AshleyRose's Page

Latest Activity

Lorrine left a comment for AshleyRose
"HAPPY BIRTHDAY ASHLEY!"
Jun 5, 2013
Auntee Nae liked AshleyRose's blog post Transplant means the shot at a new life...Really? When does that start?
Jan 5, 2013
Auntee Nae commented on AshleyRose's blog post 'Trying to keep my hopes up for the future...'
"This is a beautiful story. It reminds me of my life...as a kidney donor AND care giver for my mom. I worry constantly & even now, after surgery. Things are better now, 6 months post transplant ...but I still worry constantly. Does anyone else…"
Jan 5, 2013
Auntee Nae liked AshleyRose's blog post Trying to keep my hopes up for the future...
Jan 5, 2013
Lynda (aka Little Bear) liked AshleyRose's blog post Trying to keep my hopes up for the future...
Nov 28, 2012
hua liked AshleyRose's blog post Trying to keep my hopes up for the future...
Oct 25, 2012
TheHemoslidder liked AshleyRose's blog post Trying to keep my hopes up for the future..Continued.
Jul 31, 2012
Cisco commented on AshleyRose's blog post 'Transplant means the shot at a new life...Really? When does that start?'
"You are both in my prayers Ashley. As others have said, it will get better. In addition to talking with the coordinator, you might also have a chat with the social worker. These folks can generally come up with some good suggestions."
Jul 27, 2012
Hostess Risé liked AshleyRose's blog post Transplant means the shot at a new life...Really? When does that start?
Jul 16, 2012
Claire commented on AshleyRose's blog post 'Transplant means the shot at a new life...Really? When does that start?'
"Hi AshleyRose, 1 month on is such early days. I too had Type 1 Diabetes from the age of 11 and this gave me kidney failure at the age of 30, 2 years almost to the day that I was diagnosed I had a kidney & pancreas transplant in Liverpool,…"
Jul 16, 2012
Ono commented on AshleyRose's blog post 'Transplant means the shot at a new life...Really? When does that start?'
"Like everything, there are good masseuses mediocre ones and bad ones. I found a good masseuse on yelp, carefully reading the comments. Pedicures are great and a good foot massage is heavenly !  The point is doing something to help release the…"
Jul 15, 2012
Cisco left a comment for AshleyRose
"So nice that you got a transplant. You and your boyfriend have been through so much. If you have questions for me, drop me a note. I would be glad to help however I can."
Jul 15, 2012
Walt B commented on AshleyRose's blog post 'Transplant means the shot at a new life...Really? When does that start?'
"The roll of a caregiver is to provide support.  It can be very difficult to sit by and not be able to do anything but be available to provide assistance, support and love.  Quite often caregivers forget about caring for themselves. This…"
Jul 15, 2012
Judith commented on AshleyRose's blog post 'Transplant means the shot at a new life...Really? When does that start?'
"Hi, Just read your blog.  When I had my transplant, I had everything go wrong that could.  I had 3 surgeries in the first 2 weeks, then 2 rejectiions, was in the hospital 3 months with problems in the first 3 months then back in the…"
Jul 15, 2012
River commented on AshleyRose's blog post 'Transplant means the shot at a new life...Really? When does that start?'
"My wife still gets days when she needs to lay around and sleep most of the day. She asked her doctor about this at her one year checkup and was told "You just had a major surgery a year ago, give it time." She has had lots of ups and downs…"
Jul 15, 2012
AshleyRose joined Steve Diamond's group
Thumbnail

Kidney-Pancreas

This group is a place to discuss all issues related to Kidney-Pancreas transplants.See More
Jul 14, 2012

Profile Information

Were you a member of our Forum on http://TransplantBuddies.com ?
Yes
Where did you hear about Transplant Friends?
Transplant buddies
Are You Male or Female?
Female
Share - which illness led up to you needing a transplant?
I am not the recipient. My boyfriend of 5 years had type 1 diabetes which led to kidney failure. We have been through every type of dialysis there is, ending with me administering it at home with home hemo through NxStage. "The Call" came about a month ago. He had the SKP (simultaneous kidney/transplant) on my birthday :) It has not been the smoothest road since then (or over the last couple of years!) and I would love to be able to talk with someone, anyone about all kinds of different things.
Which Organ(s) did you receive? If you are on the waiting list, please share.
Simultaneous Kidney/Pancreas Transplant - June 2012
How many years have you had your Transplant for?
one month
I am Interested in Transplant Friends because...
Advice, questions, experiences, stories, understanding.....
Which Transplant Center has or will perform your life saving surgery?
Barnes Jewish Hospital - St. Louis, Mo
Share how your transplant experience changed your life?
It's all so new. And it has been hard. He and I are looking forward to a different (normal) lifestyle very much and are so very grateful. We are just ready for that to start. Considering I am signing up for Transplant Friends from the couch in his hospital room....just wondering when it is going to get better? I know it will. Trying to stay postive for him...and for myself too.

AshleyRose's Blog

Transplant means the shot at a new life...Really? When does that start?

Posted on July 14, 2012 at 3:26pm 12 Comments

I will give a little head's up on this blog post.  I will proabably come across as negative and maybe a little angry.  Anger always seems to be my go-to emotion.  I think it keeps me from fully coming apart at the seams.  And maybe I am a little angry.  But I think I am mostly just sad.  That deep sadness that takes over every corner of your being.  And worried.  And scared.  And losing that last little bit of hope that anything will…

Continue

Trying to keep my hopes up for the future...

Posted on July 14, 2012 at 2:44pm 8 Comments

Trying to put the last 2 years into words is hard for me.  I actually think that one of my strongest "coping tactics" is being able to completely block out some thoughts.  That is usually not very hard for me to do, since it seems that from the moment I wake up to the minute I hit my pillow, I am constantly busy.  But sitting here in a dark hospital room with nothing but the sound of the air conditioner and his CPAP machine to listen too... the mind…

Continue

Trying to keep my hopes up for the future..Continued.

Posted on July 14, 2012 at 2:08pm 1 Comment

Hello all.  Very sorry to start the last blog post, get right up to the point where things may have started getting good and *poof* - gone like the wind.  Today is July - Friday the 13th.  I know this seriously creeps some people out, but not me.  13 has always been my lucky number.  I had to go back and see what day I had started this.  What "this" will turn out to be, I am not sure.  There has been more than one occasion in the past week where it has nagged at…

Continue

Comment Wall (6 comments)

You need to be a member of TransplantFriends.com to add comments!

Join TransplantFriends.com

At 2:50pm on June 5, 2013, Lorrine said…

HAPPY BIRTHDAY ASHLEY!

At 2:59pm on July 15, 2012, Cisco said…

So nice that you got a transplant. You and your boyfriend have been through so much. If you have questions for me, drop me a note. I would be glad to help however I can.

At 9:35pm on July 14, 2012, hua said…

you are a nice girl. your bf is happy to have you. he is sure to recover. i  spent half a year to recover after transplat, now 34 years has passed, i am still healthy and live a very good life. hope you and your bf happy.

At 12:44am on July 8, 2012, AshleyRose said…
Thanks do much. I plan on writing up the whole shebang so I can give a little background. Just haven't had the chance yet. Gonna try to hit the caf for some grub then give it a go. It seems like such a mountain to climb - putting the last cpl of years in writing!
At 11:00pm on July 7, 2012, Hostess Risé said…

Hi AshleyRose

Welcome to Transplant Friends! Give my best to your boyfriend. Yes your lives will get better. Happy Birthday! Thanks for sharing your story.  Stick around with us. You are the Best!  He is very blessed to have you. Rise'

At 9:43pm on July 7, 2012, Cisco said…

AshleyRose, I too had my kidney transplant at Barnes in 2007. My kidney problems were as a result of unrecognized high blood pressure, I believe. I started out with peritoneal dialysis at home and ended up with doing hemo dialysis before it was all over. After being on dialysis for 13 months, my wife gave me a kidney. Since you are a member of Transplant Buddies, you could sent me a pewrsonal message if you would like to ask some questions. I will try to answer tham for you as best I can.

 
 
 

© 2014   Created by Hostess Risé.

Badges  |  Report an Issue  |  Terms of Service