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Myfortic  Friends

Looking to hear questions and comments from those of you taking Myfortic.

Website: http://transplantfriends.com
Members: 75
Latest Activity: Apr 11

Discussion Forum

Do you like Myfortic?

Started by Hostess Risé. Last reply by frank Mar 2. 22 Replies

Myfortic dose

Started by Awais. Last reply by Awais Dec 3, 2013. 6 Replies

Low Hemoglobin

Started by Cora. Last reply by Cora Jan 17, 2013. 2 Replies

Myfortic and sleeplessness

Started by Sheila Boyd George. Last reply by Janelle Dec 9, 2012. 6 Replies

Comment Wall

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Comment by Carol Johnstone on January 10, 2013 at 12:11pm

i have been on myfortic 1400 once a day for 9 weeks now im ok with it hasnt really caused me any problems that ive noticed xx

Comment by Doug on January 7, 2013 at 11:36pm
I was on valcyte for 3 months after transplant. About a month later I came down with CMV. They put me on 900mg twice a day for 3 wks. Second week in I am starting to feel better. Still worry about the long term effects on my kidney. I had my 2nd transplant on August 9, 2012. My first one worked for 18 years.
Comment by Sheila Boyd George on October 18, 2012 at 10:49am

I hear you.  For now they have left me on a maintenance dose of one Valcyte per day.  It definitely is expensive, thankfully my insurance pays for it.  Congratulations on almost 22 years with your new kidney!!

Comment by Judith on October 18, 2012 at 10:42am

Yes, they put me on Valcyte, but within 2 weeks after going off I get the CMV back.  That is one expensive drug.  I worry about the impact of all these high powered drugs on my kidney.  I had had 2 rejection episodes and am 21years 11 months out!  Want to stay healthy!

Comment by Sheila Boyd George on October 17, 2012 at 5:56pm

I have taken Myfortic since transplant.  About 4 months after tx I got CMV and have had one additional flare up since.  Are you on Valcyte?  The Valcyte seems to keep the CMV away for me.

Comment by Judith on October 17, 2012 at 4:18pm

I got switched to Myfortic 2 years ago due to terrible stomach issues with Cellcept.  Now with the Myfortic I am having very low WBC and this causes me to have CMV over and over.  Do any of you have this problem?  I have had CMV 4 times over the past 2 years.

Comment by Jennie on August 2, 2012 at 8:04pm

That transplant is a great wake up call that life is short...so live it to it's fullest. Everything in moderation is great. My motto now "it is what it is" and "you've survived worse". Both of these are working good for me.

Comment by Jennie on August 2, 2012 at 8:02pm

Comment by Donald on August 2, 2012 at 6:01pm

Shit !! Bipsies are just a pain in the neck, as far as what I eat and drink, as an old Navy Veteran I have not changed my lifestyle in any way form years ago and have been living life since the transplant. As a couple of my team have said, go ahead do what you want, beat on it, you can't hurt it and I am living proof. Always curious why so many people get paranoid and withdraw from life after a heart transplant. Especially a lot in the USA, no offence, OH and finding GOD seems to be a big issue. I believe in a higher power but I call mine Fred. Life is GOOD !!

Comment by Mohan on August 2, 2012 at 2:40pm

Donald,

looks like you like the biopsies - drinking alcohol will certainly you bring you back to them.

 

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