Sharing Knowledge Is An Invaluable Experience
This group is for our friends interested in sharing information regarding all aspects of liver transplantation.
We are here for support.
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Connie, I am praying that you get your transplant very soon. I know the struggle you are going through and I can remember the feelings very well. Keep the faith. When it comes, all you are going through will be lifted and you will be back in the light again. Please stay connected. Aloha, AJ
You have touched my heart with your comment, as my best friend who was your exact age suffered terribly from Hep C. I am actually a member here because of my daughter, who had a liver transplant for sudden acute liver failure (cause unknown) at age 10 in 2009 in Philadelphia. During my daughter's very bumpy recovery, my best friend was diagnosed with Hep C and cirrhosis. What a terrible coincidence...I felt like I was surrounded by liver disease, my daughter and my best friend at once. Anyway, they said my friend must have had the Hep C for many years, and it is believed she probably contracted it as a nurse exposed to needle sticks and body fluids in the 70's and 80's. She sadly did not have medical insurance at the time of her diagnosis, and did not receive the proper care. I hope you get regular liver ultrasounds, as she did not, and it cost her life. The ultrasounds watch for cancer to develop, and if it does develop you get a much higher priority on the transplant list. She unfortunately discovered a tumor when it was too advanced, and she was no longer eligible for a transplant. I will pray for you to be lucky, educated, well cared for, and strong. I miss her everyday. I wanted to share this in case it helps.
Casey, I had a liver tx at the Mayo in Jacksonville in 09. Are you listed there? They have an outstanding support group, and of course they are very good at liver transplants. Feel free to contact me if you have questions or want more info.
I know that the wait can be hard esepecially as one is not feeling well, and I find patience is not one of my best virtues. But try not to give up hope and remember you can always find plenty of support here on this forum in this community of such brave and caring individuals. I have had a few times when I almost felt like giving up, but then a new hope came and lifted me up. May you soon find new sources of strength and hope to help you journey on, and I hope that your wait for a transplant will not be too much longer. Many hugs.
Waiting oh so patiently for a liver so I can have a life again! I try to stay positive, strong and take one day at a time but sometimes I want to lay my head down and go home to Jesus.
I am a fan of UMiami tx but heard great things about Mayo up there!
Hi everyone :) , wondering if there is anyone here who had a liver transplant done t the Mayo Clinic in Jacksonville Florida ??
Hello Kim and welcome to TF. I received a liver tx at The Methodist Hospital in Houston back in July, 2011 and doing very well at present. Please feel free to join an existing discussion here in the Liver Transplants group or start a new one of your own by clicking "Add a Discussion". As you have probably noticed, there are many conversations going on across a variety of subjects and you are most welcome to join in on anything that interests you or in which you can contribute. It is good that your condition is stable and you are fortunate to be in the care of a Methodist transplant institution. I look forward to your future input here.
Thank you for sharing- We have many bloggers who post their blog posts here too. Feel free to do this.
I everyone. New here and just wanted to wish you all the very best in your journey. Pre or post transplant. I have been listed for 3 years now and am "stable" I was diagnosed with Budd Chiari Syndrome after my pregnancy ultrasound was showing my liver was enlarged. Life hasn't been the same since, but I have still been so blessed. Any other bloggers here? Id love to connect.
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