Sharing Knowledge Is An Invaluable Experience
For those who have received one or both lungs. Site is open to anyone who have received a lung(s) along with another organ. Caregivers are also invited. We ask that you share your experiences and be as positive as possible in your comments.
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"Icky Sticky Stuff" By Rise' 1993
Children's story-about Pul, Mo, Zyme help Dr. Shak test out his new potion for children with Cystic Fibrosis.
The Power of Two on "Katie"
The lung image in our group was designed by Scott
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Looking for Lorraine Swift... from VGH Support Group....
WOW Cindy- What do you remember most about your transplant? Think about writing up your story. Anyone else who wants to write up your story send me an email at firstname.lastname@example.org and I will post it on our stories pages.
Hi Jack Lackritz... I had my transplant at Medical City Dallas Hospital. I also had severe complications and was in a medically induced coma for ALL of those days is why I did not wake up until 9-11. Why they woke me up that day I will never know. The ICU nurses were using my TV as a place to get info on what was going on. I really thought it was Armageddon.I have never been to New York State but always wanted to visit. I doubt I will ever get to :(
Wow! Operation on August 14, but you didn't wake up until September 11? You must have been REALLY tired (Just kidding).
Did you get your transplant in New York? At Columbia University / NY Presbyterian, which is the only lung transplant center in New York State, it was truly a madhouse on 9/11. The hospital is in northern Manhattan, so it's at the opposite end of the island from the twin towers that fell on 9/11. Patients from all over the city were evacuated to Columbia, so it was really nuts there.
Hope your med issues get ironed out and you get off the O2 soon.
I had a single left ling transplant on 8/14/2001. Woke up from initial surgery on 9-11. Yes THE 9-11, and I was horrified. I truly thought the end of the World was here.
I am back on O2 24/7, having a few medication related illnesses and still thank GOD for my donor daily.
Check out The Lung Transplant Foundation and their walk, Lun gapalooza, to raise money for chronic rejection research. http://www.lungtransplantfoundation.org
You do need a letter to bring O2 on airline. Some airlines have their own odownlodable letter with their letterhead you must use and have filled out by your dr.
Posted Orlans fundraiser on my facebook page.
You can rent portable oxygen units or your insurance might pay if it is for transplant related visit to fly. Medicare HMO paid for mine from New Orleans to Clevelaned and back for 2 yrs.
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"The Power of Two Movie" Available online
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