Sharing Knowledge Is An Invaluable Experience
Looking to hear questions and comments from those of you taking Myfortic.
Latest Activity: Apr 11
Started by Hostess Risé. Last reply by frank Mar 2.
Started by Awais. Last reply by Awais Dec 3, 2013.
Started by Cora. Last reply by Cora Jan 17, 2013.
Started by Sheila Boyd George. Last reply by Janelle Dec 9, 2012.
i have been on myfortic 1400 once a day for 9 weeks now im ok with it hasnt really caused me any problems that ive noticed xx
I hear you. For now they have left me on a maintenance dose of one Valcyte per day. It definitely is expensive, thankfully my insurance pays for it. Congratulations on almost 22 years with your new kidney!!
Yes, they put me on Valcyte, but within 2 weeks after going off I get the CMV back. That is one expensive drug. I worry about the impact of all these high powered drugs on my kidney. I had had 2 rejection episodes and am 21years 11 months out! Want to stay healthy!
I have taken Myfortic since transplant. About 4 months after tx I got CMV and have had one additional flare up since. Are you on Valcyte? The Valcyte seems to keep the CMV away for me.
I got switched to Myfortic 2 years ago due to terrible stomach issues with Cellcept. Now with the Myfortic I am having very low WBC and this causes me to have CMV over and over. Do any of you have this problem? I have had CMV 4 times over the past 2 years.
That transplant is a great wake up call that life is short...so live it to it's fullest. Everything in moderation is great. My motto now "it is what it is" and "you've survived worse". Both of these are working good for me.
Shit !! Bipsies are just a pain in the neck, as far as what I eat and drink, as an old Navy Veteran I have not changed my lifestyle in any way form years ago and have been living life since the transplant. As a couple of my team have said, go ahead do what you want, beat on it, you can't hurt it and I am living proof. Always curious why so many people get paranoid and withdraw from life after a heart transplant. Especially a lot in the USA, no offence, OH and finding GOD seems to be a big issue. I believe in a higher power but I call mine Fred. Life is GOOD !!
looks like you like the biopsies - drinking alcohol will certainly you bring you back to them.
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Posted by Andy on April 23, 2014 at 8:22pm
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