HCV LIVER TRANSPLANT

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Comment by BOBBI 5 hours ago

just returned from my new transplant clinic and brand new liver dr.i inquired about getting in the study group for the new hepc drugs.unfortunatley i cannot get in on the new drugs .they are only doing the study at 2 hospitals in the country on post transplant patients.my dr said it is very risky as it messes with your anti rejection meds.i would have to have daily labs and adjust my meds accordingly on a reg basis.their having a conference on this in nov with other hepatologist in the country to find out what the studies are showing.so looks like ill be stuck with this nasty ol virus for awhile longer.but was very very pleased with my new facility and dr.so im glad i made the move over to them even tho the end result wasnt quite what i was hoping for.

Comment by Mike K on April 20, 2012 at 9:26am

Well Bobbi you have really got it going on. Keep fighting the good fight. I admire you so much. Wish I had half the energy you have.

Comment by BOBBI on April 20, 2012 at 9:12am

hey laurel that was to funny!but that is exactly what im doing .i got rehydrated yesterday just so i could go to the big dem convention sat.all my candidates will be there.were also having a greet and meet next sat for our district senator.im in charge of the hor duerves.well also be serving all local wines beer and cheeses from the area.my girlfriend and i were so shocked the invite was excepted weve invited all the dems in the county.we dont get much info up here like they do in the cities so were determined to get the word out .i said ill try to make alot of the food ahead and freeze in case i get sick again.idont care if im in a wheel chair im determined to make it this will be the biggest dem party this little town of 1500 people ever saw.ive been making calls and vomiting into a bucket between calls thats how determined i am.like i said from the begining im doing this for all the sick people in this state losing there medical help that dont have a voice.thank you again for your support of wisconsin laurel.well be getting rid of the gop poster boy.bobbi

Comment by mark on April 19, 2012 at 11:43pm

    when I first went into coma I was taken to Memorial west here in Pembroke Pines  they stabilized me and  wanted to sign me up for HOSPICE!   my sisters had a better idea and got me to Jackson Memorial in Miami!   got a new liver and it has worked out way better than hospice!  Still here after 4 yrs! enjoying my do over!      namaste! mark

Comment by Laurel on April 19, 2012 at 10:21pm

What a nightmare. Make the annex hospital call the hospital where you got the transplant or you get them on the phone. Like Stu said. It is a shame you have to practically do it all yourself. Being left outside in your pj's is terrible. Document all of this if you have the energy. It is a shame for such a rich country to treat people this way. And it will be worse if the GOP takes over. Hey, stay alive long enough to vote. Just a little humor. XXXOOO

Comment by BOBBI on April 19, 2012 at 3:20pm

well i broke down and went to my primary dr today.what a nice guy wish all mt drs were like him.old school easy to talk to and down to earth.he put me on iv fluids right away and lots of labs of course but i feel better already i must of been really dehydrated.he said my yellow skin might not neccasarily be my liver could be anemia.well see get my labs back mon.he also liked the fact that i changed hospitals and transplant clinic so looks like im moving forward in the right direction.got alot to do in the coming weeks cant afford to be sick my grassroots wisconsinites need me.

Comment by BOBBI on April 19, 2012 at 7:42am

i do have some funny stories about the annex hosp. up here.of course i can laugh now.but one time i went there sick they put me on iv fluids for a couple of hrs and gave me a shot of delodin and put me out in the parking lot to wait for my ride home of course i was 20 miles from home .there i was in the middle of the night in my pjs in the parking lot all doped up leaning up against the wall .what a sight i must of been.thank goodness it was a small town .ive got similar stories.needless to say ive reported them .now they all rember me .the dr even said one time i remember you but ill treat you anyway.their such lovely country folk.that warm country hospitality.i think id go there now just to purposly annoy them.but im feeling better today.so ill wait til next time .hopefully that next time is a ways away yet.thank you guys for your kindness and support you dont realize how much it means to me

Comment by stu on April 18, 2012 at 10:00pm

Bobbi,  you really should get to the hospital.  I went through some episodes the year after transplant and had a fever go up to 103.  they can stabilize you.  I know it's difficult to go to a local hospital with no trnplt experience , but when I go here they call my transplant center and get instructions to stabilize,. I usually spend a night locally until a bed is ready at my tranplt center.  but at least then I go right in to the room and don't have to deal with a NYC ER,  that's a scary place.  I did that once and waited in there for a day and a half before being admitted.  along with the gunshot victims and OD cases.  no fun,   

Comment by Mike K on April 18, 2012 at 9:28pm

You got it Bobbi, I'm wishing you luck with all my heart. Remember that you deserve health care as much as anyone else and the workers at the emergency center are there for the sole purpose of helping you. Make their day by paying them a visit.

Comment by BOBBI on April 18, 2012 at 9:13pm

hey mike no im still up here at home i cant get an appt with st lukes for 3 weeks .so im just hanging on til then.if i would of hit 101 last night i was going to go to er.been there so much in past i hate to go.its an annex hosp they either send you home or to someone else who dont know what there doing.i believe i am the only liver transplant they have up here.we had another one a year ago but she died and she was younger than me.one time they sent me by helicopter to madison but with all the health cuts theyve made lately you dont hear that helicopter going to much any more. if my fever gets to 101 before i get to milw wish me luck i will go to the hospital then

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