Liver Transplants

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This group is for our friends interested in sharing information regarding all aspects of liver transplantation.

We are here for support.

Website: http://www.transplantfriends.com
Location: Right Here On Transplant Friends
Members: 155
Latest Activity: 24 minutes ago

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Discussion Forum

Night Sweats - Liver Transplants

Started by Sandra Barber Hughes. Last reply by stu May 24. 20 Replies 1 Like

Has anyone had issues with night sweats? My husband has been waking up dripping with sweat every night. We thought pre Tx it might have been just another symptom of liver failure, but there were so many issues we were dealing with that we over looked it. He is now 8 weeks post Tx and he is still having this issue. I am wondering if anyone else experienced this.Continue

Tired and weak.

Started by Aaron. Last reply by Mark May 23. 27 Replies 0 Likes

As some of you that already know me, I am yet to undergo my liver transplant. I am on the waiting list and my MELD score is ranging anywhere from 12-17. Doctors say it's just a matter of time, and they can't tell if it's going to be 4 months or 6 yrs. So I've come to the conclusion just to live like this and try to stay positive. I think the hardest part is being so Tired and Weak all the time. Caffeine seems to help a bit, but not a lot. I am only 40 but walking around like a 90 yr old man.…Continue

Kidney transplant after liver transplant?

Started by Teresa. Last reply by Linda Jacobus Toscano Apr 18. 7 Replies 0 Likes

Good Morning...Hoping to find others that have been through what is ahead of me... Has anyone had a kidney transplant post liver transplant? I had my liver transplant due to polycystic disease on 11/23/09 and am now on the waiting list for a kidney trnasplant. After a bout with rejection and thymoglobulin treatments, huge doses of solumedrol and prograf, my Creatinine is now at 4.0. In addition, my platelet count, WBC, and Hemoglobin counts are very low so the surgeon is consulting with other…Continue

Gluten Intolerance and Liver Transplants

Started by Mark. Last reply by Laurel Apr 17. 17 Replies 0 Likes

There are many, many recent articles about wheat gluten intolerance and related health problems, including potential liver damage. More and more people are adopting gluten free diets with immediate positive impact to their health. I have several questions for possible discussion:1. Why does the mainstream medical establishment continue to marginalize this as a causal factor in many internal diseases? Does your treatment team take this condition seriously?2. Given that symptoms are not…Continue

How do you feel.......mentally?

Started by Mike. Last reply by dr than zaw Apr 17. 69 Replies 3 Likes

A lot of issues has come to mind during my 5 years post transplant, I'm thinking of things like ..when will my transplant reject, how long will I live, Is there life after death, or is it just a big nothing. Why did someone have to die for me to get my gift...etc. Just wondering if anyone out there has had these thoughts also?!

My dad is not doing well after liver transplant. Very worried

Started by Laura Jennie. Last reply by Rachel Apr 2. 13 Replies 2 Likes

Hi all. my dad had a liver transplant 4 weeks ago. since then he has had to have 3 additional surgeries. the doctors were amazed that he made it. since the transplant he has not eaten solids. he has no appetite. feels sick. he also seems a bit depressed. The doctors told us today that if they dont put put a feeding tube in he will die. This is a man who always was positive. i dont understand why my dad is not eatinh when he knows how important it is for the healing process. can anyone please…Continue

A member brought up this question about our liver groups

Started by Hostess Rise'. Last reply by Sandra Barber Hughes Feb 22. 15 Replies 0 Likes

A member asked why do we have two liver groups? Do you all find the two groups confusing? Do you think the group creator should have theirphoto up? I need feedback on all aspects of this website. Many of you find this site confusing. It is like a city here. There is so many ways to communicate and one can get very lost. No hard feelings- Please send feedback to this thread. Thank youRise' Continue

Contents of duplicate group - Liver Transplant (archived text)

Started by Mark. Last reply by Mark Feb 22. 2 Replies 0 Likes

This file contains a text only version of the discussions stored in the group Liver Transplant. It is for reference purpose only, as the group is a duplicate to this group and will be deactiviated.- Posted at the suggestion of Hostess Rise'. Feel free to download and peruse at your pleasure. LiverTransplant.txt Continue

My out of state Quest

Started by mariano. Last reply by elreyfeo Feb 21. 23 Replies 3 Likes

I wanted to share my experience, it may help someone down the road. At the start of this ordeal I was living in the San Francisco Bay Area. Today I am in Austin. Here you have the good, the bad, funny.I was diagnosed with Primary Sclerosing Colangitis in the year 2000. I had UC since I was 14, and I belong to the 10% of people that end developing PSC.I was doing my yearly checkups, and in early 2008, I developed a bit of jaundice in my eyes. I went for an angioplasty March 14th 2008. The doc…Continue

Greetings from Houston

Started by Dan. Last reply by Regan Feb 15. 15 Replies 2 Likes

Hello, Fellow Liver Transplantees, Dan from Houston just checking in; this is my first group and I am a new member on the site. Had my transplant in 1989 and seven rejection episodes since but, remarkably, still here. The liver is an amazing organ, ever regenerating itself. I never would have believed I would still be alive after all this, but here I am. Did any of the rest of you have your transplants in your teenage years, and/or after a lifetime of hospital visits and medical problems? …Continue

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Comment by stu 24 minutes ago: Hi LaureI, I am 3 3/4 years out and was a non responder prior to transplant. I had to come off treatment before due to low platelets. I have been responding since transplant but got discouraged after being on treatment for a year then due to an unrelated platelet issue had to come off, the virus returned, I m hopeful it stays that way, i WISH you luck with the new treatment.

Comment by Laurel 49 minutes ago: Jerry and Stu; I should be starting the triple therapy next month. I am now stage 2/grade 3. I have had my new liver for 2.7 years.The first 18 months were good. I do not feel bad. The lab tests and biopsies tell the truth. I have geno type 1A and I am a non responder with the two drug therapy which I did in 2004. Let's keep in touch.

Hi Linda. I know one dead guy and one dying who tried to help themselves with supplements and special diets. You just do not know what you are getting or how much. I am a strong believer in medical science.These companies are out to make money. They do not know you or care about you. You most probably could not sue them because they put disclaimers on their products. What does natural mean? Like aspirin because it comes from tree bark? Good luck to you but until they do long and thorough studies I will not take any of them.

Comment by stu yesterday: Hey Jerry , I had a similar return to fibrosis and straited the peg/riba treatment when I was stage 2/3, so far it has been working but that was 2 years ago, My liver enzymes are normal and I am undetectable for the the HCV, but I did have a return to detectable and have to stay on treatment until it's been 1 year undetectable which will be September. I am not confident it will remain that way. My hospital has been using the new treatments since January, I am told with great success . I wish you well.

Comment by Linda Jacobus Toscano on Friday: About the turmeric and other supplements: Ono, I was wondering if your doctor knew about the Sweetish Bitters. I give my daughter some supplements to help her overcome chronic rejection, and one thing that holds some promise is turmeric (curcumin). Some studies show that it reduces rejection of transplanted organs, and that it also reduces kidney damage from immune-suppressants. I had concerns about interactions with her other meds, and the possibility that it can cause bleeding, so I haven't suggested it yet to her docs. Right now, she takes fish oil, COQ10, probiotics, and some vitamins. These things were all approved by docs.

Laurel, very interested in the article you posted, although it was pretty general. Would like more specifics, guess I could google around. I generally stay away from herbal products because they are very potent, just like medications really, only less studied. It is easy to believe that herbs (especially high doses) could cause liver damage. But I don't think we should be scared away from all supplements. Some hold a lot of promise, and can be much less toxic than the drugs we get from the pharm companies. Because many are natural substances that the body is already equipped to handle. Problem is that they are not studied enough, because no one can patent a natural substance, therefore they cannot make money off of them.

Comment by JERRY on Friday: Hello all, been away for a while. Just finished my 2nd annual check up. Post liver hep c tranx. patient. Everything was going great until the biopsy results came in. Stage 3/4 fibrosis . Such bad news!. Last year I was stage 1/2. Mayo team fought with insurance to approve new triple therapy meds (telepavir). They said only FDA pre tranx. approved at the time and turned me down. After this 2nd biosopy they tried to get insurance to approve triple therapy again, and after no, after no, they finally got a YES!!!!! I start the 5-31-12. Just wondering how others are tolerating treatment, side effects ect. Especially if later stages of fibrosis is present. Happy trails, Jerry

Comment by Laurel on Friday: http://abcnews.go.com/Health/herbal-dietary-supplements-toll-liver/...

Please read this article and similar ones.

Comment by Ono on May 24, 2012 at 9:33pm: Recently I saw my hepatologist. He explained that one we've had surgery, the scar tissue doesn't allow the kind of give, that our belly had pre-tp.

I began taking a product called Sweetish Bitters by Gaia, before meals. It's made mostly of turmeric and some other herbs. The swelling problem is gone. After I use up this bottle, I'm going to try simply using turmeric.

Comment by stu on April 18, 2012 at 10:09pm: My transplant nurse said it is quite common to feel a little pain near the scar as the nerves never fully reconnect. My is minor most times, occasionally I get bloating and have issue with ascites but am fine now, my doc's put me on lasix occasionally, that seems to work. I am 3.5 years out and for the past year have been comlication free, So I feel good.

Comment by Reginald Tom Wickett on April 17, 2012 at 11:54pm: Hi Mohan. I had my liver transplant 2 yrs. ago & have no pain where my scar is. The only pain I have is in my neck & lower back, & hot flashes. I wish you well & stay positive. It would be one happy world, if there was no pain. Have a good nite. Tom.

Comment by Mohan Sagar on April 17, 2012 at 11:08pm: I am 3 years out (April 18) and still feel pain along my scar, and have bloating issues, too. My local transplant buddy had his transplant 6 years ago, and struggles with the same. I think it's something we have to live with.