Comment

Comment by A.J. yesterday

Connie,  I am praying that you get your transplant very soon. I know the struggle you are going through and I can remember the feelings very well. Keep the faith. When it comes, all you are going through will be lifted and you will be back in the light again. Please stay connected. Aloha, AJ

Comment by Linda Jacobus Toscano yesterday

Connie, 

You have touched my heart with your comment, as my best friend who was your exact age suffered terribly from Hep C.  I am actually a member here because of my daughter, who had a liver transplant for sudden acute liver failure (cause unknown) at age 10 in 2009 in Philadelphia.  During my daughter's very bumpy recovery, my best friend was diagnosed with Hep C and cirrhosis. What a terrible coincidence...I felt like I was surrounded by liver disease, my daughter and my best friend at once. Anyway, they said my friend must have had the Hep C for many years, and it is believed she probably contracted it as a nurse exposed to needle sticks and body fluids in the 70's and 80's.  She sadly did not have medical insurance at the time of her diagnosis, and did not receive the proper care.  I hope you get regular liver ultrasounds, as she did not, and it cost her life.  The ultrasounds watch for cancer to develop, and if it does develop you get a much higher priority on the transplant list.  She unfortunately discovered a tumor when it was too advanced, and she was no longer eligible for a transplant. I will pray for you to be lucky, educated, well cared for, and strong.  I miss her everyday.  I wanted to share this in case it helps. 

Comment by Richard yesterday

Casey, I had a liver tx at the Mayo in Jacksonville in 09.  Are you listed there?  They have an outstanding support group, and of course they are very good at liver transplants.  Feel free to contact me if you have questions or want more info.

Persevere

Richard

Comment by Bobbiejo yesterday

Dear Connie,

I know that the wait can be hard esepecially as one is not feeling well, and I find patience is not one of my best virtues. But try not to give up hope and remember you can always find plenty of support here on this forum in this community of such brave and caring individuals. I have had a few times when I almost felt like giving up, but then a new hope came and lifted me up. May you soon find new sources of strength and hope to help you journey on, and I hope that your wait for a transplant will not be too much longer. Many hugs.

Comment by Connie yesterday

Waiting oh so patiently for a liver so I can have a life again! I try to stay positive, strong and take one day at a time but sometimes I want to lay my head down and go home to Jesus.

Comment by mark on May 15, 2013 at 12:45am

I am a fan of UMiami tx  but heard great things about  Mayo up there!  

Comment by Casey on May 14, 2013 at 11:54pm

Hi everyone :) , wondering if there is anyone here who had a liver transplant done t the Mayo Clinic in Jacksonville Florida ??

Comment by Mark on April 8, 2013 at 10:17am

Hello Kim and welcome to TF. I received a liver tx at The Methodist Hospital in Houston back in July, 2011 and doing very well at present. Please feel free to join an existing discussion here in the Liver Transplants group or start a new one of your own by clicking "Add a Discussion". As you have probably noticed, there are many conversations going on across a variety of subjects and you are most welcome to join in on anything that interests you or in which you can contribute. It is good that your condition is stable and you are fortunate to be in the care of a Methodist transplant institution. I look forward to your future input here.

Comment by Hostess Risé on April 8, 2013 at 10:00am

Hi Kim

Thank you for sharing- We have many bloggers who post their blog posts here too. Feel free to do this.

Comment by Kim on April 7, 2013 at 1:34pm

I everyone.  New here and just wanted to wish you all the very best in your journey. Pre or post transplant.  I have been listed for 3 years now and am "stable"  I was diagnosed with Budd Chiari Syndrome after my pregnancy ultrasound was showing my liver was enlarged.  Life hasn't been the same since, but I have still been so blessed.  Any other bloggers here?  Id love to connect.

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