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Transplant No-No's

What has your transplant center advised you regarding transplant precautions regarding your new life?

Website: http://transplantfriensds.com
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Members: 129
Latest Activity: May 2

Discussion Forum

Shingles

Started by Judith. Last reply by Laurel Apr 26. 21 Replies

Went to the doctor yesterday because of pain/welts and rash on my neck and shoulder.  Had a feeling that it was Shingles...AGAIN!  This is the 4th time for me to get them.  Mine come when I am really going through times of stress.  I have to try to deal with thiings in a much calmer way than my personality is used to!:-)  I do pretty good most of the time, but this last month was a doozy and there was just too much stress for me to handle.  The other 3 times I had them in my head which was just…Continue

candles

Started by Rachel. Last reply by Rachel Apr 25. 8 Replies

Does anyone know if it's okay to be around burning scented candles?Continue

Grapefruit

Started by Allison. Last reply by Melinda Mar 13. 13 Replies

I've been told my only no-no (besides taking unauthorized medications) is grapefruit. No grapefruit or grapefruit juice. Does anyone know specifically why? All I know is that the citric acid can change your medicine potency...but then why can I eat oranges????-AllisonContinue

Tags: drugs, transplant, grapefruit

Share the No-No's that you know

Started by Hostess Rise'. Last reply by BonF Feb 18. 7 Replies

The first transplant No-No that rings loud and clear for me is never take over the counter supplements without asking your doctor first.Please add another No-NO! Thank you!Rise'Continue

Tanning...

Started by Mel. Last reply by Laurel Feb 18. 28 Replies

  I know this is a stupid question, espicially after all we go through on the pre op for a heart trans plant to the actual operation and then post opt. But I was an avid tanner for many years prior to my transplant last year. And as Blessed as I am to have this heart and to be walking this earth and playing with my grand kids. I've got to ask, would it really hurt if I went back to tanning again. To the best of my knowledge, I don't think predinsone, prograf, or celcept as any side effects to…Continue

More No-No's

Started by Hostess Rise'. Last reply by Imelda Vasquez Feb 15. 11 Replies

To keep the information for this group for easier viewing, please add more do's and don'ts following this post.  Continue

NO Green Tea, Herbal Teas or Pomegranate

Started by Judith. Last reply by Laurel Feb 15. 30 Replies

I went to a "Living Well" seminar put on by our hospital and the National Kidney Foundation of Wisconsin.  Found out that there have been rejections linked to green tea, herbal teas and use of pomagranete!  The Pomagranate works just like the grapefruit does with meds and the teas are not regulated and is dangerous.  I had been doing all of the above and my labs were all over the place.  Stopped and thankfully things evened out.Continue

Transplant Precautions

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Comment by BOBBI on April 25, 2012 at 9:10pm

i was told by trspl team not to have grapefruit or pomegranite and organ meats unless there well done.and if you notice now alot of juice has pomegranite in it.so im a careful label reader

Comment by Mohan Sagar on April 24, 2012 at 7:22pm

@Holly I don't think the problem would be with the bread as it would the wine from a common cup.  I am not Catholic, but I recall that the priests wipe the cup before presenting it to the next person.  Perhaps by telling your priest, he can a little extra precaution.

Comment by Jay Lackritz on April 24, 2012 at 7:00pm

If someone is handing out bread, without wearing plastic gloves like they use in delis and restaurants, then maybe you might want to suggest that they change their practice. Strangers touching food is unsanitary for all, not just immunosuppressed people. In many states, it would be illegal in a restaurant. As for everyone drinking from the same cup... that sounds crazy to me in this day and age.

Comment by Jay Lackritz on April 24, 2012 at 6:56pm

I can't speak to your religious question, but we were told to even avoid public water dispensers, like in the hospital, doctor's office, etc.  In a similar way, we are also told to avoid salad bars. Wherever people can touch something that might find its way into your mouth, there is a risk of you catching something, especially with a compromised immune system. As such, you have to weigh the risk with the reward.

Comment by Aaron on April 24, 2012 at 6:53pm

Holly,

I would bring this subject up with your priest. I remember as a child drinking grape juice instead of wine, and tiny wafers instead of bread. I believe it isn't the content of what you take but the metaphorical meaning behind it. 

Comment by Holly on April 24, 2012 at 6:18pm

I have a question.  I recently returned to attending Mass at our Catholic church. Communion is  distributed by someone handing you the "bread" and then you drink the wine from a common cup.  I haven't asked my drs. yet but have not participated due to my lack of immunity.  Has anyone else encountered this issue and what have  you chosen to do?  It is hard to think of never taking communion again.  i would appreciate some feedback.  thanks.

Comment by Jay Lackritz on February 22, 2012 at 2:39pm

Just received an email from the FDA today (Feb 22, 2012), informing the general public that "Grapefruit Juice and Medicine May Not Mix."
Who knew???
LOL

The email links to an FDA consumer bulletin page dated today: If anyone would like to know why, you might want to check it out.

http://www.fda.gov/ForConsumers/ConsumerUpdates/ucm292276.htm
or
http://ning.it/xZU5hW

Comment by Hostess Rise' on February 18, 2012 at 10:03pm
Comment by Hostess Rise' on February 18, 2012 at 1:36pm

Yesterday I posted this group on Facebook and there currently 64 replies.  If you are a member of Facebook check out what others are saying about Transplant No'-No's

http://facebook.com/transplantbuddies

Thank you,

Rise'

Comment by Hostess Rise' on February 14, 2012 at 6:24pm

http://www.uwhealth.org/healthfacts/B_EXTRANET_HEALTH_INFORMATION-F...

 

Very important to read about food and drug interactions

 

 

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