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This group is for our friends interested in sharing information regarding all aspects of liver transplantation.
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Latest Activity: Apr 8
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Hi all im Johnlene ive been on trasnsplant waiting list for 4 yrs now going on 5 when i got to Baylor In dallas tx i was so bad i wanted to die that was in nov 2009 it is now Jan 2014 i had the TIPS done in March 2010 at Baylor in Dallas tx and my Dr James F. Trotter still tells me to this day he really didnt think i was going to make it that fist yr. the Tips has helped me tremdosly. i went from a meld score of 23 to a 6 now its back to a 8 i still have good and bad days but i will survivei have 3 beutiful grandbabies that need me and i need them thats my reason for fighting so hard to do the right things to keep me going till its my time for trasplant.
Welcome Dragos. Wow 16 years old!! I wish you all the best.
Rick it's interesting to see the different stages of post-transplant. I wish you the best too.
Hey i also take IMURAN and MEDROL anyone know about this meds?
Welcome, Dragos! Congratulations on your recent liver transplant! It may be hard to fight the temptation for foods with lots of sugar and salt, but it will be worth it in the end. Besides, I have found that as I ate more healthy, the less I craved that which was so much more unhealthy. Also there is the adage of everything in moderation. I am glad you are doing well, and I hope you may continue to be blessed by your transplant. Best of wishes.
Hello all! Im Dragos, a 16 year old boy from Romania. 2 yrs ago i was diagnosted with autoimmune hepatitis which led to cirhhosis. So ive had a lever tx 3 month ago and everything its quite good. I I have a big appetite for sugar and salt. I take medrol so ive have a low salt and sugar diet . Thats quite bad but ill try to control myself. I will post here frequently
When I got my liver transplant on Jan. 7th 2010. My meld score was 14 or 15. & after post, they put me on predisone for 5 mons. & I was really on edge, my wife & friends treaded slowly. After 5 mons. post, I was back playing slow-pitch & walking the dogs with my wife.Last 2 yrs. in the winter season, curling 3 times a week. My wife saved my life many times, 8 comas & other situations. I think of my Donor & His Family every-day, hugs to pre & post.
Bobbiejo. Thank you for your support and prayers. Iam not weak or frail, which all are surprised. Iam very active and always doing something. I work on my own yard all the time, swim, walk alot and help anyone that needs it. Everyone says I do more than a full-time employee. Lots of energy..Prayers and my belief in the Lord guide me every day. Melody
I cannot comment on how long it might take (I got a liver but many other organs too), but I wanted to congratulate you on soon being on the waiting list. I hope it will not be too long of a wait. I will keep you in my thoughts and prayers. May you be able to take the time until then to get stronger and more prepared for when the right call comes. This became my focus when I was waiting, and I think it really helped because it gave me goals to work for and kept me as active as possible as my weak body would let me before my transplant, sometimes surprising myself by what I did. Best of wishes and many hugs.
Rick & Bigger, Both of you I thank very much-Iam new at this and their are so many questions that I haven't gotten answered. Its :It all goes by factors"- "all Depends"I understand their is no set date but will it be another year? Thanks , Melody
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