply by Hostess Rise' Dec 31, 2010. 7 Replies 0 Likes

Hi, Hope everyone who celebrates had a Merry Christmas. I have Bronchiolitis Obliterans and my FEV1 is around 24-25%. I've been like this for a few months now. I'm currently taking 1250mg of…Continue

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DebbieK liked Diana's photo

My Family-Christmas 2011

Apr 12

Hostess Rise' liked Diana's blog post Little Update and questions!

Jan 29

Gilly and Diana are now friends

Jan 25

Diana commented on Diana's blog post 'Little Update and questions!'

"Thanks so much for the advise. Yes, they said I would be in rehab for a few weeks after the transplant...which was causing me stress b/c of the kids. What did you do prior to the transplant to get in shape? I'm doing a diet…"

Jan 24

Gilly commented on Diana's blog post 'Little Update and questions!'

"Hi Diana, I had my double lung at UPMC 17 months ago and have meet a few other post transplant patients who have had younger children, some have left them with family members others were in hotels. The social workers at UPMC are very good at helping…"

Jan 24

Crystal liked Diana's photo

My Family-Christmas 2011

Jan 23

Diana left a comment for Carole

"Hi Carole, I'm so glad you wrote back. Like you, I was healthy before starting to feel short of breath. I thought I was out of shape and needed to do more cardio! But one day after bringing the groceries in the house, I…"

Jan 22

Carole left a comment for Diana

"Hi Diana,I understand your comments about finding someone with the same diagnosis. You are the first that I have met. The docs are now calling it "Idiopathic BO" since they can not find any cause for it. I am 55 and was in very…"

Jan 22

Diana left a comment for Carole

"Hi Carole, I just read your story and I'm "excited" (not sure that's the right word to use!) to have found someone with the same disease as I have. You and I were diagnosed at almost the same time. I am now 39…"

Jan 21

Diana posted photos

Jan 20

Diana joined Lynn's group

Pre tx evaluation

This is a group for those who are in the process of pre transplant evaluations.See More

Jan 20

41 Comments 6 Likes

Diana joined Bill's group

Lung(s) Transplants

For those who have received one or both lungs. Site is open to anyone who have received a lung(s) along with another organ. Caregivers are also invited. We ask that you share your experiences and be as positive as possible in your comments.See More

Jan 20

97 Comments 25 Likes

Diana posted a blog post

Little Update and questions!

Hi,I haven't posted in a yr..had a good yr., but was hit hard w/either a virus or my disease has worsened since Halloween. Now I have O2 in the house & my Dr. wants me to meet the Transplant Team at UPMC. I'm actually feeling a lot better than I was, but they still want me to meet the team to get the process started. I can't believe it..I thought I was yrs off from starting this process! I'm hoping I stay the way I am now so I can put off the transplant as long as possible!!Question for…See More

Jan 20

2 Comments 1 Like

Diana updated their profile

Dec 16, 2011

Diana posted a discussion

CellCept and Proton Pump Inhibitors (GERD drugs)

I have been taking Cellcept for 5 mos. for lung disease and at the same time have been taking Zegerid, a proton pump inhibitor, for GERD. I literally have been taking them together every morning. My pulm. Dr. was submitting a new script for my Cellcept and a major interaction has now popped up b/t the 2 drugs. Basically, Cellcept is converted into an acid and the job of Zegerid is to breakdown acids. My local pharmacy, nor the manufacturer of Cellcept, are aware of this interaction. There…See More

Jan 19, 2011

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Diana and Nicola J are now friends

Jan 4, 2011

Profile Information

Are you a member of http://TransplantBuddies.com ?: Yes

Where did you hear about Transplant Friends?: In my search for others with Bronchiolitis Obliterans I found your site.

Are You Male or Female?: Female

Share why you had to have a transplant.: No Transplant yet....I was diagnosed with Bronchiolitis Obliterans in June 2010.

Optional: Share the Medications that you take: Cellcept 3000mg/day
Prednisone...currently 40mg/day
reflux drugs..zantac & zegerid
vitamins..multi & calcium & vit. D

I am Interested in Transplant Friends because...: I have Bronchiolitis Obliterans and have been told a transplant may be in my future. I would need a double lung transplant.

Which Transplant Center has or will perform your life saving surgery?: Pittsburgh

How has transplantation changed your life? If Yes, please share.: I haven't had it done yet. I'm trying to learn as much as possible now in case it is in fact in my future.

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Diana's Blog

Little Update and questions!

Posted on January 20, 2012 at 2:47pm 2 Comments 1 Like

Hi,

I haven't posted in a yr..had a good yr., but was hit hard w/either a virus or my disease has worsened since Halloween. Now I have O2 in the house & my Dr. wants me to meet the Transplant Team at UPMC. I'm actually feeling a lot better than I was, but they still want me to meet the team to get the process started. I can't believe it..I thought I was yrs off from starting this process! I'm hoping I stay the way I am now so I can put off the transplant as long as…

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At 10:32am on January 22, 2012, Carole said…: Hi Diana,
I understand your comments about finding someone with the same diagnosis. You are the first that I have met. The docs are now calling it "Idiopathic BO" since they can not find any cause for it.

I am 55 and was in very good health before all of this started last year. I was first treated with inhalers for presumed asthma, but once they determined it was BO, the docs stopped all my drugs. It had progressed enough that they said TP was the only option. They knew how bad I was, but gently gave me some time to accept that. As I needed more and more oxygen, and got weaker and weaker, I called them and asked to start the evaluation. They readily agreed. Everything came at me so fast, from the onset of the illness, the diagnosis and then the TP, that I felt like a train was bearing down on me. My head still spins sometimes when I think about it all. But I have to say that the TP went very well, and I feel so much better than before TP. I could not have survived without the TP, and I have no doubts that I made the correct choice.

I hope that you have more time before the TP, and that we continue to talk. I have found that my family and friends are very supportive in many ways, but having someone to talk to who has the same disease will be a comfort to me. And I hope to you, too!

At 5:12pm on November 15, 2010, Hostess Rise' said…: Hi Diana

Happy Birthday to you!! Be well!

At 8:54am on November 15, 2010, DAP1122 (Don) said…: Happy Birthday, Diana!!

At 8:08am on October 26, 2010, Hostess Rise' said…: Welcome Diana to Transplant Friends

Look top left under the globe for many features on how to contact members. Click on Settings and appearance to update your profile. It is fun to learn this system. Be patient and you will figure this out soon.
Rise'