Cellcept Friends

Cellcept Users post right here how are you doing on Cellcept. Have you had any side effects?

Location: Transplant
Members: 158
Latest Activity: Mar 15

Discussion Forum


Started by frank. Last reply by Reginald Tom Wickett Oct 5, 2013. 4 Replies

Liver Transplant

Started by Reginald Tom Wickett Jun 12, 2013. 0 Replies

Skin trouble related to Cellcept

Started by Hostess Risé. Last reply by Louise Jun 10, 2013. 13 Replies

Who's on Cellcept

Started by MIKEY. Last reply by buzzerxl1 Jun 8, 2013. 7 Replies

Who's on Cellcept

Started by MIKEY. Last reply by shane Mar 1, 2013. 14 Replies

I have been on Cellcept for 15 years.

Started by wisheart1995. Last reply by Lorrie Dee Feb 10, 2012. 6 Replies

i was worden

Started by Jonathan Harpur. Last reply by Brandy Jun 21, 2011. 1 Reply

CellCept for Living

Started by Cathy Jun 21, 2010. 0 Replies

What meds are you taking?

Started by oni. Last reply by oni May 19, 2010. 2 Replies

Comment Wall


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Comment by Rachel on August 25, 2013 at 8:28pm


If only I had that side effect (lost of appetite) lol. :)


Comment by MIKEY on August 25, 2013 at 1:15pm

Hi Everyone!!

It's been awhile since my last posting, however I am doing wonderful and wanted to respond to the Cellcept question.

I have been using Cellcept for over four years and the only apparent side effect I am having is a lost of appetite. I have also lost 40 pounds, now none of my cloths fit lol. I gotten to the point of one to two meals a day which has contributed to reduced blood pressure as well as eliminating Sodium.

My doctor prescribed Cellcept as an addition to my Prograf medication to reduce the impact Prograf has on my Kidneys. I hope my answer is helpful and I wish everyone good health, wealth and strong sprite.



Comment by mark tipple on August 23, 2013 at 11:34pm

thanks rachel......ive gotten some good leads on here......thanks everybody

Comment by Rachel on August 23, 2013 at 11:25pm


I paid $47.00 for the Cellcept (generic).


Comment by mark tipple on August 23, 2013 at 6:21pm

Rachel, what meds did you pay 47 for three months?....private mess me if you want

Comment by Rachel on August 23, 2013 at 5:20pm


What about medicare part d ( I paid $47. for 3 months).   I get four other meds thru the patient assistance programs. 



Comment by Hostess Risé on August 23, 2013 at 2:59pm

Hi  Virginia and Jack

When someone sends a message to the group, the message is not posted in the group. With the new upgrade I hope this problem is added to the change.

Regarding paying the twenty percent- I would try and fundraise or contact the drug assistance programs for Cellcept.

Comment by VirginiaG on August 23, 2013 at 2:52pm

Also trying to find Mark's comment. Mark, Jack's advice is good. Also, keep working on your insurance provider. Sometimes things that are denied at one level may be approved by someone higher up. This happened a lot when my husband was on dialysis pre-Tx. Perhaps your Tx physician can support an exemption? Wishing you this best. 

Comment by Jack on August 23, 2013 at 2:45pm

Mark, could not find the thread you are on - have you tried for Patient Assistance through Roche? I get mine at no charge this way. Feel free to private message me here or through FB if you need help on this


Comment by Jack on August 15, 2013 at 11:47am

yogurt or probiotics usually will help with that chris


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