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Lung(s) Transplants

For those who have received one or both lungs.  Site is open to anyone who have received a lung(s) along with another organ. Caregivers are also invited. We ask that you share your experiences and be as positive as possible in your comments.

Website: http://transplantfriends.com
Location: transplantfriends.com
Members: 142
Latest Activity: on Friday

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"Icky Sticky Stuff" By Rise' 1993

Children's story-about Pul, Mo, Zyme help Dr. Shak  test out his new potion for children with Cystic Fibrosis. 

The Power of Two on "Katie"

 

The lung image in our group was designed by Scott

Discussion Forum

Opera singer Charity....

Started by Hostess Risé Jun 1. 0 Replies

New to group

Started by Adam. Last reply by pas May 30. 7 Replies

Lung Transpant Evaluation

Started by miocean. Last reply by miocean May 29. 4 Replies

5 Year Survival

Started by Jay Lackritz. Last reply by Adam May 27. 42 Replies

Lung Transplant Friends

Started by james. Last reply by Hostess Risé Apr 6. 1 Reply

Introductions

Started by Hostess Risé. Last reply by Cindy Apr 1. 25 Replies

Tattoo's

Started by Kelly. Last reply by Lisa Feb 13. 23 Replies

Lung Transplant on TV

Started by Jay Lackritz. Last reply by debfay Jan 26. 5 Replies

waiting

Started by Steven. Last reply by nancy Cowart Jan 25. 13 Replies

Transplant Survey -- Please take a few minutes

Started by Barbara Branaman. Last reply by Bobbiejo Winfrey Dec 12, 2012. 2 Replies

1st year anniversary/testing

Started by Rachel. Last reply by rod Dec 10, 2012. 8 Replies

advice/help

Started by Steven. Last reply by Leo Aug 17, 2012. 13 Replies

Comment Wall

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You need to be a member of Lung(s) Transplants to add comments!

Comment by Hostess Risé on June 1, 2013 at 12:41pm

A very positive uplifting story about a double lung transplant patient

http://www.washingtonpost.com/national/health-science/singing-opera...

Comment by Debbie on May 13, 2013 at 8:39pm

Looking for Lorraine Swift... from VGH Support Group....

Thanks

Comment by Miranda on May 7, 2013 at 6:34pm
I had a double lung transplant Nov2011. I had a difficult time with the decision. I finally decided to go for it.
My health has been great since the transplant!!! I am experiencing breath as I never had in my whole 38 years.
I had no complication because I had a very active life.
Now, it has been a year and half since my tx and things are finally becoming easier for me. The recovery process is LONG!!! The side effect of some of the drugs SUCK!!!! I have been super depressed from the experience e and drugs. Once I began the evaluation I started going to a therapist because I was really ready to die but yet I continued to fight for life for my loved ones. I felt like I was giving up one my "bad" lungs. And the. There's this whole weird thing about the donor. If you believe in a spiritual world or life. I often felt as if I could feel the suffering of my donor. Not just my own.
I say these things simply because I never heard anything about this at support groups.
I'm glad I did it I can live longer but I was already satisfied with the life I lived. I am now living a whole new live and some what starting over.
Good luck
Miranda
Comment by Hostess Risé on April 1, 2013 at 8:05pm

WOW Cindy- What do you remember most about your transplant? Think about writing up your story. Anyone else who wants to write up your story send me an email at transplantbuddies@gmail.com and I will post it on our stories pages.

Comment by Cindy on April 1, 2013 at 4:23pm

Hi Jack Lackritz... I had my transplant at Medical City Dallas Hospital. I also had severe complications and was in a medically induced coma for ALL of those days is why I did not wake up until 9-11. Why they woke me up that day I will never know. The ICU nurses were using my TV as a place to get info on what was going on. I really thought it was Armageddon.
I have never been to New York State but always wanted to visit. I doubt I will ever get to :(

Comment by Jay Lackritz on April 1, 2013 at 10:09am

Cindy,

Wow! Operation on August 14, but you didn't wake up until September 11? You must have been REALLY tired (Just kidding).

Did you get your transplant in New York? At Columbia University / NY Presbyterian, which is the only lung transplant center in New York State, it was truly a madhouse on 9/11. The hospital is in northern Manhattan, so it's at the opposite end of the island from the twin towers that fell on 9/11. Patients from all over the city were evacuated to Columbia, so it was really nuts there.

Hope your med issues get ironed out and you get off the O2 soon.

Comment by Cindy on April 1, 2013 at 8:18am

I had a single left ling transplant on 8/14/2001. Woke up from initial surgery on 9-11. Yes THE 9-11, and I was horrified. I truly thought the end of the World was here.

I am back on O2 24/7, having a few medication related illnesses and still thank GOD for my donor daily.

Comment by Kathryn Flynn on October 14, 2012 at 4:04pm

Check out The Lung Transplant Foundation and their walk, Lun gapalooza, to raise money for chronic rejection research. http://www.lungtransplantfoundation.org

Comment by DebbieK on August 10, 2012 at 7:42pm

You do need a letter to bring O2 on airline. Some airlines have their own odownlodable letter with their letterhead you must use and have filled out by your dr. 

Comment by DebbieK on August 10, 2012 at 6:52pm

Posted Orlans fundraiser on my facebook page. 

 

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biopsy time

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