teen transplanters

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Comment by bmm2010 on April 16, 2012 at 4:10pm

b4 i had kidney problems i had never taken a tablet for anything was all ways liquids i had. i just cor swallow anything with out chew it 1st i have a small tablet to slow my heart down an i have to chew that. i have manage to swallow afew tablets but they rather me take the liquids. yep i suffer with high blood pressure so i keep an eye on it now an again at home. i had to have afew bag of blood as i became anemic and i had to have some injection every two or so weeks can not rember the name of it tho. its pot luck in the uk not many people have a donor card. an i guess its how common your blood type is an tissue type is. i was on the list for 18 months ish for a transplant. had treatment for just over 4 years. she must be a brave little girl its alot to go through at her age. 

Comment by Linda Jacobus Toscano on April 16, 2012 at 3:58pm

Ha about the pills!  Did they have you try practicing with M&M's?  My daughter takes only pills, and now she can take handful at a time.  She HATES the taste of the liquids:)  She is also getting some kidney damage from some of the meds.  They say she now has early kidney disease.  Watch that BP like a hawk, that will keep you new kidney good longer.  So they say.  She takes 2 BP meds, but now she has no more protein in her urine, which they say is a big deal.  She also gets these Erythropoietin shots to make her less anemic.  Did you ever get that?  She hates it, says it stings.  I just hope she doesn't end up needing a kidney too.  Did you wait a long time to get the kidney?  I heard that UK has long waits. 

Comment by bmm2010 on April 16, 2012 at 3:01pm

ye i am good now. still have the odd off days. prone to pick up infections as we have a low immune system due to the medz. i have trubble with take the tablets so my anti rejection medz am both liquids. they a pain in the ass to get and cost more money like as i am in the UK i dont pay anything like for the medz. an i on a small tablet to slow my heart down as i have fits when my blood pressure goes to high. b4 i got told my kidneys were on there way out i must have been ill for 8 or more weeks going to and from the GP and the hospital just put it do to that i was ill for so long the bug infected my kidneys but they still not 100% sure on that like. just one of those things. after the transplant i was not too well so i was in hospital for two ish weeks. then had to go to the hospital every 3 days for bloods to see how the kidney was then every week an they change the medz to get the right level. 2 years after the transplant i was in and out the hospital all the time picking up bugs an infections. just pumped me with loads on antibiotics for a week then i was ok. the past year i have only been in hospital a hand full of times. and every 6 weeks i have clinic to see how my bloods am and that.  

Comment by Linda Jacobus Toscano on April 16, 2012 at 2:46pm

Great that you got the transplant. How do you feel? I am a mom to 13-yr-old with liver transplant. She had similar situation with sudden failure, they said it must have been a virus. She had hers 3 years ago, but lots of issues. She had couple rejections, and has lot of troubles with the anti-rejection meds. Are you OK with the meds? Must be a lot better than dialysis, maybe that puts it in different perspective.

Comment by bmm2010 on April 16, 2012 at 2:14pm

Hey i'm from the uk england. my kidneys packed in when i was 18 back in 2005 just out the blue no real reason why just got put down to an infection. did two+ years on hemo temp lines in an main line in the chest. after two years started to have problems on the hemo black outs an line playing up so i had the CAPD line fitted (for the home treatment) and a fistula done. the fistula day work for me with i am glad of now. was on the capd for two+ years with not problems. and in 2009 got that call for a transplant. it be 3 years old this weekend and going strong. 

Comment by Mariana Naldi on March 22, 2012 at 11:20pm

Hi Everyone!

Let's hear it for all of the brave teens and caregivers of teen transplant recipients!

Comment by Taylor on February 20, 2012 at 11:21pm

I had my transplant almost 17 years ago(: I'm 18 now and a freshmen in college(: If you guys have any questions let me know(:

Comment by Jessica on February 15, 2012 at 12:26pm

I am not a teen but I was transplanted as a teen! I was born with a rare genetic illness that led to kidney failure at age 16, when I went on dialysis. Two years later I received my transplant. My childhood and teenage years were hugely impacted by this experience, though I didn't realize it at the time. I am now one of the older people living with my disease (I'm only 30), because it used to be almost entirely limited to children who died before reaching adulthood. I feel very blessed to be alive!

Comment by Hostess Rise' on February 13, 2012 at 12:57pm

I was born with Cystic Fibrosis and diagnosed at the age of two. When I was 36, I received my first double lung transplant.

Comment by Hostess Rise' on February 10, 2012 at 4:02pm

Just bumping to the top for all our Mom's who joined today.

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