Transplant Friends

DebbieK's Friends

  • Brian
  • Judy
  • hua
  • Cindy
  • Matt Collins
  • sssteph
  • Julia
  • Stillkickin
  • Judee
  • Troy
  • JoAnne
  • Crystal
  • Charles
  • Forest (Eugene)
  • trish

DebbieK's Discussions

Depression

Started this discussion. Last reply by buzzerxl1 Jan 31. 11 Replies

I don't know if it is the meds, seasonal affective disorder, or what but I have been going into a slump. I do spend a lot of time alone and have not been exercising lately. I moved back to where I…Continue

Severe knee pain

Started this discussion. Last reply by Hostess Rise' Dec 24, 2011. 5 Replies

i have been waking up with very severe pain under my kneecap quite regularly lately and it lasts for hours. Only happens when I have been sleeping? Anyone else experience this and know what causes it…Continue

 

DebbieK's Page

Latest Activity

Brian and DebbieK are now friends
Monday
DebbieK liked Susan's blog post Side effects
Sunday
DebbieK posted a status
"another rx assistance site http://www.pparx.org/"
May 20
DebbieK commented on Bill's group 'Lung(s) Transplants'
"http://www.myrxadvocate.com/ prescription assistance if you don't have ins. or medicare. "
May 20
Bob Pitcock left a comment for DebbieK
"Deb, thank you for this very beautiful Birthday greeting. God Bless"
May 18
DebbieK left a comment for Bob Pitcock
May 18
DebbieK left a comment for Ltl Lof
May 18
DebbieK left a comment for Patricia W.
May 18
DebbieK replied to Hostess Rise''s discussion 'Hair Talk' in the group Girl Talk
"I'm using a wig when I go out now. Not enough hair to cut into any kind of style on the sides. I am using rogaine and it is starting to grow back but is only 2 or 3 inches in many areas. Going to be at least six months before I can get a style…"
May 17
Crystal liked DebbieK's photo
May 9
Crystal liked DebbieK's photo
May 9
DebbieK replied to Hostess Rise''s discussion 'Hair Talk' in the group Girl Talk
"I'm on prograf and my hair did not thin the first six months but started in the seventh month and it is really bad. I had to get a wig."
May 6
DebbieK shared Hostess Rise''s video on Facebook
May 6
DebbieK replied to Hostess Rise''s discussion 'Hair Talk' in the group Girl Talk
May 4
DebbieK replied to Rachel's discussion 'candles' in the group Transplant No-No's
"If they are petroleum bases paraffin candles they are toxic as are all petroleum products http://findarticles.com/p/articles/mi_m0HKL/is_5_7/ai_66918312/"
Apr 25
DebbieK replied to Michelle's discussion '1 1/2 months out and still feeling pretty bad most days'
"Boost with revigor for building muscle is very good after surgery. Ask your dr. for something for the nausea and get something for your stomache. They initially put me on nexium and it did nothing for me. Then tried xantac and it worked very well. I…"
Apr 20

Profile Information

Are you a member of http://TransplantBuddies.com ?
Yes
Where did you hear about Transplant Friends?
found it searching online
Share why you had to have a transplant.
I have copd/emphysema/MAC
I am Interested in Transplant Friends because...
The wait is hard and I am looking for a group that we can share experiences and help each other through the rough patches.
Which Transplant Center has or will perform your life saving surgery?
Dual listed Cleveland Clinic and Ochsner transplant center

DebbieK's Photos

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DebbieK's Blog

moon face

Posted on September 24, 2011 at 12:33am 11 Comments

Not enjoying this new big round face. Does it get better as prednisone tapers down?  

Comment Wall (17 comments)

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At 10:50pm on May 18, 2012, Bob Pitcock said…

Deb, thank you for this very beautiful Birthday greeting. God Bless

At 11:08pm on April 10, 2012, hua said…

you look like a very health woman.  very pretty.  wish you good luck.

At 4:03am on March 13, 2012, Crystal said…

I really like your pictures.  You are very pretty.  This might sound strange.....lol...., but I can't wait to have a round face.  Then all my wrinkles will disappear

At 9:57am on February 14, 2012, Julia said…

Hi Debbie, My hair seems to go through stages of really falling out the slowing down and growing again but its never got back to what it was . Thank goodness I started off with quite a bit lol. I had my Kidney tx March 31st 2006 and I cant believe its nearly six years and I feel AMAZING !!!!!!!!!!!!!!!!!!!! So much energy and zest for life I am sooooooo soooooooo lucky. I had FULL moon face for a while lol but it soon settled as the Steroids tapered down but My appetite remains...All I do is think about food .

At 12:10pm on December 18, 2011, JoAnne said…

hi Deb, 6 months ago, you seem to be doing great, thats so good,i hope i dont eaither,well ill no friday if iam listed or not, every center is different,so who knows, it seems like every 2-3 months i go down some, im at 23% right now, on 02,24/7 but i do remove it if i feel im ok,i do alot of deep breathing, showers and mornings are my worst times. takes me 4 ever to do things now, erll, glad to meet u and ill pray u continue to do great :)) & the beach, the beach is my favorite place :))

At 10:59am on December 17, 2011, Ken Carrell said…

Hello DebbieK:

I am a right lung tx who will be 4 years old in April.  When you describe the problems you are experiencing it brings back to mind when I suffered the very same.  It gets better year by year.  But realize that there will always be some new issue to deal with... you lear to manage it and get by it.  In between are all the things you enjoy about life.  It must be difficult for you right now but the important thing is to keep moving.  It can be as simple as walking around the neighborhood or walking up and down stairs.  Just keep the blood moving.  Thats what I did.  It was very lonely 2 months after my tx when everyone went back to work and felt that I could manage on my own.  It wasn't easy at all.

Feel free to email me at kennethjude@comcast.net or skype me Kenneth Carrell, if you have Skype.

Use as much of the available support system as you can.  Before you know it you will be supporting others.

Always here to listen 

Ken

At 6:19am on October 24, 2011, Hostess Rise' said…

Hi Debbie

How are you?

At 1:14am on August 27, 2011, Crystal said…

Hello,

 

You look really great in your photo.  How are you feeling?  I have been doing ok.  I have good  days and bad days.  I still keep pushing forward.   I am wondering what is up with Cleveland Clinic.  I remember in 2009 when they was, what I call bragging, about all those transplants they did.  My one friend April has been on their list for 3 yrs.  I don't know :(      I am so happy for you Debbie.  

Take Care, Love, Crystal

At 7:49pm on July 23, 2011, John said…

Just walk on my driveway, laps for 20 to 30 minutes or till I work up a sweat. Here lately it's been high 70's and humid, even at 4 to 5 am. We have a recumbent bike exercise machine that my wife uses, but it feels worse on my knees.When I'm able to drive I'll try the gym in Mont Belvieu, see if there are any machines I can use. Also going to have to get used to the spf lotion on me for extended time in the sun when it cools off.

At 2:46pm on July 23, 2011, John said…
Hang in there, You've been blessed to have new lungs and it'll get better. Sounds like your stable now..just some tweaking...and exercise. I've been mainly walking with 3 lb weights for now usually about 4 to 5 am....cooler at that time. Last Dr. visit , he said I still couldn't drive, but it's getting close.
 
 
 

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