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Comment by Debbie on May 13, 2013 at 8:39pm

Looking for Lorraine Swift... from VGH Support Group....

Thanks

Comment by Miranda on May 7, 2013 at 6:34pm

I had a double lung transplant Nov2011. I had a difficult time with the decision. I finally decided to go for it.
My health has been great since the transplant!!! I am experiencing breath as I never had in my whole 38 years.
I had no complication because I had a very active life.
Now, it has been a year and half since my tx and things are finally becoming easier for me. The recovery process is LONG!!! The side effect of some of the drugs SUCK!!!! I have been super depressed from the experience e and drugs. Once I began the evaluation I started going to a therapist because I was really ready to die but yet I continued to fight for life for my loved ones. I felt like I was giving up one my "bad" lungs. And the. There's this whole weird thing about the donor. If you believe in a spiritual world or life. I often felt as if I could feel the suffering of my donor. Not just my own.
I say these things simply because I never heard anything about this at support groups.
I'm glad I did it I can live longer but I was already satisfied with the life I lived. I am now living a whole new live and some what starting over.
Good luck
Miranda

Comment by Hostess Risé on April 1, 2013 at 8:05pm

WOW Cindy- What do you remember most about your transplant? Think about writing up your story. Anyone else who wants to write up your story send me an email at transplantbuddies@gmail.com and I will post it on our stories pages.

Comment by Cindy on April 1, 2013 at 4:23pm

Hi Jack Lackritz... I had my transplant at Medical City Dallas Hospital. I also had severe complications and was in a medically induced coma for ALL of those days is why I did not wake up until 9-11. Why they woke me up that day I will never know. The ICU nurses were using my TV as a place to get info on what was going on. I really thought it was Armageddon.
I have never been to New York State but always wanted to visit. I doubt I will ever get to :(

Comment by Jay Lackritz on April 1, 2013 at 10:09am

Cindy,

Wow! Operation on August 14, but you didn't wake up until September 11? You must have been REALLY tired (Just kidding).

Did you get your transplant in New York? At Columbia University / NY Presbyterian, which is the only lung transplant center in New York State, it was truly a madhouse on 9/11. The hospital is in northern Manhattan, so it's at the opposite end of the island from the twin towers that fell on 9/11. Patients from all over the city were evacuated to Columbia, so it was really nuts there.

Hope your med issues get ironed out and you get off the O2 soon.

Comment by Cindy on April 1, 2013 at 8:18am

I had a single left ling transplant on 8/14/2001. Woke up from initial surgery on 9-11. Yes THE 9-11, and I was horrified. I truly thought the end of the World was here.

I am back on O2 24/7, having a few medication related illnesses and still thank GOD for my donor daily.

Comment by Kathryn Flynn on October 14, 2012 at 4:04pm

Check out The Lung Transplant Foundation and their walk, Lun gapalooza, to raise money for chronic rejection research. http://www.lungtransplantfoundation.org

Comment by DebbieK on August 10, 2012 at 7:42pm

You do need a letter to bring O2 on airline. Some airlines have their own odownlodable letter with their letterhead you must use and have filled out by your dr. 

Comment by DebbieK on August 10, 2012 at 6:52pm

Posted Orlans fundraiser on my facebook page. 

Comment by DebbieK on August 10, 2012 at 6:50pm

You can rent portable oxygen units or your insurance might pay if it is for transplant related visit to fly. Medicare HMO paid for mine from New Orleans to Clevelaned and back for 2 yrs.  

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