Anders Male Milwaukee, WI United States: Like

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Heart Transplant - 1 week post-op and feeling horrible

Started this discussion. Last reply by Luce Feb 8. 15 Replies 4 Likes

I am a 26 year old male who just underwent his fourth open heart surgery, consisting of a full heart transplant. A little background, after 2 successful heart surgeries several years ago, I…Continue

Tags: Symptoms, Heart, Transplant

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Anders's Page

Latest Activity

Kayla left a comment for Anders

"I. Am 25 years old & a year out. Oh my heart z& liver transplant sev"

Mar 9

Luce replied to Anders's discussion 'Heart Transplant - 1 week post-op and feeling horrible'

"Now you were about to die, that's not encouraging, then you've got a heart and the feeling must be just wonderful but that's major surgery and a huge stress for your body. The longer the surgery takes the higher the exposure to…"

Feb 8

Luce liked Anders's discussion Heart Transplant - 1 week post-op and feeling horrible

Feb 8

John Scags replied to Anders's discussion 'Heart Transplant - 1 week post-op and feeling horrible'

"Hi Andres, I don't know how much help I can be but I wanted to message you any way. I am 25 and am about 2 months post double lung transplant. I am taking the same meds as you. I to feel like I'm not sure if I'm improving or just…"

Jan 8

John Scags liked Anders's discussion Heart Transplant - 1 week post-op and feeling horrible

Jan 8

Anders liked Anders's discussion Heart Transplant - 1 week post-op and feeling horrible

Dec 4, 2012

Holly replied to Anders's discussion 'Heart Transplant - 1 week post-op and feeling horrible'

"Don't get discouraged. It will take weeks of adjusting the meds to get them right and a lot of what you are feeling are caused by the medications. Things will get better I promise. It can be tough till they get the meds where they need to…"

Dec 4, 2012

Cecil replied to Anders's discussion 'Heart Transplant - 1 week post-op and feeling horrible'

"Hello Anders, as everyone else has stated your side effects is completely normal and everything will be alright. I celebrated my 13th year on Sept 24, so hang in there my friend, you're in good hands! Cecil"

Nov 25, 2012

Hostess Risé liked Anders's discussion Heart Transplant - 1 week post-op and feeling horrible

Nov 23, 2012

Jean replied to Anders's discussion 'Heart Transplant - 1 week post-op and feeling horrible'

"Hi there Anders. Eleven plus years out (5/1/2001) I was on Prograf in the begining. I also had hand tremors, severe headaches, difficulty breathing, after nearly two years of that I am now on Cellcept. That being said, I presented with a fever,…"

Nov 22, 2012

Patricia W. replied to Anders's discussion 'Heart Transplant - 1 week post-op and feeling horrible'

"Hi Anders, how are you doing? It has been 7 or 8 months post transplant. How are you feeling? Are your symptoms getting any better? Like everyone says it will take time. The further you get away from your transplant…"

Nov 21, 2012

Hostess Risé left a comment for Anders

"Happy Birthday Anders!"

Nov 5, 2012

Cisco left a comment for Anders

"Happy birthday Anders! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 pm central time. Hope to see you there!"

Nov 5, 2012

Jean replied to Anders's discussion 'Heart Transplant - 1 week post-op and feeling horrible'

"Hi Anders. I too was on Prograf after my tx. The reason I am now on Cellcept instead is because my tx team determined that it was the most probable cause of some of the very things you are having. It did not make everything better, but some like the…"

Sep 2, 2012

H.G. replied to Anders's discussion 'Heart Transplant - 1 week post-op and feeling horrible'

"Hey Anders, I also experienced many of the things you described. As the others have commented, these effects will subside over time and you will notice them go away. Challenges may seem more daunting than you want them to be but they don't…"

Jun 24, 2012

hearttxp replied to Anders's discussion 'Heart Transplant - 1 week post-op and feeling horrible'

"Anders I agree it will all pass with time ! But sorry I had to laugh at your statment "Full heart Transplant" Had someone say that to me one time and I laughed in his face ! I said what I am only going to get half of the heart ??WTF ! I am…"

Jun 14, 2012

Profile Information

Were you a member of our Forum on http://TransplantBuddies.com ?: Yes

Where did you hear about Transplant Friends?: Google Search

Are You Male or Female?: Male

Share - which illness lead up to you needing a transplant?: At 26 years of age, I had severe heart failure with an EF of 10% and thus required a heart transplant

Which Organ(s) did you receive? If you are on the waiting list, please share.: Heart

Drugs, vitamins, favorite foods: Cellcept
Prograf
Prednisone
Tubertaline

How many years have you had your Transplant for?: 1 week

I am Interested in Transplant Friends because...: I need some feedback on symptoms i'm experiencing

Which Transplant Center has or will perform your life saving surgery?: St Lukes Medical Center - Milwaukee

Share how your transplant experience changed your life?: I have had a really rough time recovering so far and have had most of the side effects associated with the medicines I am being given.

Share your interests and hobbies: Exercise, computers, reading, hiking, fitness, cars

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At 4:25am on March 9, 2013, Kayla said…: I. Am 25 years old & a year out. Oh my heart z& liver transplant sev

At 11:30am on November 5, 2012, Hostess Risé said…: Happy Birthday Anders!

At 9:31am on November 5, 2012, Cisco said…: Happy birthday Anders! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 pm central time. Hope to see you there!