Evaluation Pre Transplant

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Evaluation Pre Transplant

This is a group for those who are in the process of pre transplant evaluations.

Website: http://transplantfriends.com
Location: transplant friends
Members: 70
Latest Activity: Feb 10

Discussion Forum

Ready to start Again

Started by Sharon. Last reply by miocean Jan 29, 2013. 9 Replies

    OK, I am ready to step out again.  I need some input on what to do to contact other transplant centers, to see if someone will help me.  Do I have to go to each one personally, or do I send them…Continue

Good News

Started by Sharon. Last reply by Jay Lackritz Jan 29, 2013. 5 Replies

     Hi all I found our today that my PetScan was completely NEGATIVE.  Now to find a transplant center that would be willing to talk about doing a Lung Transplant on me.  My pulmonary doctor told me…Continue

Happy Thanksgiving

Started by Sharon. Last reply by Hostess Risé Nov 18, 2011. 1 Reply

I haven't recieved any transplant friends e-mail in a bit, just want to make sure everyone is doing well and to wish each and everyone of you a Joyess and Safe Thanksgiving.Continue

Which Organ(s) are you waiting to receive?

Started by Hostess Risé. Last reply by debfay Oct 28, 2011. 8 Replies

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Comment by Bobbiejo on April 18, 2013 at 7:22pm

Dear India and Steve,

I hope your waiting will soon come to an end and you both will be blessed with the perfect gift. My heart goes out to you as I remember how hard it was waiting in poor health for my transplant. May you both find sources of inspiration and strength to help you on your journey onward. The best of wishes are being flown your way on the wings of hope.

Comment by Steve on April 18, 2013 at 6:58pm

All the best to you too India. I wish that I could say that any of this experience has been smooth sailing. Hopefully, we will see the fruits of our frustration become new lives for both of us.

Comment by Mark on April 18, 2013 at 6:54pm
Good luck to you as well, India.
Comment by India Rose on April 18, 2013 at 6:08pm

Steve- I hear you loud and clear!  I am in a similar boat, waiting for an organ and watching my body fall apart.  I pray for something good and true for both of us.  India

Comment by Mark on April 18, 2013 at 5:30pm
Steve, I hope the good and the true will be there for you soon. Hang in there.
Comment by Steve on April 18, 2013 at 3:20pm

Hi all. My name is Steve andI have been listed at NY-Presbyterian/Columbia since July 2012. After suffering a cardiac arrest in February, I have been elevated to status 1B from status 2. I am now waiting for a hospital bed in a specialized unit or ICU tomorrow (April 19). Either I will be on 2 drips or a Swan until Iam transplanted. I should be a status 1A then. I have AB+ blood, a have been told numerous times that I would get a heart very soon. Let's hope that this time, it finally happens. It's very tough feeling like a puppet on a string, and I sure hope that something good and true is almost here.

Comment by mark on April 4, 2013 at 10:06pm

  CMV   got me about 6mths post tx   thought I was gonna die!  glad I didn't!

Comment by Rita on April 2, 2013 at 4:59pm

I think you have a wonderful attitute ---"this time it is going to be all brand new"

Comment by Judith on April 1, 2013 at 8:53am

Thank you so much Bobbiejo!!!  It means a lot to me to have so many people giving good thoughts and prayers.  We are all in this together!  Judi

Comment by Bobbiejo on April 1, 2013 at 8:38am

Dear Judith,

I am sorry that you have had such a difficult time with the CMV and your kidney trouble. I hope that if you do get another kidney, it will not be too long, and it will be like starting anew, a blank slate that will not be filled in with any problems from the CMV again. I will be sure to keep you in my thoughts and prayers.  Many hugs and best of wishes.

 

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