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HCV LIVER TRANSPLANT

Did You Have A Liver Transplant Due To Hepatitis C? This Virus and Hepatitis B are the leading cause for the need for Liver Transplant. Having A Liver Transplant Is Not A Cure For Hepatitis C This Virus Is In Our Blood It Mutates In Our Liver!

Website: http://transplantfriends.ning.com
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Latest Activity: Mar 26

Discussion Forum

solvadi treatment

Started by rick. Last reply by Linda M Mar 26. 6 Replies

well after taking new hep c med, sovaldi for one month, my pcr test result was non-detectable viral load.that means the meds have killed the damn virus. i do not have hep c anymore. no more…Continue

solvadi

Started by rick. Last reply by mark Mar 18. 3 Replies

hey, is anyone taking solvadi (sofosbuvir.)?? i had my liver transplant @ Cedars 7/11//12, just started this new med 1 week ago. i know i am one of the first patients in Los Angeles to start this…Continue

sovaldi treatment

Started by rick. Last reply by Emma Birch Mar 16. 6 Replies

well after taking new hep c med, sovaldi for one month, my pcr test result was non-detectable viral load.that means the meds have killed the damn virus. i do not have hep c anymore. no more…Continue

Post Transplant worsening of pre transplant minor issues

Started by Mike Phillips. Last reply by rick Feb 25. 47 Replies

I am suffering from several issues. Most were slightly present pre-op that I assumed were caused by my sick liver., but are now severely restricting my activities.. Joint pain, hands shoulders wrists…Continue

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Comment by Linda M on December 16, 2013 at 4:53pm

Hi, I have been gone for awhile but am back now.  Waiting for transplant due to HepC/cirrhosis.  Hopefully beginning new treatment sometime after January 2014. LindaM

Comment by mish on October 12, 2013 at 12:28am

I am on the Transplant list-I have not yet received a transplant. Am I in the correct page? Forgive me I just joined and have not been here more the 3 times...

Comment by Reginald Tom Wickett on September 30, 2013 at 8:59pm

I had my liver transplant on Jan. 7th, 2010. I had hep. C. & serosious of the liver, I am doing pretty good, My Wife & I do a lot of walking with the dogs, play slow-pitch & now I ve started curling 3 days a week, been curling 10 yrs. except for 3 yrs. when I was sick. My Wife saved my life many times when I was sick.She is my everything. I think of my Donor & His Family every-day.  Tom.

Comment by Laurel on July 4, 2013 at 3:00am
Thanks for the tip. I have zero side affects with the ribavirin or the interferon. I am anemic and my platelets are low but that is fixed with a shot and some pills. I think the Incivik maybe harder to handle but I am doing ok. I finally went back to my pilates class and I went swimming twice this week and walked at the lake near my house.I move a little slower but like you I want to keep on moving.I have been on the Incivik 7 weeks already.You give great advice.
Comment by Ono on July 3, 2013 at 8:40pm

Good luck with your treatment Laurel.

I forced myself to walk every day I could while doing tx. Often I really just wanted to lie on the couch and certainly wasn't up to it the day after my shot, but I feel by keeping up on my walks, it helped me recuperate afterwards as well as lifting my spirits during treatment.

Comment by stu on July 2, 2013 at 10:09pm

Keep it up Laurel, I went through two years on the old therapy and have been undetectable since Sept of 11,  I also had Genotype 1A,. it worked and my liver enzymes are pretty normal now.  

Comment by Laurel on July 2, 2013 at 2:02pm
I am now on the triple drug therapy.I started the two drugs on tax day and added the Incivik on May 13. My platelet count is around 30 so I take Promacta every night on an empty stomach.I give myself an injection every five days of Procrit for the anemia. I have had no skin issues.I do get loose stools and it has been hard eating enough fat...20-25 grams twice a day with the Incivik. My Hep C is below 47 down from over 7 million. I am still detectable but not countable. I am happy with this.My liver numbers are all within normal range. They were in the hundreds.So, if nothing else my stage 3 grade 3 new liver is getting a break. I do get tired but I can still do pretty much whatever I want. I dropped my two exercise classes and will start again later.If this works for me then it will be worth every inconvenience.If it does not work because I have the hardest to treat Hep C then I will try something else. I was diagnosed with liver cancer over 5 years ago.This has all been extra time and I am gratful.
Comment by Howie on March 10, 2013 at 5:39pm

Laurel,

'Do you know what the percentages are'?

The efficacy of this treatment is limited mainly by the poor tolerability in liver transplant recipients, and thus SVR rates are lower than in immunocompetent nontransplanted individuals. Overall, SVR rates after liver transplantation for HCV genotype 1 infection treating with peg-INF and RBV are around 25–30%'. Furthermore, prolonged therapy seems to be required even in patients infected with the easier to treat genotypes 2 and 3 and extending antiviral therapy for more than 48 weeks might prevent virological relapse in many patients.

  1. Cescon M, Grazi GL, Cucchetti A et al. Predictors of sustained virological response after antiviral treatment for hepatitis C recurrence following liver transplantation. Liver Transpl 2009; 15(7): 782–789.

Howie

Comment by Lisa M on March 10, 2013 at 3:00pm
Great to hear that Stu. And to answer your question Laurel it was the second time I was treated
Comment by Laurel on March 10, 2013 at 2:43pm

Wow, there is hope. Do you know what the percentages are?

 

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