Rapamune Friends Discussions (8)

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Anyone get mouth sores with Rapa?

I am post kidney tx 6 months and have had issues with Prograff, and Cyclosporine.  I was taking rapamune and got horrible mouth sores.  Iro…

Started by Kathy

11 Mar 26
Reply by alison

Rapamune and Elevated Lipids

I have been on Rapamune for about 6 weeks.  I got lab tests done on Monday including my lipids.  My triglycerides and HDL were fine.  But m…

Started by Michael

2 Jun 14, 2013
Reply by mark

Rapamune and treatment by staff

Hi Mike, No it isn't just you who has been treated poorly. I sometimes feel like someone has just beat me up when I leave the clinic. They…

Started by Pat Romano

14 Jun 13, 2013
Reply by amberbot

Hypertension and Rapamune

I started Rapamune on April 30, 2013 after stopping Cellcept due to severe neutropenia.  So far, it seems to be working out well.  Due to b…

Started by Michael

4 Jun 12, 2013
Reply by SIMONE

The sweet taste of Rapamune

I took Rapamune for a few months, went off because I had a transplant and then a year later went back on it. All I can remember was the ple…

Started by Hostess Risé

3 Jan 8, 2013
Reply by Chris

Cholesterol - How did you reduce your numbers?

My friend wants to know if anyone was able to reduce their cholesterol numbers overall with diet or with medications.

Started by Hostess Risé

4 Dec 31, 2012
Reply by Linda Jacobus Toscano

On Rapmune 1 year and 5 days after Heart Transplant

Hello, Just got horrible news this past Monday.  Dr. told me I now have to have stents put in my new heart.  I now have Cardiac allograft v…

Started by Christine Hilton

5 Dec 22, 2012
Reply by Christine Hilton

.5 mg Rapamune

Just a little note that this drug finally has .5 mg tablets ! I have been taking 1 mg every other day now and will soon switch to .5 every…

Started by hearttxp

16 Dec 13, 2012
Reply by Cora


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