Information

Liver Transplants

This group is for our friends interested in sharing information regarding all aspects of liver transplantation. 

We are here for support.

Website: http://www.transplantfriends.com
Members: 288
Latest Activity: Apr 8

Discussion Forum

biopsy

Started by Maymoonshine. Last reply by Howie Feb 4. 3 Replies

social security

Started by Maymoonshine. Last reply by Maymoonshine Jan 26. 6 Replies

so I went to see my doc

Started by Maymoonshine. Last reply by Cryoseller Jan 4. 22 Replies

Happy New Year

Started by stu. Last reply by stu Jan 1. 4 Replies

so I got my 3rd cancer... :)

Started by Maymoonshine. Last reply by Mark Dec 23, 2013. 7 Replies

SSDI

Started by Tim O. Last reply by Duane Kellar Nov 26, 2013. 11 Replies

Liver cancer

Started by Denise. Last reply by Sudhir Dewan Nov 26, 2013. 11 Replies

cyclosporine

Started by Brad. Last reply by Lisa Nov 12, 2013. 19 Replies

Hair Loss

Started by Heather. Last reply by Jan Oct 12, 2013. 5 Replies

Night Sweats - Liver Transplants

Started by Sandra Barber Hughes. Last reply by Heather Sep 18, 2013. 42 Replies

Rapamune

Started by Jim. Last reply by mark Aug 31, 2013. 5 Replies

additional question about cost

Started by Maymoonshine. Last reply by Rick Kilpatrick Aug 21, 2013. 18 Replies

pre TX symptoms

Started by Maymoonshine. Last reply by NTripathi Aug 9, 2013. 20 Replies

what did you tell your family?

Started by Kim. Last reply by Kim Aug 7, 2013. 2 Replies

Rib pain

Started by Callie. Last reply by Maymoonshine Aug 6, 2013. 6 Replies

Comment Wall

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Comment by Johnlene Kennedy on January 26, 2014 at 12:09pm

Hi all im Johnlene ive been on trasnsplant waiting list for 4 yrs now going on 5 when i got to Baylor In dallas tx i was so bad i wanted to die that was in nov 2009 it is now Jan 2014  i had the TIPS done in March 2010 at Baylor in Dallas tx and my Dr  James F. Trotter still tells me to this day he really didnt think i was going to make it that fist yr. the Tips has helped  me tremdosly. i went from a meld score of 23 to a  6 now its back to a 8 i still have good and bad days but i will survivei have 3 beutiful grandbabies that  need me  and i need them  thats my reason for fighting so hard to  do the right things to keep me  going till its my time for trasplant.

Comment by Maymoonshine on December 19, 2013 at 7:32pm

Welcome Dragos. Wow 16 years old!! I wish you all the best.

Rick it's interesting to see the different stages of post-transplant. I wish you the best too.

Comment by Dragos on December 19, 2013 at 10:15am

Hey i also take  IMURAN and MEDROL anyone know about this meds?

Comment by Bobbiejo on December 19, 2013 at 9:32am

Welcome, Dragos! Congratulations on your recent liver transplant! It may be hard to fight the temptation for foods with lots of sugar and salt, but it will be worth it in the end. Besides, I have found that as I ate more healthy, the less I craved that which was so much more unhealthy. Also there is the adage of everything in moderation. I am glad you are doing well, and I hope you may continue to be blessed by your transplant. Best of wishes.

Comment by Dragos on December 19, 2013 at 5:24am

Hello all! Im Dragos, a 16 year old boy from Romania. 2 yrs ago  i was diagnosted with autoimmune hepatitis which led to cirhhosis. So ive had a lever tx 3 month ago and everything its quite good. I I have a big appetite for sugar and salt. I take medrol so ive have a low salt and sugar diet . Thats quite bad but ill try to control myself. I will post here frequently

Comment by Rick Kilpatrick on October 15, 2013 at 9:39pm
Reginald,
That is great news. I am 5 months post liver tx and I'm still having a lot of numbness and tingling in my hands, feet, and legs. All labs are normal as is my blood sugar levels.
Any info would be appreciated
Comment by Reginald Tom Wickett on October 15, 2013 at 9:30pm

When I got my liver transplant on Jan. 7th 2010. My meld score was 14 or 15. & after post, they put me on predisone for 5 mons. & I was really on edge, my wife & friends treaded slowly. After 5 mons. post, I was back playing slow-pitch & walking the dogs with my wife.Last 2 yrs. in the winter season, curling 3 times a week. My wife saved my life many times, 8 comas & other situations. I think of my Donor & His Family every-day, hugs to pre & post.

Comment by Melody on October 12, 2013 at 8:19am

Bobbiejo.  Thank you for your support and prayers.  Iam not weak or frail, which all are surprised.  Iam very active and always doing something. I work on my own yard all the time, swim, walk alot and help anyone that needs it.  Everyone says I do more than a full-time employee.  Lots of energy..Prayers and my belief in the Lord guide me every day.    Melody

Comment by Bobbiejo on October 12, 2013 at 8:12am

I cannot comment on how long it might take (I got a liver but many other organs too), but I wanted to congratulate you on soon being on the waiting list. I hope it will not be too long of a wait. I will keep you in my thoughts and prayers. May you be able to take the time until then to get stronger and more prepared for when the right call comes. This became my focus when I was waiting, and I think it really helped because it gave me goals to work for and kept me as active as possible as my weak body would let me before my transplant, sometimes surprising myself by what I did. Best of wishes and many hugs.

Comment by Melody on October 12, 2013 at 6:53am

Rick & Bigger,  Both of you I thank very much-Iam new at this and their are so many questions that I haven't gotten answered. Its :It all goes by factors"- "all Depends"I understand their is no set date but will it be another year?  Thanks ,  Melody

 

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