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If you are currently taking Prograf consider joining this group.
Location: transplant friends.com
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Thanks Rise' for asking me to join the Prograf list. Currently I am taking 4 mg/ twice in a day
Thank you for joining. If you want to send a message to the group, click first on Add a Discussion- post your question then if you like send a message to the group. Not all members have their emails turned on so some might miss out.
Thanks Rise' for asking me to join the Prograf list. Yes, indeed I do take Prograf. Believe it or not I was just on the phone with my transplant clinic's pharmacist talking about changing brands and if I needed to be retested in a couple of weeks (which I do). The first 9 years of heart transplant I was on Cyclosporin which my kidney doctor says helped damage my kidneys. I have only been on Prograf for 10 years now. I sure can tell by my Creatine levels if I get out of whack. I look forward to getting acquainted with the group.
I am so glad to hear that you have done so well with the medication since your small bowel transplant. It is interesting that we are both in our seventh year. I hope that you will have many, many more and find your path forward lined with many more blessings. It truly is a wonder to be alive, and I too try to thank God, my donor, and my donor family everyday. I know it had to be someone young because I am so small. I just hope I can honor that gift in how I spend my life now. Keep your light shining as you have already brightened my day.
I am Bobbiejo. I had a six organ transplant (spleen, pancreas, liver, stomach, small and large intestine) about seven and a half years ago. I am willing to answer any questions as best I can. There was once a problem with my account on this site and I had to resign up. Perhaps that is what caused a problem. Best of wishes to you.
Just a comment on prograf. I am in my 7year post transplant, small bowel, and have
been on a high of15mg and low, now of 5. I have never had a problem at all. I take 27 Rx's daily and 70 pills. I begin taking them at 6am and finish at 10pm. I am thankful every day for the gift given to me by a beautifull youg lady of 18 that lost her life and helped many people with her organ donations. Hope everyone has a beautiful day.
Who is BobbieJo & why can't I find her on here? I see her referred to regarding 6 organs.
Sharon, that is wonderful. Hope you can stay at low dose to save your kidneys.
I'm on prograf, 4.5 mg per day, as my only immunosuppressant, except for 2.5mg of steroid, have never had the problems others report here. Heart transplant, 3 years.
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