Sharing Knowledge Is An Invaluable Experience
This is a group for teens and families.
If you had a childhood illness that lead to transplant please join us and share your story.
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Started by Hostess Risé. Last reply by Hostess Risé Feb 13, 2012.
Tell us about you:)Continue
OK sure im kinda new anyways ill post there
Please post in our liver transplant forum. We only have a few people in this group. I am sure many of the adults will respond to your questions.
I am happy to hear you received the Gift of life!
Hello im 16 ive had a liver transplant 3 month ago ive had autoimunne hepatitis with cirhhosis
b4 i had kidney problems i had never taken a tablet for anything was all ways liquids i had. i just cor swallow anything with out chew it 1st i have a small tablet to slow my heart down an i have to chew that. i have manage to swallow afew tablets but they rather me take the liquids. yep i suffer with high blood pressure so i keep an eye on it now an again at home. i had to have afew bag of blood as i became anemic and i had to have some injection every two or so weeks can not rember the name of it tho. its pot luck in the uk not many people have a donor card. an i guess its how common your blood type is an tissue type is. i was on the list for 18 months ish for a transplant. had treatment for just over 4 years. she must be a brave little girl its alot to go through at her age.
Ha about the pills! Did they have you try practicing with M&M's? My daughter takes only pills, and now she can take handful at a time. She HATES the taste of the liquids:) She is also getting some kidney damage from some of the meds. They say she now has early kidney disease. Watch that BP like a hawk, that will keep you new kidney good longer. So they say. She takes 2 BP meds, but now she has no more protein in her urine, which they say is a big deal. She also gets these Erythropoietin shots to make her less anemic. Did you ever get that? She hates it, says it stings. I just hope she doesn't end up needing a kidney too. Did you wait a long time to get the kidney? I heard that UK has long waits.
ye i am good now. still have the odd off days. prone to pick up infections as we have a low immune system due to the medz. i have trubble with take the tablets so my anti rejection medz am both liquids. they a pain in the ass to get and cost more money like as i am in the UK i dont pay anything like for the medz. an i on a small tablet to slow my heart down as i have fits when my blood pressure goes to high. b4 i got told my kidneys were on there way out i must have been ill for 8 or more weeks going to and from the GP and the hospital just put it do to that i was ill for so long the bug infected my kidneys but they still not 100% sure on that like. just one of those things. after the transplant i was not too well so i was in hospital for two ish weeks. then had to go to the hospital every 3 days for bloods to see how the kidney was then every week an they change the medz to get the right level. 2 years after the transplant i was in and out the hospital all the time picking up bugs an infections. just pumped me with loads on antibiotics for a week then i was ok. the past year i have only been in hospital a hand full of times. and every 6 weeks i have clinic to see how my bloods am and that.
Hey i'm from the uk england. my kidneys packed in when i was 18 back in 2005 just out the blue no real reason why just got put down to an infection. did two+ years on hemo temp lines in an main line in the chest. after two years started to have problems on the hemo black outs an line playing up so i had the CAPD line fitted (for the home treatment) and a fistula done. the fistula day work for me with i am glad of now. was on the capd for two+ years with not problems. and in 2009 got that call for a transplant. it be 3 years old this weekend and going strong.
Let's hear it for all of the brave teens and caregivers of teen transplant recipients!
I had my transplant almost 17 years ago(: I'm 18 now and a freshmen in college(: If you guys have any questions let me know(:
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