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This is a group for those who are currently taking Cyclosporine.
Latest Activity: Jun 6
Started by Roger R. Luna. Last reply by Vicki Stoecklein Apr 10.
I am on Cyclo, prednisone and myfortic(cellcept) for 7 years and I feel like crap all the time. I have random body pain I cannot explain, extreme fatigue, Ive had a few lesions removed that had cancer cells, I have chronic sinus issues and no sense of smell and ive suffered from chronic depression. My doctors tell me its from the meds and not much they can do. I find it hard to cope and that it makes my depression worse and feels like a circle. But im alive right.....
Any new advice for Neoral caused kidney damage?
I have been on Neoral 125mg for 5 plus years. I also take Myfortic. I had a liver transplant in 2007. This past year I have had problems with diarrhea. My doctor put me on Welchol and that has pretty much stopped the diarrhea.
Has anyone in this group had any of these problems and if so what was done? Did your doctor change your meds from Neoral to some other anti-rejection meds.
Thanks for any responses.
Joe- I suggest you start taking fish oil for the kidney disease and pain. See our fish oil discussions. Also, I am surprised you are still taking immuran. I pushed my Drs. to switch me to cellcept and it extended the life of my kidney transplant. It is a much better drug. My Drs. told me it would not make and difference but agreed to switch me and it slowed down the chrionic rejection.
I had my liver transplant over 25 years ago. I started on cyclosporine in liquid form and graduated to Neoral pills ieel n my teens. I now take 1 25 mg pill daily . Over the years have expierenced chronic sinus problems and digestive issues. In my late 20's started getting muscle and joint pan and migranes. Dr's believed I could have had fibromyalgia when I developed the muscle and joint pain, but after my extensive research on cyclosporine I feel that this is just part of the package . As long as I keep up with excersising the muscle and joint pain disapears. As far as the migranes , i take migrane meds when needed. Other than those issues I am very lucky to be as healthy as I am today and thank god for the parents that decieded to donate their little girls organs after a horrible car accident, without them I would not be able to be here now. Hope all of you stay as positive and healthy this new year!!!
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