Claire Female Liverpool United Kingdom: Like

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Prograf

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Claire's Discussions

Today is my 13 year anniversary!

Started this discussion. Last reply by Claire Apr 26, 2012. 9 Replies 0 Likes

13 years ago today I had a kidney & pancreas transplant which cured me of the insulin dependent Diabetes that I'd had since I was 11 years old and also cured the resulting kidney failure which is…Continue

My transplant surgeon died last week.

Started this discussion. Last reply by Hostess Risé Sep 8, 2010. 2 Replies 0 Likes

Mr Ali Bakran, a wonderful, kind, brilliant and funny man, died last week whilst snorkelling in the Maldives. He was the surgeon who carried out my kidney & pancreas transplant st The Royal…Continue

Who has met their donor family?

Started this discussion. Last reply by David Nov 20, 2012. 9 Replies 1 Like

I wrote to my donor family when I first had my transplant which was March 1999. I knew that my donor was a 17 year old boy who was killed on his way to work on a motorcycle. My aunt later told me…Continue

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Claire's Page

Latest Activity

Claire replied to Hostess Risé's discussion 'What do you say to a loved one who wants to give up after transplant?'

"I would say, think of the family who agreed that their loved one's organs could be donated so that others could live. Think of the comfort that they received from knowing that their loved one didn't die in vain. Then think how they'd…"

Apr 8

shan replied to Claire's discussion 'Who has met their donor family?'

"Hi , I was curious that the first time you wrote the donor family did you not hear from them or were they not able to locate them then either? I want to congradulate you on your son and sucesful tx, i had also thought we couldnt have kids after a…"

Nov 20, 2012

Janelle replied to Claire's discussion 'Who has met their donor family?'

"I am actually meeting my donors family next week, along the two other people who received the organs from the same donor. I am anxious to meet them and at the same time so excited! I'll let you know how it goes!"

Nov 13, 2012

Hemoslidder liked Claire's discussion Who has met their donor family?

Oct 26, 2012

Brian replied to Claire's discussion 'Who has met their donor family?'

"I sent a letter through coordinator to family of donor. But never heard from them, but my letter said it all for me!!!"

Oct 23, 2012

jerry replied to Claire's discussion 'Who has met their donor family?'

"Hi My name is Jerry, I'm 64 years old, and received a double lung transplant in april of 2012. I wrote a letter to my donor's family about 3 months after my surgery, and received an answer about a month after that. After a couple more…"

Oct 22, 2012

Hostess Risé left a comment for Claire

"Happy Birthday Claire!"

Sep 9, 2012

Cisco left a comment for Claire

"Happy birthday Claire! Have a great day! You should jloin us for chat on Saturdays and Sundays starting at 2 pm central time. Hope to see you there!"

Sep 9, 2012

Mr. T left a comment for Claire

"Hello Claire, Happy Birthday. Have a Great Day/Night. Congrats on post tx of 13 yrs. Mr. T"

Sep 9, 2012

Claire replied to BOBBI's discussion 'prograf and skin cancer' in the group Prograf

"Hi, I'm on 4mg of Prograf and have been for 13 years after a kidney & pancreas txplant. I noticed my 1st BCC about 8 years ago in my hairline so had it removed. I then had another on my upper lip that came back 3 times until a plastic…"

Aug 3, 2012

Claire commented on AshleyRose's blog post 'Transplant means the shot at a new life...Really? When does that start?'

"Hi AshleyRose, 1 month on is such early days. I too had Type 1 Diabetes from the age of 11 and this gave me kidney failure at the age of 30, 2 years almost to the day that I was diagnosed I had a kidney & pancreas transplant in Liverpool,…"

Jul 16, 2012

Claire replied to Tracy's discussion 'Questions!!!!' in the group Kidney-Pancreas

"Hi Tracy I have had a kidney & pancreas transplant in March 1999 so am on my 13th year. I waited 1 year for my operation. The best advice that I can give is to try not to obsess about the transplant and to get on with your lives. I understand…"

May 8, 2012

Claire replied to Claire's discussion 'Today is my 13 year anniversary!'

"Hi Susan, thank you for your message. My sister and I have a design & print business so are also very involved in marketing and I totally agree with you about the lack of awareness around the issue of organ donation. I think that possibly it…"

Apr 26, 2012

Susan replied to Claire's discussion 'Today is my 13 year anniversary!'

"Amazing and great to hear it is your 13th aniversary. I too am a Pancreas and Kidney recipient. I got my gift of life on January 15th of this year. My donor was an 19 year girl in Chicago who died in a car accident. I have not heard from the donors…"

Apr 25, 2012

DebbieK liked Claire's photo

Me & Luke on his 1st Birthday May 2010

Apr 12, 2012

Claire replied to Claire's discussion 'Today is my 13 year anniversary!'

"Thank you for you good wishes xx"

Mar 16, 2012

Profile Information

Were you a member of our Forum on http://TransplantBuddies.com ?: Yes

Where did you hear about Transplant Friends?: Google

Are You Male or Female?: Female

Share - which illness lead up to you needing a transplant?: Type 1 Diabetes from age of 11 which led to Renal failure 21 years later

Which Organ(s) did you receive? If you are on the waiting list, please share.: kidney & pancreas March 1999

Drugs, vitamins, favorite foods: Prograf

How many years have you had your Transplant for?: 13

I am Interested in Transplant Friends because...: I hope that I can help or inspire others who have had or who are waiting for a similar transplant, especially as I have also had a baby post transplant and at the age of 42.

Which Transplant Center has or will perform your life saving surgery?: Royal Liverpool University Hospital, UK

Share how your transplant experience changed your life?: I had my kidney & pancreas transplant in March 1999. Since then I have been in full time employment since January 2000, I bought my own house and lived on my own until December 2007 when I bought another house with my fiance. We got married in August 2008 and in May 2009 I had a baby boy called Luke James Phillip, Phillip was the name of my organ donor so we gave this name to Luke as without my organ donor, neither Luke nor I would be here.

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At 3:50pm on September 9, 2012, Hostess Risé said…: Happy Birthday Claire!

At 1:57pm on September 9, 2012, Cisco said…: Happy birthday Claire! Have a great day! You should jloin us for chat on Saturdays and Sundays starting at 2 pm central time. Hope to see you there!

At 10:54am on September 9, 2012, Mr. T said…: Hello Claire, Happy Birthday. Have a Great Day/Night. Congrats on post tx of 13 yrs.

Mr. T

At 7:02am on September 9, 2012, David said…: Happy Birthday Claire !

At 1:27pm on February 21, 2012, Stefanie said…: I'm on a pump right now so management isn't a huge issue but it would be nice to not have blood sugar numbers looming low or high. Its become harder to manage that along with the baby and a full time job (I'm the director of a special needs program at a elementary school). I do pretty well until I get home in the evening and then any desire to do much is gone. I am a bit worried about the rejection drugs and the imuno suppressent problems that go along with the whole thing. I'm worried about all the no no's I've read and how that will factor in for me. I am however looking forward to increased energy!!!!! Your little boy is darling as well. Love his chubby cheeks! P.S. I was just looking at his pictures and I didn't know they had Halloween in England! You learn something every day!

At 11:07am on February 21, 2012, Stefanie said…: Sage was 5 and 1/2 weeks early also due to BP and increasing kidney decline. My kidney doc wanted me to be induced earlier and my high risk OB wanted to push me as far as I'd go. I'd already gone further than they thought so I think he wanted me to go further to see how far they could get me. I think it was a blessing that he was off when another OB decided to take her early. I still have enough kidney function left to not need dialysis as a result :) She was 4 lbs. and did stay 2 weeks in the NICU but was strong the whole stay. She just needed to get eating down. She is opinionated and on schedule for everything! She wears me out and she's only 10 mo. old! I"m on the K/P list although they keep trying to get me to just do a kidney only. My nephro and endo want the K/P for me.

At 6:27pm on February 20, 2012, Stefanie said…: Hi Claire,

Glad to hear you are doing well with your kidney and pancreas! I had my baby about 10 mo. ago. I haven't had a transplant as of yet and the pregnancy increased the need for one most definitely. I had about 40% function then and now have about 20% I think. I had my tubes tied after I had her and now I wish I hadn't reading some stories of people having babies afterwards. I am 39 though so I guess its ok. Continued good health to you!

At 1:14am on May 9, 2011, Jenessa said…: Hi Claire! I had a kidney transplant in 2007 and I recently got married in October of last year. I was wondering if you could offer any information on pregnancy after transplant. I do want children in the future, not the near future, but after I am able to get settled in my career. I am curious but I am finding it difficult to find any info on the topic.