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Comment by Bobbiejo on April 8, 2013 at 7:00pm

Dear James,

I am so glad to hear that you have done so well with the medication since your small bowel transplant. It is interesting that we are both in our seventh year. I hope that you will have many, many more and find your path forward lined with many more blessings. It truly is a wonder to be alive, and I too try to thank God, my donor, and my donor family everyday. I know it had to be someone young because I am so small. I just hope I can honor that gift in how I spend my life now.  Keep your light shining as you have already brightened my day.

Comment by Bobbiejo on April 8, 2013 at 6:51pm

Dear Judee,

I am Bobbiejo. I had a six organ transplant (spleen, pancreas, liver, stomach, small and large intestine) about seven and a half years ago. I am willing to answer any questions as best I can. There was once a problem with my account on this site and I had to resign up. Perhaps that is what caused a problem. Best of wishes to you.

Comment by James on April 8, 2013 at 3:41pm

Just a comment on prograf. I am in my 7year post transplant, small bowel, and have

been on a high of15mg and low, now of 5. I have never had a problem at all. I take 27 Rx's daily and 70 pills. I begin taking them at 6am and finish at 10pm. I am thankful every day for the gift given to me by a beautifull youg lady of 18 that lost her life and helped many people with her organ donations. Hope everyone has a beautiful day.

Comment by Judee on March 11, 2013 at 1:03pm

Who is BobbieJo & why can't I find her on here?   I see her referred to regarding 6 organs.

Thanks.

Comment by Judee on March 11, 2013 at 12:58pm

Sharon, that is wonderful.  Hope you can stay at low dose to save your kidneys.

Comment by Sharon Oatman on March 10, 2013 at 5:34pm

2 years out from heart transplant and My Tacrolimus levels are stable and I have no problems. I only take 1mg twice a day and myfortic (mycophenolate) for rejection.

Comment by John Dawson on March 8, 2013 at 3:56pm

I'm on prograf, 4.5 mg per day, as my only immunosuppressant, except for 2.5mg of steroid, have never had the problems others report here. Heart transplant, 3 years.

Comment by livecam on March 7, 2013 at 8:53pm

Kinda funny but Prograf and Tacrolimus never affected me at all or if they did I didn't know it.

Comment by Krystal on March 7, 2013 at 6:35pm

hey all   I had a transplant on june 26 04  and been on prgraf eight years and still adusting to it   we all have up and down  that why I feel like we can learn alot from each other  wished I found this site a long time ago :)

Comment by Jennie on January 10, 2013 at 7:56pm

Wow Bobbiejo, 6 organs is a really big ordeal.  I hope that you are doing well.  I respect you so much for being encouraging to other.

I just wanted to say to others that I had a kidney transplant 6 years ago. I remember vividly the first several months when i thought that things would never change. That I would take a ton of meds forever.  Then small victories started to happen.  They slowly would stop a pill. Then reduce a pill and then another would be stopped.  I thought of these as major victories.  I passed out on the tx team, had a biopsy as a part of relapse, but with each step got stronger.

Today I sometimes forget about having the transplant.  Not the actual kidney transplant but that I might have a weakened immune system.  I am so very thankful for my kidney and that I am doing well so far. I hope the same for all of you and that your experiences turn out to overall positive ones.

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